SueSt - A good place to start would be to locate the American Academy of Craniofacial Pain website and go to the referral area. There are a number of docs listed - however - scroll down each of their descriptions as it indicates what percentage of their practice is working with TMJ patients. The ones with a very high (90-100%) percentage of TMJ patients are, in my opinion, the ones to contact as they have the most experience. What part of Illinois are you in? I may be able to help you more.
[This message has been edited by cathyk (edited 05-21-2003).]
Hi SueSt- If you want I will ask the guy I see if he knows a good one downstate or in the Missouri area. He's part of the cranial organization and knows some great docs - I see him later this week.
I would suggest going to the guy I go as he's the best in my opinion, but he's probably a few hours from you - but closer than if you had to go to Chicago. It would be great to find you someone who is good, and close, so you don't have to travel when you get adjustments if you take the splint route.
Cathy, I would be grateful for any names. I would be willing to travel to find someone good!!
I did go to see the only downstate specialist, but he told me how he was going to treat me BEFORE doing all the expensive testing for which I have no insurance, and after the awful experience I have had with the orthodontist, I did not proceed with the guy. I felt like he was going in the wrong direction - agreeing with the orthodontist that the problem was the bite, and that if the bite got better through orthodontic treatment then the problem would go away - it hasn't!! I had a bad bite before orthodontic treatment and no symptoms and symptoms started within a week of putting on the lower braces, so --- I am really nervous about getting into another bad situation. My orthodontist really doesn't know what to do about it.
Thanks for your help.
I would suggest Doctor Leslie Heffez in Chicago. He is at the University of Illinois.He is the professor and dean there. He was also on the board for the congressional hearings for TMJD and the different implants. If you do a search on the net you can find the hearings. I went to Doctor Heffez while we were in the Chicago area and I was impressed by his honesty.I have the "faulty" Christensen implant. He advised me to have it removed and replace with nothing. I think he would lead you in the right direction, instead of the BS so many of our "qualified" doctors insist we try. Excuse me if I sound bitter but uggghh, this junk gets old. I don't have insurance either so I can sympathize with you.
I am not on here much as I am "most" of the time staying with my terminally ill mother. Each day is such a struggle for her and to be there and watch it, just breaks my heart.
Anyway, I hope this helps.
Thank you for the name. I will follow up. I appreciate having someone who is thought to be honest, because my orthodontist has not been.
I will keep you in my prayers. I am sorry to hear about your mother; that must be a very difficult situation. Thanks for taking the time to help me!
I saw the man you are referring to (see my earlier post) in this subject. I know some people who swear by (not AT!) him (just a joke) but I am extremely wary at this point. With no insurance and him telling me how he was going to treat before he did any tests to find the cause of the TMJ, I just did not want to proceed. Needless to say, I was disappointed.