I have severely tight muscles in my scalp particularly. It is tight on top of my head, around my temples, in the back of my head, and also through my neck and shoulders. It is VERY VERY severe. I am not even close to being able to work, and I'm not functioning well at home either. I am in agony with this.
I am wondering if anybody else has severe tightness in the scalp due to TMJ. I wonder if it is definitely TMJ or not because I developed the tight muscles after an abrupt withdrawal from Klonopin. So I don't know if it's the withdrawal or the TMJ that is perpetuating the tightness.
I asked my dentist about this, and he just shrugged. Whatever!
I was told many years ago that the temporals spasming can cause the scalp tightness and also pain. The temporals are large muscles compared to many of the others and when they stay in spasm, many other muscles will start to tighten and spasm, too.
It could be something else, but I've had this problem for years and it was caused by the TMJD.
Massage Therapy was the only way I found to relieve it.
If you don't mind me saying, I don't think a shrug from your Doctor was very professional or caring. This type of spasm is very real and very painful.
I don't know what you are to do. But you are surrounded by caring people who are here for you. The only thing I can think of is an aggressive massage therapy program...something that can continue to break up your spasms on a regular basis, with the goal that one day the muscle will "remember" the non-spasm way more than the spasm way. Not very scientific, but that type of training makes sense to me.
I don't know what I can say that others haven't (I too think tmj could cause this muscle tightness), but I wanted to offer my sympathy. Looney, I remember you mentioned that hot showers give some temporary relief, could you maybe try some kind of water based therapy on a regular basis? I had a friend with a knee injury who found this kind of therapy helped a lot during the recovery period. I wish we could control our bodies better, I think of my muscles spasming and making things worse and I want to be able to tell them to stop, the body can be so efficient and self healing yet it seems to be able to be inadvertantly self destructive too. I do very much hope you find some relief.