Hello all,
I know I haven't been posting much lately but I have been reading when I can. And I finally have some positive news about possibly getting rid of this giant cell foreign body reaction (after 21 years). I'm starting low dose radiation therapy next week. It should kill the remaining giant cells, preventing them from causing further damage--more bone growth, nerve damage, even holes in the brain. Because it works well for malignant cells, and these giant cells seem to mimic a malignant cell in many ways, the docs believe that this will work. It won't reverse any damage already present--probably won't help the pain much either. But to know that there won't be further damage is such a relief that I'm willing to take the risks that the radiation presents. (Could turn the cells malignant-5% chance; could take out the rest of the vision in my left eye-probably will. But I still have one good eye.)
I really am relieved. And a little scared. But it beats years of surgery to debride tumors, scar tissue, and biopsies. So wish me luck. I'll let you know how I do.
Stay well, everyone.
Donna
Finally, a hopeful treatment! 
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