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Old 08-29-2005, 01:56 AM   #1
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please help pain is worse than ever

Hi all im on a 12 months saga with my TMJ, at the moment im having dental treatment and my TMJ was feeling a little better but 6weeks ago i had a filling in my bottom tooth and the dentist hit a nerve (this as never happened to me before) i felt electric shock on my tongue and since then the pain is terrable all my teeth ache my jaw achesmy chin is sore i even have a pain that goes to my eye. I go back to see the specialist at Glasgow dental hospital on the 22 sept i havent even been offered any treatment yet can anyone help?

Miss L

 
Old 08-29-2005, 05:50 AM   #2
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Re: please help pain is worse than ever

hi miss l,

i'm sorry to hear all the problems you are having associated w/your tmj situation. i would recommend that you also look into the condition called "trigeminal neuralgia." it mimics alot of the facial pain associated w/tmj dysfunction but some of your symptoms specifically point to tn: electric shock feeling, pain behind the eye, pain in other areas of the face, nerve pain. trigeminal neuraligia is more associated with some type of nerve situation than tmj. tmj is more joint related. i think there is a section on these boards just for tn. maybe you can also post there or scroll through the posts and see if anyone else has a similar story. i hope you can narrow down your search so you can get treated in a pointed manner. the best.

 
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Old 08-29-2005, 12:10 PM   #3
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Re: please help pain is worse than ever

I agree check out trigeminal neuralgia with your family dr.

 
Old 08-29-2005, 09:22 PM   #4
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Re: please help pain is worse than ever

Miss L,
Do a [removed] search [removed] for lingual nerve injury.
If the dentist hit the nerve, it is a nerve injury, not Trigeminal Neuralgia and definately not Atypical Facial Pain.
***Beware and be well aware that some (if not most) dentists will refuse to treat you after injuring you for fear of a law suit.***
It could be the Inferior Alveolar nerve that was injured as it affects the chin with numbness and burning in the jawbones.
The Lingual Nerve when injured affects the tongue with loss of taste and sensation and numbness.

[Please do not give directions for a website search. Read the board guidelines for more details by clicking the "Posting Rules" above. Thanks - Well-come Moderator.]

Last edited by Well-come; 08-30-2005 at 05:04 PM. Reason: Clarification

 
Old 08-29-2005, 10:45 PM   #5
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Re: please help pain is worse than ever

Hi Miss L,

I am also from Glasgow although I now live in America. I have had TMJ for a while now annd come to this board for some very useful information. I have found that massage has helped me very much. Keep us posted with your progress. Have u tried conservative measures like ice/heat, ibuprofen, muscle relaxants, only soft foods etc?

Good luck with your appointment.

E

 
Old 08-30-2005, 02:14 AM   #6
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Re: please help pain is worse than ever

Hi all thanks for your support, firstly i was diagnosed with TMJD after a long run around with various gps one even said it was all in my head! i have a few questions to ask so please be patient with me as im going through a really bad time at the moment.

all i have had done is a full oral exam by the specialist at the hospital and a panoramic xray is this enough to tell if there is anything going on with my joints? he said i needed a lot of work done to my teeth i agreed i have had a dental phobia for years now. I have now began to get this work done.

the pain started on the right side of my face now it is on both sides is this normal for the pain to move around?my jaw is stiff every morning and as soon as i start to use it it startes to hurt it also crunches now and then and my ears are constantly sore. I have had 5 fillings some of which are deep ones and when i bite on them they are sensative to both hot and cold and its very painfull. On my second visit to the hospital i told the specialist about what i thought was a small lump on the floor of my mouth he had a really good look and said he thought it was inflamed muscle tisue? does this sound right? anyways the nerve thing really started it all up again my husband is really anoyed and said he is going to ask some proper questions the next time we go back. im back at the dentist in 12 days for a root canal 40 min appointment i will be in agony after that i have a new dentist from the one that hit my nerve she left she was doing a 12 month pos graduate probation period my new dentist is much better and as talked a lot to me about TMJD. last but not least if my bite was ok why would i be chewing my cheek while eating ? can anyone answer any of these questions

Thanks in advance you lot are so great miss l

 
Old 08-30-2005, 08:11 PM   #7
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Re: please help pain is worse than ever

Ms.L,

Just wanted to see how you are doing tonite? I wish I had some advice on your situation. But, I am thinking of you and hope you feel better, soon.

Meditation

 
Old 08-31-2005, 02:34 AM   #8
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Re: please help pain is worse than ever

Hi there im not bad a little bit like you i supose feel like crying infact for the past couple of weeks i do just cry at the drop of a hat! its hard to live in constant pain and get on with your life i have my own buisiness to run 1, 4yr old boy 2 teenagers in the house life can be tough! has your pain every eased up any ? i feel like no one cares!

anyway hope you are well

Miss L

 
Old 08-31-2005, 10:47 AM   #9
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Re: please help pain is worse than ever

Miss L,

I am sorry you are feeling bad. This may sound crazy and mean to say. But, know this. There are a lot of us out there that feel what you feel. You are NOT alone.

I wish I could say something that could help you. I do not know if anything can. But, I just want you to know you are in my thoughts and prayers.

Take care ((hug))
meditation

 
Old 08-31-2005, 05:14 PM   #10
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Re: please help pain is worse than ever

hi miss l,

i hope you got some needed info from the responses. the one from nonhlhockey was also very informative being that you mentioned pain that sounds alot like it is nerve related. it sounds as if you have tmj problems that exaccerbate other dental issues and/or vice versa. i hope your next go round of dental work does not make your situation worse. if anything, i hope it will alleviate some pain and maybe you will be able to pinpoint what is going on. i also wanted to tell you to scroll through the healthboards - dental board and see if you can find any additional info.

 
Old 09-03-2005, 12:51 PM   #11
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Re: please help pain is worse than ever

Hi all thanks for your advice and suport on this matter i will keep you all updated, Meditation how are you hope your well

Huggs miss l

 
Old 09-03-2005, 12:52 PM   #12
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Re: please help pain is worse than ever

Oh i forgot to say my fillings dont feel as sensative as they did need a holiday i think love to you all and thanks again miss l

 
Old 09-04-2005, 07:55 AM   #13
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Re: please help pain is worse than ever

Hi,

I've just been reading this thread with much interest. I suffer from tmj and nerve pain. Your symptoms sound exactly like my nerve pain. I suffered terribly with it a year or so ago and had four extractions and five root canals to try to resolve the pain only to find that nothing worked. I eventually was put on the treatment programme by a specialist and the pain settled down although it has re-emerged again after (and this is going to sound pathetic) my girlfriend's mother gave me a kiss on the cheek when we were leaving their house last week and the pain in my face and teeth was incredible. It still hasn't settled down.

I can only describe the pain to be a severe, intense, burning, sharp pain that is never relieved by painkillers. All of my teeth ache and the pain does move around from tooth to tooth. My jaw is also very stiff first thing when I wake up. I have found that doctors and dentists are completely useless. Even most oral surgeons and possibly neurologists (although you may find a good one who can help you) are generally pretty useless too. If this pain doesn't settle, I suggest you find yourself an orofacial specialist. There aren't many of them in this country and most of them who do practise in this country have been trained in the United States. But they have a very good knowledge of this type of pain whether it was caused by dental procedures on not.

Regarding medication - Tegretol and Gabapentin are the most common used. Amitriptyline may also be beneficial. They take quite a while to get into your system but they are basically the only medication that will work. I do know that there are a few surgical procedures that can be done also, although I've never dared to try them.

Good luck and keep me updated.

 
Old 09-05-2005, 02:27 AM   #14
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Re: please help pain is worse than ever

Hi there dale2004 im back to see the specialist at the hospital on the 22nd hope they start some treatment or something! what other pain do you get my ears are always sore and i get sore behind my ears and where the jaw meets your neck. Do you know what causes this pain im nearly a year with face pain woke this am and my nose feels sore also oh well thanks for your answers

best wishes

Miss L

 
Old 09-05-2005, 06:50 AM   #15
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Re: please help pain is worse than ever

Hi Miss L. I also have ear problems with a condition called hyperacusis and a very painful neck. In fact I have been having physio and other treatments on my neck now for more than 8 years with only temporary relief. The pain where the jaw joint reaches your neck and the ear symptoms are more than likely something to do with your tmj. The tooth pain and face pain are probably due to nerve impingement or nerve irritation. The tmj joint can cause this irritation as can damage, tension or possibly scar tissue in any facial muscles. You don't have to have had any previous injury for this to occur, it can also be caused by something more systematic such as dietary and allergic conditions to name but a few. What happens is your pain threshold on these nerves is lowered dramatically. So for example, when you eat your food you feel pressure on your teeth as you chew - this is where the nerves kicking to let you know that you have something in your mouth. Once this pain threshold is lowered, you may bite and feel extreme pain instead of just pressure. I'm not saying this is what should be happening but this is just an example.

If your experience is going to be anything like mine, I suspect your specialist will try to palm you off by telling you a complete load of rubbish. Be insisted, make a fuss if you have to. In my experience this is the only way to get any help from the NHS. If I just listened to specialists and agreed with what they said, I'd have been six foot under by now as I couldn't have continued with the extreme pain I was in. Sad but true.

Good luck and keep me updated.

 
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