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TMJ Disorder -TemporoMandibular Joint Message Board
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Old 09-08-2003, 05:12 PM   #1
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Talking Cymy Sue

Hi Cymy Sue, its me Kaamom, I was just reading one of the posts about tmj surgery, and you were waiting for a reply from me about abdominal fat graphing.Im so sorry if I didnt reply back to you, I could swear I did, but anyways I appoligise. Well October 21 is my surgery date and yes he is doing the fat graphs on me. The doctor im seeing is in Broolkine, Mass, his name is Dr. Willie Stevens, He comes highly recommended by my insurance companny. He has had alot of possitive feedback from his surgeries and has had much succes.Im nervouse about what to expect Post -Op, can you please tell me even if its bad, I really want to know what to expect. Thanks and again im sorry for not responding to you, Kaamom

 
Old 09-09-2003, 01:46 AM   #2
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Hi kaamom,

I bumped up Staize's "I'm having TMJ Surgery" Topic. It's a long thread, but in my last reply, I did give the details of this Surgery and what to expect.

Autogenous grafts did not work for me, as promised.
They held up almost 2 years and then started to fail.
I ended up with a discectomy. I was told that these types of disc replacements do not hold up and many Surgeons do not do them anymore.

When you and Staize both joined the forum and made posts regarding fat grafts, I had hoped there "was" something new or a new procedure. I have done a lot of research and do not find anything new or different.

The only new information I can find regarding fat of dermal grafts is that some surgeons are using fat along with metal implants and total prothesis to help with healing and the body getting use to the foreign material.

I'm sorry I can not give you more encouragement and we all are different. However, in the last 10-15 years there have been enough case histories and failures with these procedures for many Surgeons to stop doing them. For me, 2-5 years is not worth going through this surgery. If you are being told that fat or dermal grafts (alone) is a new procedure for disc replacement, please check it out for yourself.

I do wish there was someone else involved in this Forum who could give you another perspective on the surgery. I don't know if this means that others have had this done and it worked or if what I was told in 1997, "This doesn't work and we don't do them anymore, is the case."

It does seem to me that with so many of our members suffering with disc problems all over the country, someone else would have had this done or at least it would have been offered as an option. Maybe it has been suggested to someone else and they haven't posted this information. We could ask. I would be very interested to know, if anyone else in our group has been offered this surgery in the last few years, and why they didn't go through with it.

I do hope your surgery goes well and the grafts do hold up for you.

Cymy Sue



[This message has been edited by Cymy Sue (edited 09-09-2003).]

 
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Old 09-10-2003, 06:11 AM   #3
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Hi Cymy Sue, I hope it does work because what other alternative do I have. Since the disc is so stuck and he says it looks like its rolled up or damaged, (He wont know until he is in there), what else can I do, is there any other proceedure that could be done or should I just live like this, I really dont know. The only thing that is keeping me going is that he comes highly recommended by so many people, so I feel better about having it done. As for it working, I dont know but I gues im going to find out. Thanks for your concern, Kaamom

 
Old 09-10-2003, 06:47 AM   #4
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Hello Kaamom-
Please forgive me for stepping into your post, but after reading Cymy Sue's experience.
Kaamom, have you requested from your surgeon to speak with patients that are post surgey by 5 years? I do not know you Kaamom, but this is like a friend to friend here, please, please, please ask for this.
I am being successfully treated with an orthotic (splint). My problem: Displaced discs, the condyles are flattened,(worn down. I had severe pain, I had not ringing but screaming in my ears, I had shortness of breath, terrible vertigo/dizzeness and nausa. Headaches beyond belief. Eye pain oh my gosh. Muscles so messed, the muscle on my right jaw between the ear and lip has atryphed. I would get numbness that would run down my jaw line, to my lips, I would not know that I had drool on my face. All this is gone Kaamom, and this just with the stablizing splint. I am getting ready to go out of my stablizing splint and into a repositional splint, which will move my jaw forward, about 5mm. I also have a terrible overbite.
I am seeing neuromusuclar (NM) dentist Kaamom, BUT he is far more then a NM dentist, he has education in many ways of helping the TMD patient. It is just that NM is the "best" way to describe him. He is non-surgical, non-drug and he has saved my life.
The only side effect of TMD I have right now is that I am exhausted, when I wake up it takes all of me to get out of bed. This will end with my new splints. It will take time but hopefully it will end soon, I am tired of being tired.
I am sorry to step into your topic kaamom, but I am so concerned. I realize that each approach to treating TMD is different for each patient, but if you have had doubts about conservatitve treatment, I am a success story to date.
Take care
Diane

 
Old 09-10-2003, 08:00 AM   #5
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Cymy Sue HB User
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kaamom,

Disc do become so deteriorated or damaged, they have to be removed. I have heard others say their's are damaged, dislocated, etc. and they are able to live with it. I was not. Mine caused incredible pain and damage to the surrounding bone.

In 1992, they were using all types of materials for grafts and told me if by chance in the future, my replacements failed, they could do it again.

They started to deteriorate after 2 years. I managed to wait until 1997 and when I went back, they told me they were not using any relacement material. Nothing was holding up. They were doing Discectomies with no replacements and this seemed to work better. You can find information regarding this being a better solution.

I can not advise you on what to do. I had the discectomy 6 years ago and it's not easy.

The only advice I could give you is to find out everything you can about this surgery and how long they expect these grafts to work. Ask if a discectomy without replacements would be a better choice.

My experience was, I had the replacements, did well for 2 years, was in incredible pain again and had to have them removed.

I could have had one surgery and be where I am now or possibly better off. Everytime they go in, you're at risk for complications and further damage.

I wish you the best with whatever you decide to do,
Cymy Sue

 
Old 11-26-2003, 07:15 PM   #6
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DianeTMJ HB User
Re: Cymy Sue

Bump up for Tia

 
Old 11-27-2003, 05:21 PM   #7
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Re: Cymy Sue

hi Cymy Sue, its me kaamom again. I just wanted to update you on whats been going on with me. Well I didnt have the surgery after all and I decided to go see a TMJ specialist and I finally got to see him last week. He said I dont need surgery, not yet any ways, he is going to try a flat plained splint on my lower teeth first, he made an impression of my teeth and is going to call me when it is ready. I am also waiting to see if insurance will pick up some of the cost, its going to cost $800.
Did the splint work for you. How was it to talk ,eat and sleep with. Sorry for all the questions. Can you please reply and let me know how you are doing now, HOW ARE YOU DOING BY THE WAY? Well Happy Thanksging to you, Kaamom

 
Old 11-28-2003, 02:48 PM   #8
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Re: Cymy Sue

Hi kaamom,

My splint is a bottom fit, very thin, flat type. I'm doing very well. Thank you for asking. The splint I'm in now is the only thing that has ever helped me and I have almost no symtoms now.
I have no trouble talking or sleeping with it in. Due to it being so thin, I do not eat with it in. (It might break) I have, in the past, had splints that I had to leave in to eat and you can get used to it.

I wish you the best and hope this splint therapy will work for you,
Cymy sue

 
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