Hi Tina. I've been suffering with this disorder longer than I haven't (I'm 35, so you know it's been awhile). I find that it has affected every aspect of my life for as long as I can remember. My back, neck, jaw, head or face can start hurting if I overdo it. And, which areas hurt depend on what I did. If I eat a big hoagie sandwich, I can barely open my mouth the next day. If I ride a roller coaster, my jaw, neck and back are achey. Almost everyone is different. I have extra muscle relaxers left over from when I had my jaw surgery, so I take one of those if I'm in excrutiating pain (and it takes a lot for that to happen). I wear a splint at night, still do my exercises from physical therapy, and try to get through it. I hope you start to feel better soon. Have you gone through all the normal avenues with this? Have you been to a doctor since you did this? If not, maybe you should. Good luck!