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TMJ Disorder -TemporoMandibular Joint Message Board
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Old 07-08-2003, 07:30 PM   #1
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Arrow I'e wanted to post a lot, but...

Hi everyone-
I have wanted to post a lot over the past week, but I haven't. I haven't had the energy and my pain levels have been pretty high all the time..I'll start a post and then won't be able to finish it. But I do want everyone to know that I haven't left or abandoned the board. I have actually been reading a lot and I have A LOT to say about what everyone has been going through, and also questions for people about their treatments. I want to let everyone here know that I appreciate all the support, and all of the help that I have gotten over the past 6 or 7 months that I have been here (it sure doesn't seem that long..boy time flies when you're in pain all the time. LOL).
In a couple days I'm sure the pain will go down.
I actually switched pain medications Monday from something very strong to something not as strong. Sometimes I still have to take a strong pill, like when I wake up or after I attempt eating, but overall I think they pain is getting better.
So, the point of this whole email is to let you all know that soon this board will be FULL of my posts!!!
I have a lot of questions for everyone but specifically I want to start a thread with Navy..I have a lot to ask you about your joint crepitus and that whole ordeal.
Also Amateurdoc...(and all other atlantans) I wanted to possibly talk to you about doctors and treatments here in the area, since I am done with my surgery and probably need to look into maintaining the good relationship in my joints.
Well everyone I must go I am so tired, and my pain is starting to come back after a VERY welcomed hour or so hiatus.
Talk to you soon-
.stacy.
(who gets her stitches out tomorrow and is excited to start the road to recovery and NO PAIN!!)
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Old 07-08-2003, 09:37 PM   #2
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hi Stacy

just wanted to say i'm glad that your surgury went well. get well soon

Anastasia

 
Old 07-09-2003, 04:07 AM   #3
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(((((Stacy))))) don't worry about us just get yourself well. I think of you often and how you are feeling. I hope your pain goes away soon and you are on the road to recovery. Just keep us posted on how YOU are doing and the rest of us will get by until you are feeling better. Take care, Jill

PS: I'm on my way to your city today for a wedding

 
Old 07-09-2003, 05:13 AM   #4
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Glad to hear the op went well, heres to a speedy recovery!
Ladida
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Old 07-09-2003, 03:45 PM   #5
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Stacie,
Just wanted to let you know that it does take a while to heal. Don't rush, heal correctly, take the meds as prescribed. If you need pain meds say so.Surgery can and does take care of specific problems. (Not everyone on the board needs surgery or would surgery help them.) That said, I wish you the best in YOUR recovery. Keeping your spirits up is important. My best.
QA11

 
Old 07-09-2003, 04:33 PM   #6
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Stacy,
I'm happy to hear your pain is lessening, and I dearly hope it continues to fade into obscurity.
We are still searching for help. Saw a NM dentist recently, but he is moving at a snail's pace--at least for one very impatient husband. Spoke with another dentist today who seemed extremely knowledgeable and caring. Did not get the feeling that I was the prey of a new-patient hunting doctor that I've gotten so many times. Especially recently.

Take care, and feel better.

Dan

 
Old 07-09-2003, 04:56 PM   #7
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Hey Stacy,
I am happy that you finally were able to have your appointment. I want to know all about it when you are feeling better. It sounds as though the surgery could have been a blessing for you. I really hope it was. Details! Details! Please!
Heather

 
Old 07-09-2003, 09:52 PM   #8
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hey guys!
i'm back but just for a minute. i got my stitches out today.... he measured my opening. guess how big it was.....
27 MM!!!!!!! CAN YOU BELIEVE THAT?! that's huge! before the surgery it was only 13, and that's on a REALLY good day. most of the time it was stuck at about a 9 or 10.
my goal is 40 within the next six weeks. he says we have a window of 6 weeks to stretch it out before the body starts making scar tissue inside the joint.
my doc is so smart.... it blows me away the things he knows about the tmj and what works and what doesn't.
he's even conducting a study that will be published in the journal of oral and maxillofacial surgery. i'll be included in it too hehe.
what he did is took some blood before the surgery, and spun it down in a centrifuge to this plasma that promotes healing and growth in bones and tissues...then put it in my joint when he was doing the surgery. he says it reduces post operative pain by like 1/3. geeze! i can't imagine what the pain would have been like without it!!!!
anyway i am exhausted after today.
after the doctor appointment we went to the grocery store, and i got a bunch of stuff for smoothies.
it's this great gourmet/organic grocery store near our house. they have the best exotic fruits and veggies.
i'm becoming a master at smoothie making. i made one yesterday, and my step-dad said it was the best he's ever had. maybe i should start a smoothie place. hey, it would be nice to make a fortune off the results of this damn disease. hehehe.
well, talk to you guys soon- thanks for all the get well wishes and i hope your pain gets better too!
love
.stacy.

[This message has been edited by goodwillstacy (edited 07-10-2003).]
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Old 07-09-2003, 10:46 PM   #9
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Hi Stacy:
That's fantastic. Sounds like things are really going well. How's the pain today? Is it starting to feel better? It's great to hear some good news. Keep checking in to let us know how you're doing. I hope things just keep getting better and better.

Hugs,
Arleen
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Old 07-10-2003, 09:08 AM   #10
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Hey Stacy
I have been thinking about you...(haven't been on here lately but you have been in my thoughts). I am glad you are liking Razook...I go next Thur. to pick up my slint. I feel lucky he is doing it has he doesn't do "manage stuff" anymore as he said. But he did agree to manage me with a little begging and pleading. My PT has really good things to say about him to. Apparently they work alot together...I wonder if Razook will refer you to him...??? My PT and I had a chat today about neuromuscular dentists and he did scare me a little. So for now I am sticking with Razook, PT , massage and cranio-sacral work. I know it has helped many people but for now this is my track and I may switch later (espcially if Navy and Amatuerdoc have good experience with the Doc here).

Enjoy those smoothies and I am sooo glad you are getting better!!!!!! Great news on your range of motion, that is awesome!! I am lucky that I do have good range but I have had to work at it since the orthonagthic surgery last summer. Keep your spirits up!!!

Julie

 
Old 07-10-2003, 10:29 AM   #11
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Stacie:

Glad to hear about you opening..that is wonderful!! I hope you continue to get better and better!!

Julie:
Do you mind my asking what your PT said about NM dentists that scared you? I'd be interested to know.
Thanks.

Hope everyone feels better.
TC

 
Old 07-10-2003, 06:10 PM   #12
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Hi TC,

I haven't had the opportunity to talk to you yet but I have seen many of your posts....so nice to "meet" you.

Well I was asking my PT about the NM dentists today when I was in (as I like everyone else will explore any option that may work)... as I was telling him about my appt. with Dr. Razook the surgeon I had a consult with. I mentioned to my PT how many people on here say the NM dentist has been benficial (Now a little background is that my PT lectures/teaches and writes...he has a chapter in the new Oral Maxillo Facial book that is compiled by many physicains jointly...so he is a very traditional PT...which I am not saying is a bad thing...but that is his frame of reference). He was telling me the history of the myomonitor- ?spelling- as I was asking him about that and TENS. His concern is that he has seen/treated way to many people after going to NM dentists who are at the broke point (after spending thousands of dollars) and have had major dental work and built up crowns etc.... His point of view is that it is a cash cow for many. He is open enough to say that some people probably get some help...but he has seen it to be few. Now I have to say I don't feel like he is telling me that to keep me as a patient, as of course he gets paid wether I go or not...and we were talking colleague to colleague as I also work in the therapy world. Knowing his reputation, he is someone I respect and to hear that just makes me concerned enough not to take that route first. Although it sounds like it has been a very successful route for some on here and if Navy and Amateurdoc have a good experience with the LVI doc here in town I may be next in line....I have learned never to say never. I know that is not a lot of concrete info. I guess it was hearing that he sees the pts. after they have tried that route and success was not what was described. Have you been to one? I am open to anything I can learn. Thanks so much....
Julie

 
Old 07-10-2003, 07:23 PM   #13
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We are leaving our options open, but as of right now we are not pursuing treatment with the NM dentist. I just feel he is charging a lot of money to do something not altogether that different than other regular dentists. Using machines to relax the muscles, to find the proper bite, to make the splint, to impress prospective or current patients. It still comes down to a splint and the guy designing and adjusting it. We've spoken with someone who has gone the NM route, and considers it to have been nothing but a waste of money. So there are obviously two sides to the issue. I'm tickled for those folks who get relief this way, and as I said we're leaving our options open. But we're gonna talk to at least one more guy first.

Take care, all.

Dan

 
Old 07-10-2003, 10:50 PM   #14
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Hi Guys.
You know what, I have to agree with Amateurdoc and Dr. Razook in saying that I don't believe in these "neuromuscular" dentists. I think it's all a bunch of crap. I mean, sure if the guy can make a splint that's great- but so can many other dentists that don't charge a lot of money for this new title. That's just my opinion. And what am I? Just a woman with no medical background except for the fact that I've been to lots of "TMJ specialists" around the country.
In any case, jnewot - you are lucky that Razook is handling your splint. He did mine also and it is very nice. He's really good at it. Of course he told me he wasn't too concerned that it was perfect (and in his eyes "just ok" is perfect, lol) since my bite will be a little off after surgery because of the swelling in the joint. It'll go back to normal and we'll adjust the splint as need be. He's such a great guy- everytime I see him I trust him and like him more.
One day when this has all kind of passed and we are done with the post op stuff, I'll actually sit down and tell him how much I appreciate everything he's done for me. I'll tell him how I thought I didn't have much of a future and I didn't think my husband and I would be able to start a family. I will tell him how I thought I would be stuck with no job hurting every day.
But with him, doing this surgery he basically gave me my life back. He gave me a future. He gave my Husband and I hope. He'll never understand how much it means to us. But I'll always think of him as the doctor who saved my life.

gotta get to bed, talk to you guys soon.
stacy
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Old 07-11-2003, 06:37 AM   #15
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Oh Stacy, I am so happy for you!!! You must be on cloud 9 right now. 27mm I can't remeber when was the last time I had that big of an opening. It sounds like your doctor didn't jerk you around like so many others usually do. I hope you improve so you can be "normal" again. I am with you, whoever can give me that much progress will always have a great place in my heart and also my husbands. I can't wait until I can tell them how much I appreciate them really using their God given talents for good.
Heather

 
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