Trileptal and Nursing - TMJ Disorder -TemporoMandibular Joint Message Board

Tondalea · 11-20-2003, 10:55 AM

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Hi, I am new to this board, just found it today. I was diagnosed with Trigeminal Neuralgia about 4 years ago. I have been on Tegretol (hated it), Neurontin and Trileptal. I got pg last year and gave birth to a little girl in July. When I found out that I was pregnant, I was on Trileptal and stopped taking it. I have been fortunate enough to be pain free until yesterday. I thought I was going to die. I took two trileptal and the pain calmed down a little. I was taking 2 300 mg pills twice a day. I took one this morning and plan to take one tonight. I am still in a little pain, but I know that it takes a while for the meds to get into my system and fully work.

Okay, here is the problem. I am currently breastfeading and would like to continue until my daughter is a year. She is 4 1/2 months now. Does anyone know where I can get info on Trileptal or Neurotin and breastfeeding. I called my OB and she said to call my pediatrician. I have left a message with my pediatrician and my General Practicioner who specializes in Neurology, but I havent gotten a phone call back yet.

I am so depressed now because I think that I may have to stop nursing and things were going so well. My daughter takes formula and a bottle during the day, but she doesnt like to take a bottle from me. I'm just wondering that if I can't take it if I will have to abruptly stop nursing or if I will have some time. It just seems so unfair.

Thanks for any help that you can give me.

Cymy Sue · 11-22-2003, 08:16 AM

Hi Tondalea & Welcome,

I'm a Granny, but your post caught my eye because my niece has a month old baby and is nursing. I checked several sources that I use due to family members, including myself, having drug and medication sensitivities. All of these sources say about the same thing about these 2 drugs:

Neurontin
It is not known if gabapentin is excreted in human milk and the effect on the nursing infant is unknown. However, because many drugs are excreted in human milk, gabapentin should be used in women who are nursing only if the benefits clearly outweigh the risks.

Trileptal
Although it's not known for sure, there is good reason to believe that Trileptal can cause birth defects. If you are pregnant or are planning to become pregnant, tell your doctor immediately. Trileptal should be used during pregnancy only if the potential benefits justify the risk.

Trileptal appears in breast milk and could cause serious side effects in a nursing infant. Check with your doctor. You'll probably need to make a choice between breast feeding and continuing your Trileptal therapy.

Cymy Sue

Michelle W · 11-23-2003, 10:33 PM

Hi Tondalea,

I was wondering if you could tell me how you got trigeminal neuralgia? I was wondering if it was due to a surgery or injury? I am having symptoms similar to atypical trigmenial neuralgia and I am looking for infomation regarding it.

Thanks

Tondalea · 11-26-2003, 07:10 AM

Michelle,

I really dont know. It did start after a dental visit, so I would have to say that didnt. I was in so much pain yesterday that I just sat up and cried. The trileptal isnt working. I have to call my neurologist in a little so that she can call something else in for me. I have plans for this weekend and I dont want to be miserable. One thing I can say is that I wont be eating a lot.

Tondalea · 11-26-2003, 07:13 AM

Thanks Sue,

I spoke to two different pediatricians who seem to think it's okay for me to take it, so that's what I've been doing. I think it would be traumatic to my daughter if I were to abruptly stop nursing. I may have to anyway because the trileptal is not working. I am still in pain. I guess not as much as I would be without it, but I am uncomfortable.