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TMJ Disorder -TemporoMandibular Joint Message Board
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Old 01-15-2004, 03:22 PM   #1
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flow24er HB User
NTI and incomplete diagnosis

Hi all,

I am just back from seeing a TMJ specialist. He is a very nice man and listened to what I had to say and I had done my research so I was really able to question him properly.

He told me that I probably did have an internal derangement in my left TMJ but that a tomogram would cost me $1000 to confirm it. He reckoned that my lower jaw needs to be brought forward a bit but again it would cost loads and he just thought that as I am in no pain whatsoever that I should perhaps go back to get an NTI made for my top teeth to wear at night. However I told him I would get back to him as I have a few reservations about the NTI. I have read that they can give you an open bite, does anyone have experience with the NTI , good or bad ?

I also feel like I have been given an incomplete diagnosis. Is it true that tomograms cost $1000 ? I am not in pain but I am in constant discomfort with the majority of symtoms listed for TMJ apart from the headaches. I also get that my teeth clatter together when I am talking.

To add to my problem I suspect that one of my wisdom teeth is causing a problem with my chewing. It is preventing me from chewing properly or even closing my mouth properly. But the specialist said that he could file this tooth down a bit but could not guarantee that it wouldn't make my problem worse. I didn't feel that he was guiding me in a diagnosis. I felt that I was guiding him !

Does anyone have any thoughts or answers to my questions ?
The fact remaons that I am in some discomfort with this and am worried that it is going to get worse. Think I will need to see another specialist...........god this is so expensive and I don't have a job !

Emma

 
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Old 01-15-2004, 03:59 PM   #2
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saaraah HB User
Re: NTI and incomplete diagnosis

i had a bad experience with an NTI. i wore mine for only 3 weeks, and i developed an openbite, which has not gone away even tho i havent worn the NTI for almost 4 years. it also did not alleviate any of my symptoms when i did wear it. also, if you have displaced discs, a NTI is a bad idea. it's only for people who clench, but dont have displacement.

i have an underdeveloped mandible, and not enough space between the condyle and fossa in my TMJs. right now, im wearing an anterior repositioning splint, which is moving my mandible down and forward. it has helped my symptoms a lot in the past 3.5 months that i've been wearing it. the splint cost $1200 including adjustments each month.

i think that $1000 just for tomograms is outrageous. i got about 9 different xrays including tomos [and a few other diagnostic tests] done for $650 CDN.

good luck and take care,

- saaraah.

 
Old 01-15-2004, 04:04 PM   #3
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Cymy Sue HB User
Re: NTI and incomplete diagnosis

Emma,

I think you're right. Sounds like you were doing the guiding and this person is not very experienced with TMJ problems. Many experienced Dentist can tell if the disc is displaced or displacing by examination. They can feel it or see it when you open and close. If this is suspected then tests are in order to confirm and to see how bad. An MRI is normally used to look at the disc and a Tomogram to look at the entire joint structure. Different Doctors/Dentists prefer different methods. Some like to do both plus panarex X-rays to get a complete picture of your condition.

Filing down teeth many times causes incredible problems. It can be done, but has to be done with extreme precision and a person with a great deal of experience. I would be concerned with his statement of it possibly causing further problems. Most Dentists of Specialist who would do this, would only grind off a very, very, slight amount and would be very confident that it would be helpful.

Many Dentist and others in this field list as TMJ Specialists and they do not have the experience to treat. You have to be very careful.

I don't remember the cost of my last tomogram, it's been several years. I think some other members have had them done recently and could help you with that information.

NTI's are helpful for many people and are the least expensive route in most cases. There are reports of them causing open bites and sometimes they just do not work for some people. I think many times, they're made too thick and this may be some of the problem. Some dentists are making them a little thinner now, than when they were first introduced and this may be better.

I do think another opinion would be a good idea. I know it does get expensive.
If you're not in major pain, maybe you could look around for a while and find someone more quailified to help you, so at least your money will be well spent.

If you live near a teaching hospital, a University-Hospital type complex, you might could go to the Dental School, get the tests you need and the expense would be far less. You wouldn't have to stay with them for treatment if you didn't feel comfortable, but you would have a diagnosis and information to take to someone experienced to help you.

Cymy Sue

Last edited by Cymy Sue; 01-15-2004 at 04:05 PM.

 
Old 01-15-2004, 04:58 PM   #4
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flow24er HB User
Re: NTI and incomplete diagnosis

Thanks CymySue and Saarah,

I did mention to this dentist that I had read that the NTI can cause an open bite but he disputed this fact. Perhaps, as you say CymySue, open bites are caused by the NTI being made too thick. It is so confusing. It would be so fantastic to find a specialist who really knew what he was talking about and to feel confident that u were being treated correctly.

Believe it or not this was a dental school specialist ! I have ruled him out now and will be moving onto my next 'specialist'. The thing for me is that I am not actually in pain which is something I am very grateful for, however the musle tension and sheer exhaustion caused by normal human interaction such as talking and laughing really gets me down however I am going to search for a solution until I am blue in the face!

I have read Shankland's book on TMJ and he sounds really knowledgeable....perhaps I will travel across the US to see him. Does anyone have any experience with him ? R we not allowed to talk about actual doctors on this site ? I think it would be such an excellent resource to be able to look up a list of tmj 'specialists' and view patients' comments on their receieved treatments. Perhaps I should set this site up ! Would it help do you think ?

The thing with my wisdom tooth is that it really does have a sharp pointy bit on one corner that is definately preventing me from closing my mouth properly. My thinking is that I didn't have this tooth for the first twenty years of my life and my jaw was fine so surely if it was shaved down then my mouth might get back to functioning how it should...anyway I will be seeking another opinion.

Saarah thanks for the info on the NTI. R u finding some relief with alternative treatment now ?

CymySue, you are an inspiration to us all and your knowledge on this board is invaluable !

Emma

 
Old 01-15-2004, 05:04 PM   #5
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flow24er HB User
Re: NTI and incomplete diagnosis

Quote:
Originally Posted by saaraah

i have an underdeveloped mandible, and not enough space between the condyle and fossa in my TMJs. right now, im wearing an anterior repositioning splint, which is moving my mandible down and forward. it has helped my symptoms a lot in the past 3.5 months that i've been wearing it. the splint cost $1200 including adjustments each month.
Saaraah I am glad that this splint is helping your symptoms. Is this something that you wear all the time 24/7 ? Is it an irreversible treatment ?

Thanks,
Emma

 
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