I really wish I knew why we all have to go through this. I better get an answer when I leave this earth!!
When I was detoxed off the pain medication in March I was on Oxycontin 20's 4x's a day; valum 5's 2x's a day; flexaril 10's 4 x's a day and Duragesic 25's one every three days THEN.....I had Lortab 10's as my back up pain medication. So I felt my body NEEDED to be detoxed. I was a very clam person then also...HAHA..wonder why????? Pain can wear you down so fast. It really can screw up your head as well as your body. So between the pain and the medication I KNOW why I slept all the time and why I was tired all the time. About three months before my last surgery I knew I needed to be taken off EVERYTHING so I could see where my pain really stood and I was forgetting to take my medication so I would end up with withdraws everyday. So to me. by me forgetting to take the pain medication that ment my pain level was no longer so high and I did not need as much medication. So they took me off everything while I was under and then I started taking the Lortab 10's ONLY. If I have a stressful day I will take a valum at bedtime to try and help relax me so I (hope) will not grind while I sleep. I would say it took me about two and half maybe three months to fully recover from all the drugs and get back on a somewhat normal sleep schedule and to do away with my "naps". I know my pain level is less..but there is still some pain. And things tend to make my pain worse. Such as I really need to have my tooth cut out that I broke from grinding but they have to put me to sleep to do it and I just do not feel I can handle being put to sleep right now even if it is for 10 minutes. So the tooth hurts which makes my jaw line hurt which make my jaw sore. I really do not think we can ever win while we are always losing!
I have had to relize and ACCEPT that I did not do this. I did not cause this. I do not have full 100% control over my TMJ and I never will. I can try to control what goes on in my life so I can deal with my TMJ better. I still have my days when I just have to stay in bed in my PJ'S and watch "chick flicks" (Steel Magnolias, The Big Blue, How To Make An American Quilt, ect) and just feel sorry for myself, my life, my family and ask the million dollar question for 24 hours....Why Me? Then the next day when the sun comes up I make myself get over it and go on about trying to live my life day by day. We all deal in our own way BUT we all have the Main common thread that brings us together. TMJ. So we are able to understand each other and support each other. I have done NOTHING since March of 1998 regarding my TMJ "treatment" that I regret. The ONLY thing I do regret is the first OS I went ot for my TMJ treated me like I was crazy and told me to my face I was only trying to get drugs from him. I wanted so desperatly to beleive that nothing was really wrong with me that I listened to him and stayed with him for almost two years while he ruined me, well my jaws for life. I did n ot go with my gut and walk out of his office and seek treatment else where. He WAS a specialist in TMJ so I out my trust in him. He is nothing now. I sued and I won. He will NEVER practice again nor will he EVER touch another person again as a "Doctor". I still kick myself for not RUNNING from that man and demanding my insurance company give me another referral. We have to yell, scream what ever for our voices to be heard and for the rest of the world to know that we are here and we have a REAL medical problem and we DESERVE the best medical treatment which includes the best Oral Surgeons that are out there.
My husband and I are leaving on the 28th for a week vacation. This is the FIRST vacation in eight years with NO KIDS and that does NOT involve me having a surgery. I am so excited. I will have to sit through a Nascar Race on Sunday 10/02 but the other six days are mine! Plus we are staying at Mt. Cheaha the entire seven days so I will be in a beautiful place relaxing!
I REALLY hope you find something that works for you. We do have more options today than some of the girls that were living with TMJ in the 70's. I just do not know how they have made it for 30+ years and I have only been dealing with TMJ in my life for eight years now. WOW. It feels like forever. Just hang in there. Have your bad days and make the most out of your not so bad days.
I will be thinking of you!