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Old 05-28-2003, 10:00 AM   #1
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Post Saw the new TMJD doctor today....

Hi There,

We went to see the new TMJD doctor today. It was about a 2 1/2 hour appt. The entire history of this mess seemed to take forever. He did impressions, x-rays of the joints, listened to them, (doppler?) he said they make a lot of noise, measuring, feeling, etc...he asked dozens of qustions, also. He seemed really surprised that between the 2 splints, PT, drugs, etc. he hasn't seen any improvement. He said that for starters he'd try other splints, he said the current ones are too 'passive'. Concerning the current splints, he said that he should've seen some improvement by now if he were going to see any. To be honest with you, he didn't say a whole lot. (this was explained to me in a letter he sent a few days ago) The first visit, he finds out the history, does the diagnostic work, etc. After he studies all of this, then you go back in for appt. #2, and then you 'talk'. He then discusses what he thinks and the course of treatment. Sounds fair. (However, I did tell him that this was only a consult., and that we were getting another's opinion, too)

He also said, (Boy, I'm getting tired of hearing this phrase) that he's never seen a kid with a case this severe. (he treats mostly kids) He wanted to try something immediately, so he fitted him for an NTI. (this was done in no time!) He assured me that he wouldn't charge me anywhere near what the other 2 splints cost. He seemed concerned about giving him a break with his pain. He only wants him to wear this at night.

After all of that, he said he'd go over everything, and would see us back on Friday, and discuss all. The total cost for these two visits is $165. It doesn't seem that bad, his first visit to the old TMJD doctor was the same price, minus the diagnostic tests. (this was a more impressive attempt of looking and listening to the joints other than feeling and guessing like the first doctor did) Oh, he did look over his MRI's and said that they look good. He also said to continue with the chiro. and masso.

So, I guess we find things out on Friday. After school today he has another chiro. appt., and tomorrow evening, we're off to the neuromuscular dentist. All of you probably think that I'm nuts, seeing and getting opinions from 2 different people so closely together. The reasons for this are, I don't want to jump right into another doctor's care without thinking. I'd rather see the two, get both of their opinions, and decide who I think may be able to help him more. (sort of like shopping for a car, I guess, you're not going to buy the first one that you see) Secondly, our current insurance expires at the end of the month, and we'll then have a new insurance. Most of the doctors and dentists that we see are 'out of network', so I have to meet deductibles before they pay anything out. So, this has worked out nice, see everyone before the insurance expires, and get some of this paid for. This way, when our new coverage begins, we won't have to start over with expensive deductibles, if that makes any sense. Anyway, we'll see what the rest of the week holds. Thanks for listening, any advice, good or bad, I'm all ears.

Cheryl



[This message has been edited by CherylLynn24 (edited 10-31-2003).]

 
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Old 05-28-2003, 10:12 AM   #2
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I sure hope one of these dentists work out. Let us know how it goes tomorrow.

Amanda


[This message has been edited by totallyconfused (edited 05-28-2003).]



[This message has been edited by totallyconfused (edited 10-29-2003).]

 
Old 05-28-2003, 10:27 AM   #3
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I replied to you under the grrr...post. You're not over-reacting at all.
Cheryl

[This message has been edited by CherylLynn24 (edited 10-31-2003).]

 
Old 05-28-2003, 11:11 AM   #4
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Cheryl I don't think you are nuts at all!!!
Wow!!! that is really cheap for two visits. My one vist (2 hours) was $325. I still think it was worth it he was very good. I forgot who mentioned this but someone wrote they have a list of their whole history down so they can just hand it to the doctor. I think I am going to do this because I forget a lot when I go. I even forget the most common symptoms, like grinding my teeth. When I am feeling out the paper work all I can think about is I am in a lot of pain. I should also write down all the medication that I have taken for this. My problem is when they ask what was first done about my situation I really don't know. I went to several hospitals but since they did not believe me I did not think it was necessary to remember all of them. I am better with remembering the hospitals, but I doubt that I have anything in a file because they did not treat me. What do you think???


 
Old 05-28-2003, 12:50 PM   #5
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Heather,

What I've done with him is every appt. that he's gone to, I write down who he saw, what they did, and if anything was prescribed, etc... I started this before we even knew what was wrong. I add to it every new appt. (and believe me, the list has grown!) It's much easier to hand a doctor/dentist a complete history that is very accurate, instead of trying to remember. With my mindset lately, I'm lucky to remember my name somedays!!!!

In my opinion, it's an excellent idea!

Cheryl

[This message has been edited by CherylLynn24 (edited 10-31-2003).]

 
Old 05-28-2003, 01:35 PM   #6
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Hi Cheryl, Well, it sounds like you had a pretty good visit with the TMJ dentist. Sorry to hear he thinks Mike's splints are too passive after you spent all that time and money on them.(and put hope in them too) But maybe the NTI will help him alot with the clenching. And if you can stop the clenching, alot of the pain will go away. Does Mike have an overbite at all? The reason I am asking is because the orthodontist I used to see told me that NTI's can make an overbite worse. ( I wanted to try one at the time)I have never asked my new specialist about them but I think I will next time. A friend of mine works for a dentist and I sometimes call her with questions. She told me they use the NTI alot with great results for people (especially helps the headaches) and that she has never seen it cause an overbite.

Tell Mike I am thinking of him and I am still praying for him. I hope his chiropractor appt. helps him feel better today! And Cheryl, you are not nuts at all for getting all these opinions and people involved. You have to do that if you are going to find the right help for Mike and you are doing what any Mom would do. I just know the answer is coming for you here and Mike is going to start getting better soon! I always try to think this way, I am not letting this problem take control of me, I am going to get control of it if I have to see 20 different doctors, dentists etc. I will keep trying and researching everything I can until I find what helps me. And if I don't feel comfortable with a dentist or doctor then I will move on to another one. And since Mike is just a kid, you are doing all that for him. You are a very good Mom!!!!!

Well, my appt. today was okay. He did alot of adjustment to the splint and told me to try it out and call if it still doesn't feel right. I asked him if he thought my top teeth could be shifting at all because of not wearing the top splint. He looked at them closely and said he does not see that the bite has opened up any more than it was before.( i was glad for that) He said that just the lower splint being off like it was probably made me clench and grind on it at night and is making my bite feel off. I kind of figured that. Now I am just hoping that the adjustments do the trick. It did feel pretty even sitting there in the chair, but you know how that is, it feels different once you lay down. So that is where I am at right now. Just have to see how it is the next few nights.

Well, take care and keep me posted on Mike. Also, how have you been doing? Michelle

 
Old 05-28-2003, 06:13 PM   #7
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Michelle,

It sounds like your splint needing an adjustment was the problem. Your dentist sounds like he works well with you, that's good. I'm sure this will do the trick for you, relief will be on the way! I know what you mean about things feeling right when you're in the dentist's office, he always notices things after we get home.

As for the NTI he's going to try, geez, at this point, I wouldn't care if it gave him big ole' buck teeth! As long as the thing provided some relief! It can't hurt to give it a try. I'm just paranoid about him choking on it in the night. It seems to fit pretty tightly, though. The dentist said no one has ever choked on one. It couldn't hurt to ask your dentist about them the next time that you go in.

Thanks for your continued prayers for him. I've just been so worked up lately, I want to do the right thing, but I don't even know what the right thing is. I'm just trying to use my best judgement with my choices. This is so hard Michelle, when it's your kid! I just hope that he starts seeing some improvement soon. We did go to the chiro. today, I have to help him 'ice' his jaws later. I'll get a better idea of how he is by tonight.

It was nice hearing your optimism, it gives me hope, too. Most days I feel that way, but every so often I get a day when I'm sooo pessimistic. (today's one of those) Luckily, tomorrow I'll be up again, I never let those days stay with me.

How's your weather there? We finally had a sunny day, here. It was around 69 degrees. Usually by mid-May we put our pool up. We haven't even put it up yet! It's been so cold and rainy for so long that we haven't gotten a chance. We were thinking of putting it up this weekend, but it's supposed to rain ALL weekend again. By the time we put the thing up, it'll take half the summer to warm the water up!!

Well, I hope that you have a better night, I'll be praying that this splint does the trick for you. I'll let you know how his next appt. goes.
Take Care,
Cheryl

[This message has been edited by CherylLynn24 (edited 10-31-2003).]

 
Old 05-28-2003, 07:04 PM   #8
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Cheryl,

Just wanted to see how everything was going.

[This message has been edited by totallyconfused (edited 07-24-2003).]

[This message has been edited by totallyconfused (edited 10-29-2003).]

 
Old 05-28-2003, 07:17 PM   #9
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TC,

It went pretty good. I have to go and ice his jaws-I'll let you know more later. Thanks for asking!

It's sort of funny how we seem to be replying to each other's posts at the same time!!

Cheryl

[This message has been edited by CherylLynn24 (edited 10-31-2003).]

 
Old 05-28-2003, 07:30 PM   #10
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Hi Cheryl, hope everything goes well.

Amanda



[This message has been edited by totallyconfused (edited 10-29-2003).]

 
Old 05-28-2003, 08:36 PM   #11
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Good evening Cheryl!
YAHOO!!!!Diane

[This message has been edited by DianeTMJ (edited 08-04-2003).]

 
Old 05-28-2003, 08:50 PM   #12
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Diane,

That's great that your hygenist spends that much time with you, massaging your muscles and all. I haven't heard of many out there like that.

It sounds like you've had a nice day planning it all out. Wow! 2 kids at once, that's going to be a handful!

Did you ever have braces? It seems as though you didn't hear so much of TMJ in the past, but with the assembly line with braces, TMJ seems to be lurking everywhere.

Well, I'm glad to hear that you had a good day.
Take Care,
Cheryl

[This message has been edited by CherylLynn24 (edited 10-31-2003).]

 
Old 05-29-2003, 06:59 AM   #13
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No, I never had braces. When I was about 26 they tried to put me in braces and I ran from it. I just didn't want to do it. A friend of ours has had braces twice and suffers with TMJ. I just can't help but wonder if that is the most common reason for TMJ today????
Have a nice day!
Diane



[This message has been edited by DianeTMJ (edited 10-29-2003).]

 
Old 05-29-2003, 08:29 AM   #14
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Diane,

Hope you get over the soreness from your cleaning!

Hope you have a good day.


[This message has been edited by totallyconfused (edited 07-24-2003).]

[This message has been edited by totallyconfused (edited 10-29-2003).]

 
Old 05-29-2003, 08:35 AM   #15
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Good morning TC
I couldn't believe how caring my hygen. was. He just really took his time, stopping and massaging every 10 minutes.
When I got home last night I just hooked myself up to my "magic" machine and woke up this morning feeling pretty dag gone good.
Diane

[This message has been edited by DianeTMJ (edited 10-29-2003).]

 
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