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TMJ Disorder -TemporoMandibular Joint Message Board
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Old 11-28-2003, 11:29 AM   #1
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Navy1990 HB User
Fibromyalgia

Do any of you have this?

A few years back my chiropractor checked me out and said I had Fibromyalgia. I
never really gave it a thought, it was just a way of life. Now I'm wondering if the Fibro doesn't have something to do with the tmj. I just started reading and found out that at least a third of Fibro people have tmj. When the doctors can't seem to find a cause, it could just be Fibromyalgia. So, now I have to find out if my muscle problems are from tmj, Fibromyalgia, or lack of hormones. I shudder at the thought of going through a bunch of tests again. But, whatever it takes to feel good again.

Navy

 
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Old 11-28-2003, 12:06 PM   #2
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saaraah HB User
Re: Fibromyalgia

i, too, have heard that a lot of patients with fibromyalgia have TMJD. it'd be interested to see if you got your TMJD symptoms managed, if the fibro problems would be helped, too.

good luck.

- saaraah.

 
Old 11-28-2003, 12:19 PM   #3
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Navy1990 HB User
Re: Fibromyalgia

Quote:
Originally Posted by saaraah
i, too, have heard that a lot of patients with fibromyalgia have TMJD. it'd be interested to see if you got your TMJD symptoms managed, if the fibro problems would be helped, too.

good luck.

- saaraah.

Hi Saaraah,

How are you doing?

Right now I'm feeling like a person at a 3 way intersection ...Fibro, TMJ, Hormones ....I don't know what's causing my body to be so whacked out. My doctor thinks I need am exam ....I had everything under the sun done last Spring ...so, I don't know what it could be. It's probably not helping my body not having any estrogen in it.

Hey, I read that you are down to a little crack when you are opening, instead of a loud pop. That should be a good thing. Did you ever ask the doctor the question you said you'd ask about the totally displaced disc now making noise? Did he say it's reducing now? I sure hope so. I still have some joint noise, but, my doctor is not concerned about that right now, it's too early in the splint treatment. He's more concerned about getting me out of pain. He said that he doesn't want to swim up stream in my treatment. In other words, trigger point injections will not help if I have medical problems contributing to the muscle problems. I know I can't take estrogen, but, I need something. My muscles are really dried out apparently, and I need lots of water to flush the toxins out. Fibromyalgia ...oh my ..I just visited that board....my sister has Fibromyalgia, and she has had to alter her life around it. Just when I thought it was primarily tmj and neck problems, life throws yet another curve.

Take care Saaraah!

Navy1990

 
Old 11-28-2003, 03:35 PM   #4
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Cymy Sue HB User
Re: Fibromyalgia

Many times people with TMJD are diagnosed with Fibro and it's actually muscle problems directly related to TMJD. Most Doctors don't realize how many muscles are affected and the mess we get in to with the TMJ problems.
I've been doagnosed with Fibro by several Doctors over the last 15 years or so and I don't have it. I'll bump a post up for you by about SCM Syndrome. It's very interesting regarding this muscle group. Many other muscles are also affected.

If you've had a "complete" hysterectomy (+oopherectomy) you absolutely need to be on HRT. According to your age, you may need it anyway. HRT is for many reasons, the most important being bone & heart health if your body is not making any at all. Your Central Nervous System also suffers, not to mention the obvious symtoms that make you feel so bad.

There is a wonderful bio-identical natural HRT compounded product that works as well or better than the synthetics and due to being extracted from plants, does not carry the same dangers as the synthetics.

If you had your ovaries removed and the GYN did not put you on HRT right away, you are risk for major bone loss. It can happen very quickly.


Cymy Sue

Last edited by Cymy Sue; 11-28-2003 at 03:36 PM.

 
Old 11-28-2003, 04:25 PM   #5
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Navy1990 HB User
Re: Fibromyalgia

Quote:
Originally Posted by Cymy Sue
Many times people with TMJD are diagnosed with Fibro and it's actually muscle problems directly related to TMJD. Most Doctors don't realize how many muscles are affected and the mess we get in to with the TMJ problems.
I've been doagnosed with Fibro by several Doctors over the last 15 years or so and I don't have it. I'll bump a post up for you by about SCM Syndrome. It's very interesting regarding this muscle group. Many other muscles are also affected.

If you've had a "complete" hysterectomy (+oopherectomy) you absolutely need to be on HRT. According to your age, you may need it anyway. HRT is for many reasons, the most important being bone & heart health if your body is not making any at all. Your Central Nervous System also suffers, not to mention the obvious symtoms that make you feel so bad.

There is a wonderful bio-identical natural HRT compounded product that works as well or better than the synthetics and due to being extracted from plants, does not carry the same dangers as the synthetics.

If you had your ovaries removed and the GYN did not put you on HRT right away, you are risk for major bone loss. It can happen very quickly.


Cymy Sue
Hi Cymy Sue,

Yes, my GYN wanted to put me on estrogen/HRT right after the complete hysterectomy (ovaries were removed too)..but, I can't because of a family history. My one sister has a blood disorder that she throws clots (lupus anticoagulant?). The other sister had a 10 pound tumor that resulted in a complete hysterectomy and was put on estorgen. Within 10 days she threw 3 blood clots in her lungs, she was put in ICU, her kidneys and other organs were shutting down and she came very close to no longer being with us. Then another sister went on the natural HRT and threw a clot in a major vein and wound up in the hospital. My GYN was actually hesitant to operate on me and he has been in practice for probably 35 or more years. I had a 9 pound tumor and needed surgery. A hemotologist was consulted and because of not knowing whether I carried the same risks as my sisters, they decided to put me on blood thinners straight out of surgery. I've also had lumps removed from my breasts and we have a history of that in my family too. So, my doctors at the breast center said absolutely no estrogen for me. So, I have been on nothing for 18 months. I had a bone density pre-test about 2 months ago and I have the bones of a twenty year old. I was told that calcium, exercise and proper diet were enough and I can have the pre-test every year and keep an eye on things. My insurance company refused to give me a complete bone density test because they said it was not a medical necessity, because the pre-test was so good. They turned down my appeal. You would think because of the hysterectomy, my age, and the fact that my sister has the early stages of osteoporosis in her neck (probably from the thyroid medicine she takes), that they would approve the test. My doctor said we will wait and try to get it approved at my next physical in the Spring. So, Cymy Sue, I am at a loss for what to take. My TMJ doctor wants me to go get my endocrine sysytem checked at a doctor he suggested. Also, I had a complete thyroid examination, even the tests in the hospital, and everything was normal. I wish I could take something without worrying about getting sick like my sisters did.

Navy1990

 
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