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TMJ Disorder -TemporoMandibular Joint Message Board
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Old 09-01-2003, 07:04 PM   #1
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Location: Kitchener, ON, Canada
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mom2ebs HB User
Talking Hello from Canada

Hi everyone,

I am new here, but not new to TMJ problems. I am 33 years old and have 2 dislocated discs. One is much worse than the other and I am starting to have more pain than I used to. My jaw is locked most of the time these days, and I am currently trying to learn how to live with this whole TMJ thing as well as try to prevent it from getting worse (wishful thinking probably). I do have 2 questions for anyone out there who might be able to answer them.
First question is....Is there ANY hope of getting better? Not totally cured, but at least a bit better? I was told that this would only get worse and that when the pain finally got so bad that I couldn't take it anymore there was surgery, but that it was not a very good surgery and probably wouldn't be of much help. Didn't really give me much hope for my future.

My second question is...does anyone know of a specialist in my area. I live in Kitchener, Ontario Canada, and can easily get to places like London (the one in Ontario...of course), Hamilton, Toronto etc..

I would dearly appreciate any opinions anyone might have...and perhaps a little hope.

Thanks,
Jane

 
Old 09-01-2003, 07:35 PM   #2
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crystalll HB User
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Hi Jane,

Check out the post "Marlene & Crystal - questions about Dr. R."
Firstly, yes, there is hope for getting better. And secondly, Dr. Rondeau is a short drive for you, just down the 401 to London!
Are you currently undergoing any treatment for TMJD? How were you diagnosed?

Crystal


 
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Old 09-01-2003, 07:36 PM   #3
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Marlene HB UserMarlene HB UserMarlene HB UserMarlene HB User
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Hi Jane & Welcome!

Yes, there is hope! I am a TMJ "survivor", after undergoing successful splint therapy and orthodontic case finishing. I saw Dr. Brock Rondeau in London. I highly recommend him (of course I'm biased - LOL!). I believe there's also a Dr. Rawson (?) in London, and there's a Dr. Stewart Sigesmund located in Toronto.

Marlene

 
Old 09-02-2003, 01:25 AM   #4
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Hi Jane,

I'm sorry to hear about your increasing pain & problems. I am glad you found our board. I'm glad that you're near Marlene & Crystal and they can give you information about where to go. They both are very experienced with TMJD problems and treatment.

There are many members here who can give you information, help and hope.

My story is long (about 25 years worth) so I won't repeat it. I did go the surgical route about 16 years ago, had 7 and ended up in an incredible mess.

About 8 months ago, I went into a Splint Therapy, specifically designed for my condition and immediately started to get better. (Marlene & Crystal's posts, plus others, was my inspiration to try Splint Therapy again, even though I had been told by TMJ Specialists and Surgeons a "Splint" could not possibly help me.)

They were wrong. I may not ever be completely cured (probably due to the surgical damage) but I am very close. You don't have to "learn to live" with this agony.

I am living normal again for the first time in about 25 years. I am pain free the majority of the time and nearly all TMJD symtoms are gone.

They did tell you the truth about surgery. For most people, it only makes the symtoms and problems worse and you have the added problems many times, of surgical damage.

There is hope. You can get a "LOT BETTER" with the proper therapy. I was hopeless when I came here. Now, I am so much better and very grateful to these people for showing me the many "Doctors" & "Surgeons" I had seen, were wrong.

Cymy Sue


[This message has been edited by Cymy Sue (edited 09-02-2003).]

 
Old 09-02-2003, 08:31 AM   #5
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Join Date: Jul 2003
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saaraah HB User
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mom2bs - i, too, live in kitchener! hello

ive been dealing with severe TMJD problems for the past 3.5 years, and im 21.. soon to be 22 on the 9th. heh. ive gone thru countless treatments, medications, therapies, etc, but i have never gotten surgery even tho it's been suggested to me numerous times.

anyway, currently, im seeing a dentist, dr. rondeau, in london. ive only been to a consultation so far, but on thursday, ive got a 2nd appointment. a couple of people on this boards have also visited him.

im currently seeing a good osteopath and massage therapist, too, in waterloo.. if you'd like me to give you their names, i'd be happy to do so.

are you currently getting any treatments?

take care and welcome

- saaraah.

[This message has been edited by saaraah (edited 09-02-2003).]

 
Old 09-02-2003, 09:23 AM   #6
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Hi Saaraah:

I'm considering Dr. Rondeau. Could you please tell me what happened at the consultation, how long an appt it was and the cost. Did you see Dr. Rondeau, or his assistant?

Take care,
Arleen
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Arleen

 
Old 09-02-2003, 09:54 AM   #7
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mom2ebs HB User
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Hi again,

Thank you so so much everyone for responding to my post! I honestly didn't realize there was any hope at all. I was led to believe that it would only get worse, and I was surprised by how depressed I was getting having heard that.

I am not undergoing any treatment except vioxx (which I am not sure is actually doing anything) and a drug called clonazapam (I think) which I take occasionally at night, but again, I don't actually think that is helping either. They were given to me by my family physician who is very sympathetic but not very helpful.

I had an MRI and an x-ray (ordered by a local Maxillio-something-or-other) which is how I know that my discs are "crumpled up and swollen and probably at times bleeding" behind my joint and so I am bone-on-bone most of the time. My mandibles are not degenerating, but are sort of pointy and therefore not able to keep the discs in place.

This is just what I have been told by the one dr I saw here, but he did not seem to want to see me again and left me on my own. I am definately going to call Dr. Rondeau this afternoon. I am assuming that OHIP does not cover any of this, am I right?

Thanks again for the info, and Saaraah, Crystal and Marlene I would love to hear of any other support you may have found locally. I am starting to feel as though perhaps I am not totally alone!

Thanks again,
Jane

 
Old 09-02-2003, 12:39 PM   #8
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mom2ebs - no, OHIP does not cover treatment from dr. rondeau, but from what ive heard, his office is willing to set up a payment plan in case you cant afford a lump sum.

i, too, have been told numerous times that there's nothing else that can be done for me. each time, tho, i have found another treatment that i can go thru.. and have done so. it really is up to the patient to push for treatment - it helps soooo much to be thoroughly educated about your symptoms and problem.

good luck with dr. rondeau... and wish me luck, too!

- saaraah.

 
Old 09-02-2003, 02:05 PM   #9
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mom2ebs HB User
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Thanks Saaraah,

I just called Dr. Rondeau and I have an appointment with him on Sept 11 at 9am. Thanks for your encouragement. I have a feeling I am getting my hopes up, but a little bit of hope goes a long way! I will keep you posted, and of course Good Luck to you too!

Jane

p.s. We have a dental plan with my husband's work. It usually covers about 80% of regular dental work. I wonder if it will cover ANY of the TMJ stuff? Do you know?

 
Old 09-03-2003, 10:54 PM   #10
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Jamie HB User
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I was never aware of Dr. Rondeau..

I ended up seeing Dr. Rawson, and so far so good.

He has a lot of TMJD patients and i am being fitted for my "orthotic" tomorrow.

However, my diagnosis was based on X-RAYS not an MRI and I have recently had my MRI done.. I am not getting the orthotic on until the MRI results are viewed and a diagnosis confirmed.

I still think my ear problems are nerve damage related, due to concerts and natural abuse of my ears over my 23 years on the planet...

However, I have to many "things" that point to TMJ... so...
__________________
The search for a diagnosis is long and painful...

 
Old 09-04-2003, 07:47 AM   #11
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crystalll HB User
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Hi Jane,

Your husband's plan should cover a lot of the diagnostic tests as they fall under dental. As far as TMJD treatment though, a lot of plans won't cover it. As a matter of fact, they actually exclude it. You may want to read through his plan to find out what it covers.

Crystal

 
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