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need opinions please :o(

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Old 05-27-2003, 01:44 AM   #1
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Posts: 32
miracleboyuk HB User
Post need opinions please :o(

I have suffered from lightheadedness and inner ear type symptoms for over a year now, and have previously suffered with clicking jaw and sometimes clicking or other strange noises in my right ear area. On Saturday morning I woke up and couldn't close my jaw - when I tried, the muscles on the right hand side of my face siezed up and I got a lot of pain and pressure on that side of my jaw and in my ear. I am still suffering with the pain, and loss of mobility in the jaw on that side, and get a lot of pressure buildup when I eat or drink anything. Does this sound like it could be TMJ or is it something related to my Eustachian Tube which I have read about? I am going to make an appointment with the doctor, but would like some opinions please.

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Old 05-27-2003, 06:54 AM   #2
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Join Date: Feb 2002
Location: Ontario, Canada
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crystalll HB User


Your symptoms sound very similar to mine. I'm currently wearing a splint, but my inner ear symptoms are still persisting. Sometimes getting a diagnosis of TMJD is a process of elimination. You should definitely get checked out by an ENT and maybe even a neurologist. In the meantime, make an appointment with a dentist who specializes in diagnosing and treating TMJ disorders. The clicking and the open lock would indicate a TMJ disorder.

Best of luck with everything.


Old 05-27-2003, 07:44 AM   #3
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miracleboyuk HB User

Hi Crystal - thanks for the reply!

A bit of history on my symptoms so far...

In Dec 2001, I had a hard wax blockage in my right ear - this was treated for abotu 2 weeks with warm oil to loosen it up and then I went to have the right ear syringed. This fixed the wax problem, and all was fine.

About 2 weeks after this, I had a bad throat infection and this started my lightheadedness off. I was originally diagnosed with Laby. and given Prochlorperazine for the symptoms. This persisted for months, after which I was 'upgraded' to vestibular neuronitis.

I then went to an ENT who did an ENG test which showed about 21% deteriation in my right ear. I had blood tests for diabetes, etc also. I also had a full head MRI for a possible (but rare) acoustic neuroma. This came back completely clear. I was told at that point that he wasn't 100% sure but he suspected severe nerve damage from the Laby./VN and said it would take 18 months to heal completely. 18 months later and I'm still suffering lightheadedness and confusion etc.

I suffer from a painful neck (muscles) from time to time, and occasionally get these wierd sucking/squelching noises when I chew.

This is the first time I have suffered actual severe pain, at the moment I can't fully close my mouth without pain and am getting full on suckin/squelching noises with clicking, popping and shooting pains thrown in for good measure.

The doc checked for problems with my eardrum at the time, he would have checked for ETD at this point wouldnt he?

I have an appointment for tomorrow am and I will put both TMJ and ETD to him.

Old 05-27-2003, 11:42 AM   #4
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Location: Ontario, Canada
Posts: 506
crystalll HB User


I believe if you underwent the full testing with an ENT that they would have checked for ETD at the time.
I have eustachian tube problems as well, and the ENT was unable to find anything wrong during testing.
When you suffer from muscle spasms due to TMJD your eustachian tubes can be affected.

I'm not sure what type of doctor you're seeing tomorrow, but he may not be well-educated in TMJ disorders. If he/she has no answers, then definitely seek out a TMJ specialist.

Take care.

Old 05-27-2003, 12:10 PM   #5
Join Date: May 2003
Location: Plainsboro, New Jersey, USA
Posts: 55
quinnma HB User

Hi Crystal,

I have had some of the same symptoms - see my current post about my 1st visit to a TMJ doctor. I am also seeing the following specialists: ENT, neurologist, psychiatrist, and opthamologist.

The TMJ doctor stressed the complexity of these kinds of problems and said it's best to take a multi-disciplinary approach, so you can eliminate problems one my one in the diagnosis. It's a real time-consuming, stressful hassle (and ultimately expensive if your insurance doesn't cover it all). In the past month I have been introduced to so many possible medical problems that are I might have and which are hard to pin down: pain syndomes in the face/head/neck, due to nerve problems, anxiety-related symptoms, inner-ear disorders of all kinds, cervical spine problems. It's not an easy road unfortunately, at least in many cases. I suppose there are some who can get an answer from one source, but many of us cannot, because we have inter-related problems arising from inter-related anatomical structures. How's that for a theory... Don't mean to sound pompous, it's just where my mind is going right now.

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