Hello everyone -
After the post on someone having success with the Energex System, I thought I would do some checking. I found the company and called them. They were approved by the FDA in 2001. They currently have dentists/doctors in the following states:
Ca, Or, Wa, Tx, Az, NM, Fl, NY, NJ, KS, MO, PA, Ma, WI and in Canada.
It is important to understand that this is of course not a "cure". However, it does provide relief from the pain of TMD.
It works on radio frequency and stimulates muscles, providing blood flow to the TMJ area. The patient is given a 3 minute treatment, every other day for 2 weeks. I spoke with the product manager and he said in most cases this treatment provides sustaind relief from pain, spasam reduction, anywhere from 2 months to 12 months. I have requested information about ringing in the ears and vertigo to see if will with that as well.
For me it is kind of late, I have had so much relief from my orthoic's, I do not need this treatment, but boy, there sure are alot of people on this board that need relief bad. Now the important question of course, are there any on the board that have had success with this treatment? I am currently reading the clinical study to look at their "numbers" so to speak, but boy, there is nothing better then words of experience you know? If I find any cool information from their clinical study I will post it. Once I find out about what other symptoms this treatment could help with, I will post that as well.
What I found interesting was that the gentleman I spoke with was very quick to state this is not a cure, but a source of potential short term, long term relief for the TMD. As I clearly understand in my own life, stablizing is cool by me, I did not go into my treatment seeking a cure, cleary understanding that what I have is chronic, but knew that there had to be a way being stablized and symptoms relieved. I am real curious in knowing if this might be a shorter avenue to become stablized( pain free ) so that "phase II" can begin?????? hmmmm, much to think about here huh? Thank you ont-TMJ for sharing your sisters news. Do keep us posted on how she does over the few weeks.
Sarrah, let us know how your treatment goes as well
Okay, here is some info from the clinical study on the Energex system.
There were 40 patients tested at Tufts University in 2001.
20 given the actual treatment, 20 given a placebo treatment
63.33% improvement in reported pain, the placebo group had a 18.82% improvement in reported pain.
(Pretreatment pain ranged from 4.0 to 9.0 on a scale of 0-10).
22% increased in mouth opening measurement.
3.45% incresed in mouth opening measurement with the placebo group.
59.31% INcrease in right lateral jaw movement
7.71% increase in right lateral jaw movement in placebo group.
50.3% INcrease in left lateral jaw motion.
6.77% Increase in left lateral jaw motion, placebo group.
You know the treatment costs are rather inexpensive as well. I think I saw $40 a treatment or $240.00 for all. But the BIG QUESTION, does it really, really help.
Anyone that is post treatment, let us know what you think.
I have not gotten the answer to my questions yet about the ringing in the ear, vertigo, or any other symptoms it helps with.
Once again you have gone out of your way to help our cause, you are more of a pioneer in the field of TMJ than 1/2 the specalists out there. Thank you for passing on this info, Im going to look into this.
Good morning MDLA & Cheryl -
It certainly sounds like potentially some help in regard to getting a TMD patient from pain to stablized, then begin thinking about phase 2. I keep thinking about the pros and cons to it. When or if I hear back from Energex about if the system helps in relieving any other symptom, I will post that as well.
MDLA - Thank you MDLA,I just hate the fact that there are sooo many of us out here suffering, seeking help and having no where to turn. It is almost as if we have to be test ginnie pigs to find out what happens, if it works or not because it is difficult to find treatments that work. If I was not symptom free, I would go try this out, geez, just to find out if it works or not. I suppose I could take my orthotics out, then go give it a try, but I do not want to go back to that place.
I just wonder about this product, I have concerns about it giving people a "false sense of security". Thinking their TMD is gone, I wonder about those using both splint therp and this product and not being able to know if the splint is adjusted correctly, if feeling better, is it the splint or is it this treatment? Lots of questions.... I guess what urks me is, if a dentist/dr treating TMJ, truly, truly, truly cared about their patients, how come they do not find this information? How come they are not researching to see what is new out there?????
They get STUCK in their one little train of thought and can not look beyond their little box, that is why! Oh MDLA, here I go again, I am sorry, I just hate that there are so many people in pain, I don't wany anyone to be where I was at back in March. It was such a dark, lonely place. So I will keep looking, keep posting, just because I am feeling better doesn't mean I can just walk away from those still seeking help, "education is a journey, not a destination". ....which I certainly think many dentists feel when it comes to TMD education... it is a destination... NOT.
Okay, I could go on forever here, once again sorry for the rattling :0)
I hope everyone has a painfree, symptom free weekend.
You are so right on. It amazes me that at the hospital clinic "Pain Center" that claims to have one of the "pioneers" of TMJ on its staff how little they know about TMJd. Literally, I went to them for over a year. When the ear pain, dizziness thing came about and I started looking like a freak at visits (crying, messy hair, wearing the same clothes and barely getting there due to dizziness) they didn't even tell me it was related to the TMJ. They told me I needed to see a brain and ear specalist and prescribed a dozen meds. This from a center who's brochure reads "Conservative Care Specalists". I later found out this specalist teaches courses at dental schools w. subjects like, "Finding the right cocktail for your patients" and "Detoxing Patients". Man! Its very bothersome that there are tons of these facalities around the country. I can't fault them for the approach but I will fault them for not knowing the symptoms and the extent to which they can take over a life.
Much like you in April, May and June I hit rock bottom I was praying I wouldnt wake up in the morning and have to struggle through another day of roaring ears, pain and the inability to concentrate on anything. Even taking a shower was hard.
Anyway Im inspired by you, I wrote a short letter to Pfizer and mailed it today. I think drug companies have a social responsibility to educate docs and the public about certain medical issues. If they can pour millions into creating awareness for the medical need for Viagra they could do the same for TMJd patients on some of their drugs (ie Bextra). I will send similar letters this week to Glaxokline and others. They also have tremendous power in influencing insurance company policies and research money. TMJd has 10-million patients. I have no idea how many are as serious as those on this board but as we well know there is a lot of money to be made from this market and its a good investment. Im not pushing drugs, but Ill take public awareness and reseach dollars where ever they can come from.
My TMJ specialist told me that he had called Tufts and talked to them about a machine for treatment of TMJ pain. He didn't tell me the name of it, but what you wrote rings a bell. Bet it was the Energex. I will ask him when I go in about 10 days. He told me it was quite an expensive machine, so he hasn't purchased one yet. He did say that it seemed very promising. I am really anxious to hear more about it. If anyone has had the treatments and would care to share with us whether it helps or not, I would be grateful.
What about a machiene called OssaTron (by HealthTronics). I read in Parade this was just approved to treat tennis elbow - it works by using ultrasonic waves to regenerate healthy tissue to replace the inflamed or scarred tendons (they also use it on heels). I wonder if this is something that might be useful for TMJ. I am going to email the company and at least put the idea in some heads.
Please keep us informed as to what you all hear. I am currently in splint therapy since surgery in March. I think I could feel a lot better than I currently do at this time. I still have full ears, loud noises really bother me, muscle spasm and such. I am interested in finding anything that will help me or anyone out.
I wanted to give everyone an update.
I received a pamphlet of info on this Energex System today. It does NOT state anything about any other system relief other then what I outlined in the first post. :0( I am still waiting to hear back via email about if there are any other symptoms it "might" help with, but nothing yet. Waaaaaa.
MDLA, are you going to give it a try? How are you doing these days?
take care all
Yes I am still going to give Energex a try, Im going to try to get in in the next two weeks if my neighboor can drive me down there. I was just a little bummed that the doctor that does Energex closer to me had an unknowledgable staff and pushy sales on extra exrays I dont need. But I am still open to anything.
Thanks for asking about my status. Since the neuro vists and splint I don't crack and pop as much, and I can actually eat things like eggs. Before I simply could not chew anything at all as my teeth would not touch. The few times I tired I ended up with lock jaw, either going to the ER or lying on my floor crying trying to pry it open. Im frustrated with the limited opening I have with the splint I have started to aviod people all the time as it really hurts to talk and kills to smile or laugh, but truth be told Ill take it over the way I was 3 months ago, wanting to die with the ear pressue, throwing up from the vertigo - literally I had to replace my shower curtain because I threw up all over it a few times. If I had not found this site and not read your stories I would never have found Neuro-muscual dentistry.
How is your progress coming? I have a question, you have 2 splints right? Now does your neuro say you will ever come out of them and there will be a "Phase 2" mine says in about 6 months to a year I will need to do phase 2, either braces or crowns I have no vanity issues anymore but braces scare me, having to open my mouth that far for adjustments every month, the pain etc.
Also, how do you manage sleeping w. TMJ? I just began to detox from ambein and I havent slept in 4 days. I cant break the TMJ-pain-sleep-anxieny cycle.
Good morning MDLA.
Boy, isn't that typical sadly? Oh yes, we can help you but you need to spend your hard earned money on x-rays, tests, so we can get as much money out of you as possible! geez. I am glad to hear though that at least the office you called was at least kind and informed about the treatment.
What is your dentist saying about your splint? Have they done any further x-rays since getting the splint? Haven't you had the splint for awhile now? Oh gosh, the vertigo is such a bad symptom, but MDLA, the locking jaw, with the splint in your mouth, oh I wish I could give you hug. I lost a few friends over my inability to talk, I guess they just did not understand. I am so glad to hear that you are getting improvements, I just wish all of them would go away for you. Is the tens still helping?
Okay, my phase 2. MDLA, because this went on for so long, years upon years, no one could ever get it that I had TMD, I have extreme gum and bone loss. I can not have restortative work, nor braces, we do not know how long my teeth will last for. So, in a couple of months, they will most likely put a permanent splint on my teeth, so as to not cause anger gums or bone.
If they would braces on you, you would be stablized so hopefully that would not be an issue. When they do though, just remind whoever is working on your braces that you need a break every few minutes so as to not stress your jaw. When I get my teeth cleaned, they stop every 5-10 minutes, give me minute break and massage my face. You will always have to remind them, each visit, I need a break every few minutes please.
Since I have become more stablized, sleeping is much better. I was using valium, but my dentist does not believe in drug therp in the treatment of TMD. At first it was hard. What I have used is Calms Forte a natural sleep aid that you can find in health food stores. Also try magneisum, I need to find my old post about that, as I listed the brand and everthing, it is a natural muscle relaxer and helps with sleeping. But you need to be careful with it as if you take too much you can get an upset GI.
Hang in there, things are slowly improving for you. I am real curious about the Energex and how it works for you so keep us all informed on how it goes.