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TMJ Disorder -TemporoMandibular Joint Message Board
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Old 05-03-2005, 05:27 AM   #1
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What would work....

I'm thinking of starting new things for my TMJ but I don't know what to try first. I don't want to waste all of my money on something that will not even work. So far I've gotten some meds that did nothing, I've visited the chiropractor and nothing. I've went to dentists and so far 1 suggested that I get a splint made for my upper teeth (an intrusive splint to be exact). This does cost 450$ and I was wondering if there is other things I should try first before the splint. I am also worried about trying the splint since I hear it actually makes some people worse than when they started off. Is this true? So what other things can I try? Physio Therapy? Massage therapy? Anything else? Home remedies? Anyone please help. I know that this is a difficult question to answer because of the diversity of TMJ. Everyone has different symptoms, pain etc. and everyone has different ways of dealing with it. But please, any help would be greatly appreciated. Thank you.

 
Old 05-03-2005, 05:40 AM   #2
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luvtocamp HB Userluvtocamp HB User
Re: What would work....

I have been going to PT( one that treats TMJ) for the last month and that has helped my neck muscle and the pain in the joint. I'm told mine is all muscular. I also am taking 500 mg a day of magnesium, and eating a soft diet. I've been taking aleve and advil. Oh I am also applying warm moist heat a couple times a day. I think The PT is helping the most.

 
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Old 05-03-2005, 06:05 AM   #3
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Re: What would work....

I was considering that too. I've taken over the counter stuff like Aleve, tylenol, advil, motrin and they did absolutely nothing. I've taken Celebrex and nothing. On Sunday I started taking Voltaren and nothing, I think it actually made it worse.

Like I said though, I'm never in excruciating pain. The pain comes on for about 3-4 hours a day but I alwasy feel a little sensitive. My eyes hurt sometimes, my teeth others, my neck other times, then my head a little and any combination of these can come at once. The pain I get is mostly annoying pain. You may say, it's only annoying pain, stop complainging but after 10 months of having this im pretty fed up of feeling like this. I know TMJ doesn't go away but I just want to stop the symptoms. There are some days I feel fine all day and other days I don't. I usually feel okay in the morning and after noon but towards late afternoon and evening it starts coming back again.


Thanks for your response and I will try moist heat tonight when I get home. Anything else I should try or avoid? Any foods I should have more than others? Vitamins maybe? Thanks again!

Mike

 
Old 05-03-2005, 06:17 AM   #4
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CherylLynn24 HB UserCherylLynn24 HB User
Re: What would work....

My kid has been dealing with this mess for several years. His head pain/tinnitus (as well as a host of other symptoms) have been on a constant basis. He's tried most drugs including morphine, to no avail. Within the past 6 months or so, he is beginning to see some improvement. He has had a splint made and also participates in Physical Therapy, Chiropractics and also Massotherapy. His physicians suggested to me that he remain in all therapies for the time being. I was told that each one compliments the other. I would definitely give Massotherapy a shot, as it's provided him with some much needed relief along with his splint. Although difficult, try finding someone in your area who is familiar with these types of problems/muscular disorders.

Good Luck to you.

 
Old 05-03-2005, 06:27 AM   #5
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Re: What would work....

Thank you Cheryl, I will look into this stuff. What doctors would be qualified to take care of TMJ symptoms and TMJ? I heard something about an FJO? What does that stand for? Are there any other doctors tht would help?

 
Old 05-03-2005, 07:05 AM   #6
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CherylLynn24 HB UserCherylLynn24 HB User
Re: What would work....

You might want to try these Organizations first and see what you come up for your area. They've been posting in the past and are .org's, so there shouldn't be a problem. I cross-referenced each (for my kid's benefit) to see who had the most experience in several theories. This is always best...........a dentist who treats according to SEVERAL theories and NOT ONLY one.


[url]http://www.aacfp.org/[/url]
American Academy of Craniofacial Pain

[url]http://www.aaop.org/[/url]
American Academy of Orofacial Pain

[url]http://www.aafo.org/[/url]
American Academy Association for Functional Orthodontics

There is also the "Pankey Institute." This list should get you started. Hope it helps. FJO stands for "Functional Jaw Othodontics/Orthopedics." There are many trained professionals that can help you. Don't be fooled by believing that one from any particular organization is the ONLY one that can provide the adequate help. This is simply NOT true.

Also...........Keep in mind that just because a dentist belongs to a certain organization, doesn't mean they're good. I've taken my kid to MANY consults in the past.......consults are worth the time. As for the cost of treatment, the higher the price does NOT guarantee wellness.

Cheryl

[Note: The websites above are allowed by moderator1. Not all "org" sites are acceptable, so we should check with moderator1 first, then write that these are "preapproved by moderator1" when given the OK to post them. Thanks - Well-come Moderator.]

Last edited by Well-come; 05-04-2005 at 05:23 PM. Reason: Clarification

 
Old 05-03-2005, 07:07 AM   #7
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Re: What would work....

How can I tell if a dentist is "good". What should I look for and how should I know when to trust what he or she says? How did you trust your child's doctors? Thanks again for reply!

 
Old 05-03-2005, 07:20 AM   #8
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Re: What would work....

I've spent nearly 3 years researching this disorder. My advice to you is to read as much as you can to be a "well-informed" patient.

 
Old 05-03-2005, 07:35 AM   #9
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Re: What would work....

Ummm i'm Candian so I'm not sure if the websites you posted above will help me at all. I will look through them and see what I find. Thanks!


 
Old 05-03-2005, 08:16 AM   #10
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Re: What would work....

They all list Canadian physicians, as well.

 
Old 05-03-2005, 08:35 AM   #11
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Re: What would work....

YAY!

Are there any home therapies that your son uses that helps him? Eating certain foods or putting special ointments or balms on his neck or anything like that?

Sorry that i'm aksing so many questions but this board has helped me alot in the last few months and I try to get answers whenever I can!

Thanks again!

 
Old 05-03-2005, 09:20 AM   #12
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Re: What would work....

Hi Mike. I hope you guys don't mind me jumping in here. There are definite foods that hurt your jaw worse than others. Bagels and chewy foods like that. Also hard foods such as apples and raw carrots. Obviously things like gum and taffy are out. The worst thing to do is eat something hard or chewy that opens your mouth all the way, like a hoagie sandwich or something. I agree that physical therapy is wonderful. I went after my surgery and it helped so much! Here in my part of the states, it's about $200 per 45 minute session. And, of course, my insurance will no longer cover it at all, so I won't be going anymore. Has your doctor told you to give the anti inflammatories a little longer to take effect? I've been on Relafen now for about 4 months. It's wonderful. I really didn't notice any difference at first either. But, I definitely do now. I also am taking Elavil at night. Just the lowest dosage, but it helps get me through the night without grinding or pain. I have a splint that I wear at night also. It's a game of trial and error. Unfortunately it's an expensive game. But, I hope you find some answers. Good luck.
Tandy

 
Old 05-03-2005, 09:45 AM   #13
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Re: What would work....

Thank you very much Rubato. I think I will give the anti-inflammatories some more of a chance. I will take them for a week 2 a day. I jsut don't want to get ulcers with them since they are apparently strong

 
Old 05-03-2005, 04:13 PM   #14
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Re: What would work....

Hey Mike,
If you have time, i would strongly suggest you read Dr. Terrance Spahl's trilogy: The Clinical Management of Basic Maxillofacial Orthopedic Appliances. Volume III is a very technical book and deals with Temporal Mandibular Joint only. This book is all you have to know about this condition and how to fix it. I was so fortunate. My school has a loan program with other state schools. So i was able to get my hands on it. It will benefit you because then you will know who is treating you the right way or wrong way.

take care,
GT

Last edited by GoodThings; 05-03-2005 at 04:17 PM.

 
Old 05-03-2005, 06:56 PM   #15
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Re: What would work....

Can you share any of your knowledge please? Even something miunimal would be appreciated! Thanks!

 
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