I haven't posted here for quite a while, I've been trying to cope with my tmjd, and feeling a little better too, but finally decided to try again going to dentists etc. to seek some effective treatment as I don't just want to 'manage' this illness forever whilst wrapping myself in cotton wool, I so hope, as we all do, to achieve more than that. Anyway, one thing that recently drove me to return to drs again is that I recently had sinutitis for the first time (clear dripping, painful nose, fever, extreme fatigue and achiness - on top of 'normal' tmjd fatigue and achiness!) which I am sure is at least connected to if not caused by muscle spasms and blocked nasal passages due to tmjd (I think main trigger for it is environmental pollution on top of tmjd). Thankfully the sinutitis was acute and only lasted six days, I was so afraid it would be chronic and never go till my tmjd was cured, if ever, and I would have a whole new lot of symptoms and miseries to deal with.
But I was wondering, has anyone else here had sinutitis also? How many suffer not from sinutitis from muscle spasms affecting their nose causing a dripping nose etc? Do air purifiers/ionisers or similar help? Ever since I have had tmjd I have had breathing problems, particularly inside, if I go out into fresh air I can find my nose clears but never for long. I need to go and harrass my neighbours re their use of insecticide because this is compromising my breathing and maybe caused the sinutitis (I have just moved to an new apartment), yet it's awkward too to try to talk to them about it, I keep attempting to make myself do it!
One more thing, the ENT I just saw re my nose said he believes I have some damaged nerves in the nose (I think he said this, he was not very clear and I was too tired that day to ask relevant questions and be insistant) due to tmjd related muscle spasms. Has anyone heard of this? I'm not too bothered as he said they regenerate/heal if the spasms stop, so the problem is to stop the spasming!
Many people have sinus problems due to muscle spasms compressing the tri****nals and accessory nerves. It doesn't always mean you have nerve damage, but the muscle compression does not allow the nerves to send the appropriate signals for correct drainage and function of the sinuses.
Many times, Massage Therapy, will help or even rid you of these types of sinus problems. It did for me.
Interesting question...for me, like the chicken and the egg question. I was aware of sinus problems long before I was aware of TMJ/D problems, but that doesn't mean they weren't there, I had the symptoms.
Hepa filters seems to help if you have allergies to dust, which I do.
I also irrigate with saline, it comes prepackaged so I don't have to worry about getting the correct mix and it burning, ENTsol, but I have chronic sinus problems. Until I started irrigating, I was miserable...I use a portable canister during the day and at night, in the morning, I use a packet in warm distilled water in my waterpik with a special grossan nasal attachment. Sounds drastic, but I was getting infections every 3 months or so and that was post-surgery. This will clear them if they won't drain on their own, at least to some degree. My ENT and my allergist both suggested it.
Last edited by beach_tiglet; 07-14-2004 at 04:49 PM.
Cymy Sue, what kind of massage therapy did you have (forgive me if you have said this before, I'm still assimilating so slowly). I am hoping the sinutitis at least won't return. The insecticide smell worries me more for my cat than me really.
Beach Tiglet, I was thinking about saline solution also, but am clueless about what it really is and what it does. Do you mean if you squirt it into your nose it helps? The chicken and the egg...I began to have a dripping blocked nose exactly at the same time I was worked on by the dentist who gave me bad malocclusion over a year ago. Thinking back I realize I also started with muscle spasms in the jaw then (trembly tired jaw)but I didn't recognize them for what they were, it was months later I was diagnosed with tmjd. Because my nose cleared in fresh air I thought it was an allergy to something in my flat, but now I realize it was just taht I could manage to breathe (still can) in fresher air but in pollution of any kind nowmy nose cannot drain, hence the dripping and blocked sensation.
My dad gets bad hayfever, one year some time (years) ago I thought I was getting it (mildly) and took a remedy from Holland & Barrat (this in the UK) called New Era tissue salts, it is for allergic rhinitis I think, anyway it worked like magic. I ordered some recently to try it now, it would be so nice it if could help for the present though the cause of my nose symptoms are different now. If I can manage to afford it I'm going to try to get some kind of air filter too for inside.
Oh, I'm not having a good day today, stress has brought on spasms and I'm finding it hard to be able to do something stress relieving to replace the negatives.
The saline solution I use works two different ways....the canister just squirts up your nose and comes right back out, cleans out a little bit and helps the cilia in the nose move...I use it during the day if I feel stuffy and at night...it's just a water and salt solution, but pre-mixed so there isn't so much salt that it burns the inside of your nose (I always had trouble measuring the right amount of water and salt, even with measuring devices). The waterpik thingy fills your sinuses with the solution and then you tilt your head to let it drain out...I do this in the morning to clear everything out...it's also water and salt, but you mix it after warming it a little. If you really want to do it, I can elaborate. It's messy, but it works. In the morning and at night, I then can use my allergy inhaler and it's more effective because everything is clear.
I'm sorry you are having a stressful, bad day. Maybe the weekend will go better. I hope so. Dana
Dana, thanks for the support, and helpful information Well, the New Era tissu salts arrived yesterday (after over 24 hrs sneezing and dripping clear liquid nonstop my nose cleared yesterday afternoon then this am was getting stuffed up and sneezey again). I waited to use the New Era salts till today a couple of hours ago when my nose was definitely blocked. Now it is clear! I'm encouraged, I do hope I can thus get by with these, though also the air seems fairly ok today and the neighbours have not sprayed anything yet! I saw a new dentist yesterday also (second visit), he increased the filling height on one molar which has been too low for a long time, giving me contact in that part of my mouth again, doing this tentatively and carefully is something I've wanted to try for a long time as cannot seem to find any one where I live who can make a good splint (though I do believe they exist), I hope I see improvement from this also and it wasn't a stupid thing to do at this stage.
I'm glad to hear the nasal salts helped. I think if the dentist you saw has experience with raising the height of the molar, it will be a good thing..you need contact on molars for support. Does this dentist work with splints?
The Following User Says Thank You to Cymy Sue For This Useful Post: scot12 (04-18-2012)
Isobel, I'm glad the salts worked! I pretty much have to use mine daily for relief. It makes a big difference though. I know what you mean with the molar thing. It seems I'm second-guessing myself a bit these days too. I think you pretty much know your body though, and you've done research and talked to people on here enough to know what's going on. You also trusted this dentist enough to let him do it. Who knows, maybe he does splint work too? I hope you find some relief soon! Dana
Last edited by beach_tiglet; 07-21-2004 at 07:48 AM.
The Following User Says Thank You to beach_tiglet For This Useful Post: scot12 (04-18-2012)
Thanks again Cymy and Dana! To return to the nasal issues, Dana, is it Sterimar spray that you use (oh I wanted to post a link but just realized I can't, however it had a link to some cushion thingies for the back you can use in cars ... does anyone reading this use anything similar - maybe this subject should be a separate post!)? I had that recommended last week by an ENT and will probably get it though I haven't yet. The New Era tissue salts are in the form of little pellets which you take like a homeopathic remedy, putting under tongue and not touching with fingers, they have been a godsend.
The filling the dentist did in a left molar he adjusted in a second appointment, and I feel it is quite good, much more as the natural tooth used to be, the dentist who did it the first time (and it is a big filling) left it so concave the tooth was not achieving contact except if pressed down on, and I felt the sides in danger of cracking. I am glad this dentist was happy to do the filling with resin, another dentist told me he would only do a crown which I truly felt it didn't need, having all four sides intact and strong. Maybe he was afraid to get the shape wrong. But, I asked this recent dentist to do another adjustment, this tmie temporary, on a molar on the other side also too low (possible as this molar has an onlay, this is my bugbear tooth which caused me to go to the dentist who caused my tmjd, itneeded a root canal), this has not been so successful as it means now height is all on the top molar and not on the bottom one in my mouth, complicated to explain but I'm a bit disappointed as although I have contact there now too it is not balanced. It was done as a temporary, reversible, experiment, I suppose I just want to get it right now and be instantly cured The next step is to take a mouth mould to make an alignment model, I was to have this done last week but became a bit ill with an unexpected viral infection so haven't yet. I am a little down again emotionally, my mouth does look straighter (how conscious I am now as we all are of how tiny changes affect not only bite but mouth shape, I am so frustrated when I discuss this with friends, or even the dentist, who don't see this) and I can bite and achieve better contact for the first time in over a year, yet there is so much guess work involved in this and I must confess I don't entirely trust the dentist, then it is delicate balancing between insisting on what I strongly feel is right for me and not letting him do what I just do not want (he thought heightening the canines could help which seems to me nonsense) and allowing him to have some say as 'The Dentist' in what he does. Oh I find it so hard to work to protect any dentist's ego now.
I also had a mishap which seems to have sprained my right joint, the car I was in went over a curb bump when I was talking and actually in the act of moving my jaw, I immediately felt pain and then my SCM muscle swelled up alarmingly fast in both parts in the right side of my neck (the displaced disc side), and I developed within ten mins bad tension and pain in my face, neck and shoulder, and dizziness. This was over a week ago, it has calmed down, but it scared me a lot, and I feel this did some damage rather like that you could do if you bump an already sprained ankle or something causing it to become inflamed again, I hope that will not be anything major, I haven't seen anyone about it. Bother! Now I'm not talking in a car, to be on the safe side!
ps. I just don't know about a splint, I feel I don't want to try another unless it's made by a recomended expert, as the old one truly made me feel terrible for weeks, and didn't do what it was supposed to at all. I shrink from even putting one in now, yet if I could see a Dr Shrankland (sp?) or Robert Uupgaard I would feel more sanguine re my prospects with one. I would certainly love to be able to recapture my disc. I am also wanting to try myofascial pain release, but so far the three doctors I have asked about it don't know anyone who does it.
Last edited by Isobelj; 07-29-2004 at 11:39 PM.
The Following User Says Thank You to Isobelj For This Useful Post: scot12 (04-18-2012)
Oh Isobel, You have certainly had a time of it haven't you. I have had it with trying to protect people's egos. If I don't trust them, I ask questions until I do or I'm done with them. I use ENTsol.
I have trouble in cars and am very careful who I ride with and actually hold my neck while going over bumps...moreso with the neuralgia than the SCM, although I go have trouble with the SCM muscles also. I hope it settles down soon.
I'm currently struggling with my splint therapy as it has aggravated my temporal tendonitis. Apparently we went from soft splint to hard splint not realizing the tendonitis had not healed and it is really flaring up. I use a dentist that is a friend of Dr. Shankland's that Dr. Shankland recommended, and I pretty much trust him...but am very miserable right now. If we could figure out with anesthetics I'm not allergic to so I could get injections in the tendon, that would be nice. A lot of people have done really well on splint therapy though...Cymy Sue happens to be one of them I believe.
I don't get myofascial pain release, I do get massage including massage of the face and TM joint from inside and outside including trigger points and neck, shoulder and back...it has really helped. They even showed me how to massage the SCM and temporal tendon on my own a little bit as these seem to be my problem areas and have been causing headaches as I adjust to the new splint. My dentist is a neuromuscular therapist and has one on staff also. It makes life sooo much easier. I was getting massage before I started getting treatment for the TMJ because my neurologist realized it would help my neck and migraines...but my massage therapist had to retire shortly after starting with this dentist, so I've been going to his therapist.
Dana, thanks again. I've decided to try holding my neck too at the back, when I see a bump in time that is (!), the swelling is still there in my neck. I try sometimes holding onto the side of my jaw in the car, but feel rather foolish and don't think it helps much! I just don't know who to see re therapy, the ENT recommended a chiropractor, then the dentist says he himself sees someone and he would ask re myofascial pain release therapists' existence in the city. I suppose I'll just have to follow the leads till I find someone I feel could help and not make things worse, again like so many of us I fear anyone touching my neck and head so want to feel as sure as poss they will not make anything worse. Another probably foolish thing I did was carry my cat in her carrier on my shoulders for an hour on the 7th (vet visit where I had to wait), my shoulders, head and neck were in tight painful spasm for days afterwards.
What is temporal tendonitis? I probably have this too I'm being lazy asking you, I should go and look it up now. I am sorry you're having a flare up, I actually think of you on my bad days for you seem to have such a busy schedule and not only that but need to interact all day, I admire your ability to keep going immensely and your proactive determined approach towards your own treatment.
I hope you have a nice, and restful, weekend also!
Don't give me too much credit...I've been playing all summer long...it's just the past two weeks that I've slowly been easing myself back into work after about 6 weeks off. That is the nice thing about teaching, you do get a break in the summer to recuperate. I needed one badly.
I've had some help becoming proactive with healthcare...my PCP has really encouraged me to ask questions and research and has told me that if I ask him about a specialist, he will always send me to the best available in the field. This was after one specialist referred me somewhere that wasn't so great and I got kind of upset. My PCP agreed that the guy was a jerk (he wasn't quite that nice about what he said, but you get the idea), and we kind of formed an alliance...he taught me how to become proactive and has really helped me with everything...I really have some great doctors! They care about the whole person...it makes a HUGE difference!
I found out the hard way to hold my neck after hitting a hole going too fast and aggravating the disc/facet joint/neuralgia. I had to get a nerve block just to keep going. I lucked out that my new dentist has a massage therapist on staff, because he can tell her exactly what to work on, it's great! Good luck finding someone. I didn't get a chance to ask him about finding people...I didn't even get all of my questions answered...he had been out of town a week and was swamped...I have to go back next week though. I'm not allowed to carry anything above 10 pounds (although I do carry my niece sometimes)...and am not supposed to reach above eye level. I would imagine the cat would have aggravated something.
The tendonitis is like tendonitis anywhere else, a tendon gets inflammed, like tennis elbow or something...this one runs from the temple behind the jaw and attaches to the lower jaw (I think...it's hard to see in the picture). The symptoms are tmj pain, ear pain and pressure (especially stuffiness and a clogged feeling), tooth sensitivity, cheek pain, eye pain, temporal headache, neck/shoulder pain....it sounds like most tmj type symptoms. It also feels like a migraine. I've gotten to the point where I can tell the different between the two most of the time. It's hard to describe though.
Hope that helps some...I think there is a thread somewhere where someone was asking what the difference between this and TMJ was...it depends on who you ask...different dentists deal with it differently as is obvious from the other thread...this dentist tends to differentiate where my friend does not. I do know I can feel the tendon inside and outside my mouth inflammed when I have a headache and can sometimes massage the headache away. When I don't have a headache, the tendon isn't as easy to grab and isn't tender. I don't really care how you deal with it, as long as you make my headache go away. I don't think there is a right or wrong way, just different schools of thought. Strange huh?