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TMJ Disorder -TemporoMandibular Joint Message Board
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Old 06-27-2005, 07:33 PM   #1
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Michelle W

Michelle,

I was reading one of your post and read that you are on oxycontin. How long have you been taking it? Have you taking it before? That is what I was taking 4 20's a day before I had my TMJ Concepts put in and then when I broke my left fossa I had to go back on it and was taking 2 20's a day until this last surgery in March and they detoxed me off of it since I was involved in a lawsuit and REALLY did not need to be on it any longer but was NOT willing to go through the withdrawls so I cheated and had them withdraw me while I was under.

Shirlett

 
Old 09-15-2005, 09:57 PM   #2
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Re: Michelle W

Shirlett,

I am sorry I did not see your post when you posted it. I have been away for awhile from the board this summer.

I have been on Oxycontin since December of 2004. I take 10 mg tid.

The detox sounds terrible! Wow, I did not know it would be that bad. Yikes!

Right now I don't know if I will ever get off of it. I went to see Dr. Wolford in Dallas, TX in July. He told me I need a total joint replacement on both sides due to arthritis. It is my only chance to get off pain medication.

I don't know what to do. Right now I am working to see if I can even get my insurance to pay for it.

Do you have the TMJ Concepts? How did the left one break? I have never heard of that happening with the Concepts. I have heard really bad things about the Christensen's. Do you know of other people with the TMJ Concepts? I would love to hear from them as I don't have any idea if I really want to do this operation or not. I am scared speechless these days. Any information would be appreciated.

Take care,
Michelle

 
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Old 09-17-2005, 08:48 AM   #3
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Re: Michelle W

MIchelle,

No the TMJ Concepts do not break. But I broke it. I have had a serious problem with synovial cyst forming and they weaken my bone so the bone gave way then the fossa snapped in half. The cyst are the same cause behind me having to have my implant taken out on the left side. I do know others who have the Concepts in. Should YOU decide to go with Dave Sampson and TMJ Concepts he will and can put you in contact with other who either have the TMJ Concepts now or DX's who have implanted the Concepts. Mediation is going to have the TMJ Concepts put in October at Shands in Gainesville by the smae Oral Surgeon who treats me and who put my implants in. Right now, I have excellant function and I can move side to side even without my left side, I have gained 11 pounds so I am NOT having a problem eating!!!! If and when it ever comes to a point that I HAVE to have my left side put back in I would do it. FOR ME having my pain reduced to almost nothing was worth all the pain from the surgery so MY decision would be to do it all over again but ONLY if I had to. I still have days when I feel pain and enough pain that I stay in bed. But for me what I have to deal with now vs. what I had to deal with two+ years ago...I take the now. The implants DID NOT make me 100% pain free and I can not eat anything but I have VERY happy with the results I got from the surgery. To ME my life is now dealable and I can make it liveable with what I got.
Take care!
Shirlett

 
Old 09-17-2005, 11:34 AM   #4
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Re: Michelle W

Again I apologize for not responding earlier. I did a search on Concepts last night and found your post in the archieve.

Wow, I am so sorry to hear of your problem with synovial cyst. Do they have any idea what is causing them? Is it a result of arthritis or something of that nature? I am sorry, but I am not familar with the cause of these cysts. I am happy to hear you are doing better, but very sorry about the left joint breaking.

Right now I am very tired of being on medication. It causes me great fatigue, weight gain, great expense and of course pain despite medication. I can make it on the pain medication, but it seems like no way to live a happy life.

I have recently found out that I have rheumatoid arthritis; plus I clench and grind my teeth at night. Do you have any problem with clenching and grinding? I am wondering how the Concepts handles that type of abuse. I am afraid I might damage it. It worries me greatly. I talked with Dr. Wolford about that he told me I would have to wear a splint at night, which I already wear, and take Klonipin at bedtime to decrease my bruxism. Next time I see my doctor I am going to ask to be put on it.

Do you know if Meditation will be posting on Healthboards about her experience? I would love to know how her experience and recovery go for her. I realize that everyone's experience is different, but it might give me some idea of what to expect. I wish her the very best in her treatment and recovery.

Thank you for the information. Is Dave Sampson a contact person at TMJ Concepts?

Take care,
Michelle

 
Old 09-19-2005, 06:30 PM   #5
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Re: Michelle W

Hey Michelle,

Yeah, Dave owns the company and he and Everyone over at TMJ Concepts are just wonderful. When I had my left TMJ Concept removed Eric came from TMJ Concepts and went in the OR with me and watched Dr. Dolwick remove my implant. At the time it was not known that I would have to loose my left implant they really thought they were just going in and maybe replacing my left Fossa again. I am still grinding and just had a conversation with Eric a few hours ago about if any what damamge I could be causing my right side implant. So it looks like I will be going back to wearig a splint at night. No cause for the synovial cyst. I have been to see a research DX that specialized in synovial cyst and he was just blown away that I have had so many in my jaw joint area and that they continue to return. From what I have been able to read and learn on my own it is very rare that they continue to return and mine grow so fast that they put too much pressure on the already weak bone form the TMJ so the bone just breaks and dissappears. I can relate to the issues you are living with due to the pain. I lost three years of my life and I really can not tell you one small or big thing that happened in any of those years. They are a fog. Until I was detoxed off all the pain medication in March I too slept so much. Some days 17 hours out of 24. Now, I sleep nine hours a night and that is all I need. I no longer have to take naps during the day. I will say I was sick last week and had the flu and not being able to get out of bed brought on some type of panic or fear that my TMJ was taking over again since all I wanted to do was sleep to escape feling so horrid. Just hang in there and KNOW that you are no alone.
Shirlett

 
Old 09-19-2005, 08:57 PM   #6
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Re: Michelle W

Hey Shirlett,

I am really sorry that you have been through so much in your life. I thought my life was not going well for me due to pain and meds. It sounds like mine is maybe a cake walk compared to yours.

Thanks for answering my questions regarding the cysts, grinding and implants. I know it took some time for you to write all that down for me on that post.

I pray that life will get better for you. I am so sorry.

Maybe I should stay on meds until it becomes unmanageable with the medication. I might be able to put it off for awhile. Until then I plan to continue to see others for more opinions. I am not going to get implants based upon one doctor's opinion right now. I want some consistency amoung specialist, and I need to find coverage for the problem.

Why do we have to suffer so much?

 
Old 09-22-2005, 09:42 PM   #7
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Re: Michelle W

Michelle,

I really wish I knew why we all have to go through this. I better get an answer when I leave this earth!!

When I was detoxed off the pain medication in March I was on Oxycontin 20's 4x's a day; valum 5's 2x's a day; flexaril 10's 4 x's a day and Duragesic 25's one every three days THEN.....I had Lortab 10's as my back up pain medication. So I felt my body NEEDED to be detoxed. I was a very clam person then also...HAHA..wonder why????? Pain can wear you down so fast. It really can screw up your head as well as your body. So between the pain and the medication I KNOW why I slept all the time and why I was tired all the time. About three months before my last surgery I knew I needed to be taken off EVERYTHING so I could see where my pain really stood and I was forgetting to take my medication so I would end up with withdraws everyday. So to me. by me forgetting to take the pain medication that ment my pain level was no longer so high and I did not need as much medication. So they took me off everything while I was under and then I started taking the Lortab 10's ONLY. If I have a stressful day I will take a valum at bedtime to try and help relax me so I (hope) will not grind while I sleep. I would say it took me about two and half maybe three months to fully recover from all the drugs and get back on a somewhat normal sleep schedule and to do away with my "naps". I know my pain level is less..but there is still some pain. And things tend to make my pain worse. Such as I really need to have my tooth cut out that I broke from grinding but they have to put me to sleep to do it and I just do not feel I can handle being put to sleep right now even if it is for 10 minutes. So the tooth hurts which makes my jaw line hurt which make my jaw sore. I really do not think we can ever win while we are always losing! I have had to relize and ACCEPT that I did not do this. I did not cause this. I do not have full 100% control over my TMJ and I never will. I can try to control what goes on in my life so I can deal with my TMJ better. I still have my days when I just have to stay in bed in my PJ'S and watch "chick flicks" (Steel Magnolias, The Big Blue, How To Make An American Quilt, ect) and just feel sorry for myself, my life, my family and ask the million dollar question for 24 hours....Why Me? Then the next day when the sun comes up I make myself get over it and go on about trying to live my life day by day. We all deal in our own way BUT we all have the Main common thread that brings us together. TMJ. So we are able to understand each other and support each other. I have done NOTHING since March of 1998 regarding my TMJ "treatment" that I regret. The ONLY thing I do regret is the first OS I went ot for my TMJ treated me like I was crazy and told me to my face I was only trying to get drugs from him. I wanted so desperatly to beleive that nothing was really wrong with me that I listened to him and stayed with him for almost two years while he ruined me, well my jaws for life. I did n ot go with my gut and walk out of his office and seek treatment else where. He WAS a specialist in TMJ so I out my trust in him. He is nothing now. I sued and I won. He will NEVER practice again nor will he EVER touch another person again as a "Doctor". I still kick myself for not RUNNING from that man and demanding my insurance company give me another referral. We have to yell, scream what ever for our voices to be heard and for the rest of the world to know that we are here and we have a REAL medical problem and we DESERVE the best medical treatment which includes the best Oral Surgeons that are out there.
My husband and I are leaving on the 28th for a week vacation. This is the FIRST vacation in eight years with NO KIDS and that does NOT involve me having a surgery. I am so excited. I will have to sit through a Nascar Race on Sunday 10/02 but the other six days are mine! Plus we are staying at Mt. Cheaha the entire seven days so I will be in a beautiful place relaxing!
I REALLY hope you find something that works for you. We do have more options today than some of the girls that were living with TMJ in the 70's. I just do not know how they have made it for 30+ years and I have only been dealing with TMJ in my life for eight years now. WOW. It feels like forever. Just hang in there. Have your bad days and make the most out of your not so bad days.
I will be thinking of you!
Shirlett

 
Old 09-24-2005, 10:47 PM   #8
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Re: Michelle W

Hey Shirlett,

Again, thanks for the information! I hope you have a wonderful time on your vacation. Let us know how it goes for you.

I can see why you would need to detox with so many meds. I feel the same way with the Neurontin, Keppra and Oxycontin. I don't think it is going to be any fun, but I hope I get the chance to go off them.

My first OS made me feel bad when my arthroplasty did not work. He went into this approach of: "I needed to get my stress level under control and get to a healthy weight and exercise more." Every time I would go see him he would preach at me instead of thinking maybe the surgery did not work. Even when he figured out the surgery did not work he still gave me the healthy speech again!!!!

Yeah, maybe I do need to do that, but he should fix me up and get me out of pain. Then maybe let us talk about it. It is pretty hard to think about much of anything except getting out of pain!!!!!!!! I honestly think it is all a smoke screen to distract the patient from the real issue. I charge you $14,000.00 for arthroplasty. It doesn't work, so I will blame you for not having your stress under control. The old blame the victim switch and bait. That is just my thought on the whole thing.

I will talk to you soon.

 
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