It appears you have not yet registered with our community. To register please click here...


 Home Message Boards Videos Join for Free User Blogs Board Index
Search
 
Forgot your username or password?


TMJ Disorder -TemporoMandibular Joint Message Board
Post New Thread   Closed Thread
Share
 
 
LinkBack Thread Tools Search this Thread Display Modes
Old 11-08-2005, 09:09 AM   #1
Inactive
(male)
 
Join Date: May 2005
Posts: 149
Hugs: 0
Hugged 0 Times in 0 Posts
Thanks: 0
Thanked 0 Times in 0 Posts
raylp HB User
The Lyme factor

I've had TMJ issues for the last year, which arose from muscular tension, spasms, and led to a temporary dislocation of the jaw. Then the discs were out of place and I had restricted opening.

For months I have been focusing on treatments for TMJ: massage for really tight muscles, splint therapy, relaxation exercises, nutrition. They all helped, but recently I injured my knee and started wondering what the heck was going on with my body? Within one year I started having all kinds of problems, whereas before I was healthy.

My orthopedic surgeon recommended a lyme test and sure enough I had a positive result. It indicated long-term Lyme. I then went and looked up the symptoms and there was TMJ, as well as alot of other things I have been dealing with this last year.

Alot of internet research has showed me that Lyme is underdiagnosed and typically undertreated. The conventional perception on Lyme is that comes from a tick, and if there is no tick, there is no lyme. If there is Lyme, they treat it with antibiotics. If the antibiotics don't work, then it isn't Lyme.

Digging deeper, it became more obvious that Lyme is more than this. Is is a group of infections that can cause a whole range of symptoms. It can be treated, usually you need to get to a Lyme specialist. Then, as with TMJ, there is a huge range of these folks. Some are pro-antibiotics, some mix alternative with western medicine, and then some say antibiotics are not helpful and they use a different group of treatments.

If you go ahead and get yourself examined for Lyme, be prepared for resistance from your physician. Our country's medical system is still in the dark ages about these things.

I'm doing alot of reading on Lyme since being tested, and what I have found completely deconstructs the common perceptions we have about the infection. Two top microbiologists working with Lyme found that they could no longer find blood samples free of Lyme. They also found Lyme present in bodily fluids meaning it could spread without a tick or mosquito. In England, people who never go near the woods were diagnosed with it.

There are alot of possible symptoms, but they aren't the same in any two people. Neck stiffness/pain, muscle pain, TMJ, joint problems, back pain, nausea, fever, chills, tingling in extremities, headaches, brain fog, dizziness/fainting, confusion, difficulty in finding words, fatigue, irritability, confusion, depression, personality changes, disorientation, panic attacks, and more. As an immune system thing, it gets worse with stress, and also goes through cycles. I think from what I understand it is something like a 30- day cycle.

There is alot of info out there online. If you decide to research it, start with the lyme foundation, lyme.org and other reputable sites.

It might seem frightening to think that this is a possibility, but in my case, I was grateful to find out that my symptoms had an underlying cause.

Last edited by raylp; 11-08-2005 at 06:08 PM.

 
Sponsors Lightbulb
   
Old 11-08-2005, 06:10 PM   #2
Senior Veteran
(female)
 
Join Date: Apr 2003
Posts: 1,603
Hugs: 0
Hugged 0 Times in 0 Posts
Thanks: 7
Thanked 1 Time in 1 Post
CherylLynn24 HB User
Re: The Lyme factor

Good post. Lyme is something that people should be tested for who have on-going muscle problems. I've had my Son tested for Lyme, Mycoplasma, and a host of other bacteria/viruses that also have a hand in muscle disorders. Fibromyalgia and Chronic Fatigue Syndrome also go hand in hand with TMJD.

Again, good point to bring up. Those who have stubborn muscle problems should be tested for Lyme, as well as other possible culprits.

 
Old 11-08-2005, 06:17 PM   #3
Inactive
(male)
 
Join Date: May 2005
Posts: 149
Hugs: 0
Hugged 0 Times in 0 Posts
Thanks: 0
Thanked 0 Times in 0 Posts
raylp HB User
Re: The Lyme factor

May I ask what the results were? I've been learning alot about this lately and am curious. If it were a western blot test, the specific bands would be important. Doctors typically use this counting procedure in which you only have lyme disease if you have a certain number of bands, but I have read some info that contradicts this. These sources say if you have any Lyme specific bands, you have Lyme in your system.

Last edited by raylp; 11-08-2005 at 06:20 PM.

 
Old 11-08-2005, 06:24 PM   #4
Senior Veteran
(female)
 
Join Date: Apr 2003
Posts: 1,603
Hugs: 0
Hugged 0 Times in 0 Posts
Thanks: 7
Thanked 1 Time in 1 Post
CherylLynn24 HB User
Re: The Lyme factor

His results on these two particular tests came back negative. Several other unrelated tests came back positive, though. I've researched this for quite some time and have found that most physicians prefer testing by method of PCR. Apparently, other testing methods are known to give false negatives.

What kind of meds do they have you taking for Lyme, if you don't mind my asking? And if you are on meds, have you experienced a Herxheimer reaction, as of yet?

 
Old 11-08-2005, 07:25 PM   #5
Inactive
(male)
 
Join Date: May 2005
Posts: 149
Hugs: 0
Hugged 0 Times in 0 Posts
Thanks: 0
Thanked 0 Times in 0 Posts
raylp HB User
Re: The Lyme factor

For the most accurate testing, check in the Bowen system. Their testing isn't based on the presence of antibodies, but instead they culture the bugs and look at them directly.

My primary physician did what most any HMO doc would do, and put me on doxycycline (100mg) 2x daily. I have felt a little fatigued, and have had some major night sweats, but that's about it. I'm not expecting much, because according to the literature I have been reading, these bugs are way too advanced for antibiotics, especially if the Lyme has been in the person's system for very long. They can duck and hide from these treatments.

I've been researching treatment protocols and am especially interested in the Samento herb. There are some significant studies on this wonderful herb and it's affect on the immune system. I want to get into a treatment protocol, preferably under a doctor's guidance. I'm also looking into the work of Dr. Klinghardt. He seems really advanced. Another thing that looks intriguing, but difficult to explain is immuneresponse training. AA Immune system clinic treats this. Wierd but seems like it works.

Last edited by raylp; 11-08-2005 at 08:09 PM.

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Lyme and RH Factor jacal5 Lyme Disease 15 08-24-2008 09:21 AM
Lyme Disease Symptoms? kid_dynomite Lyme Disease 13 03-07-2008 09:00 AM
Dr. Steven Phillips- MS and Lyme? zandvoort Lyme Disease 6 06-03-2007 10:15 PM
Could these drugs help lyme patients? Bothrops Lyme Disease 1 08-10-2005 07:27 PM
possible lyme disease Betterdaysforme Lyme Disease 42 01-25-2005 04:49 PM
Difficulty accepting Lyme as a diagnosis SpreadItAround Lyme Disease 40 01-19-2005 02:51 PM
Lyme diagnosis after 10 yrs of MS symptoms Carl Erik Lyme Disease 14 11-29-2004 05:00 PM
Missed Lyme diagnosis? Could use your input, please ~ Thanks! Peeps Lyme Disease 7 09-07-2004 12:51 PM
possible TTP/Lyme connection Ilona Rare Disorders 0 02-10-2001 06:16 AM




Bookmarks

Thread Tools Search this Thread
Search this Thread:

Advanced Search
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off









Top 10 Drugs Discussed on this Board.
(Go to DrugTalk.com for complete list)
Botox
Flexeril
Ibuprofen
Klonopin Motrin
  Neurontin
Tylenol
Valium
Vioxx
Xanax


Message Boards
  • Open to All Other Health Topics
  • It's Life - Off Topic Discussions
  • Natural Disaster Sympathies and Support
  • Health News
  • HealthBoards Testimonials
  • Suggestions for New Boards
  • Registration/Membership/Site Problems
  • Health Issues
  • General Health
  • Abuse Support
  • Acid Reflux / GERD
  • Acne
  • Share Your Acne Story
  • Acne Tips
  • Acute Respiratory Distress Syndrome (ARDS)
  • ADD / ADHD
  • Addiction & Recovery
  • Addison's Disease
  • Aging Issues
  • Allergies
  • Alternative Medicine
  • Alzheimer's Disease & Dementia
  • Amputation / Prosthetic
  • Amyotrophic Lateral Sclerosis (ALS)
  • Anemia
  • Aneurysm
  • Anger Management
  • Angina
  • Anxiety
  • Share Your Anxiety Story
  • Anxiety Tips
  • Arthritis
  • Asperger's Syndrome
  • Asthma
  • Autism Spectrum
  • Autoimmune Disorders
  • Back Problems
  • Beauty & Cosmetics
  • Bell's Palsy
  • Bipolar Disorder
  • Birth Control
  • Blood and Blood Vessel
  • Bone Disorders
  • Bowel Disorders
  • Brain & Head Injury
  • Brain & Nervous System Disorders
  • Brain Tumors
  • Breastfeeding
  • Burns & Injuries
  • Cancer
  • Cancer: Bladder
  • Cancer: Bone
  • Cancer: Brain
  • Cancer: Breast
  • Cancer: Cervical & Ovarian
  • Cancer: Colon
  • Cancer: Esophageal
  • Cancer: Kidney
  • Cancer: Lung
  • Cancer: Oral
  • Cancer: Pancreatic & Liver
  • Cancer: Prostate
  • Cancer: Rectal & Anal
  • Cancer: Skin
  • Cancer: Stomach
  • Cancer: Testicular
  • Cancer: Throat
  • Cancer: Thyroid
  • Cancer: Uterine
  • Candida
  • Caregivers
  • Carpal Tunnel Syndrome
  • Celiac Disease
  • Cerebral Palsy
  • Chemotherapy
  • Children - Special Needs
  • Children's Health
  • Chronic Fatigue
  • Codependency
  • Colds & Flu
  • Swine Flu (H1N1)
  • Cosmetic / Plastic Surgery
  • Costochondritis
  • Crohn's Disease / Ulcerative Colitis
  • Cystic Fibrosis
  • Death & Dying
  • Degenerative Diseases
  • Dental Health
  • Depression
  • Share Your Depression Story
  • Depression Tips
  • Diabetes
  • Hypoglycemia
  • Diet & Nutrition
  • Digestive Disorders
  • Disabilities
  • Divorce & Separation
  • Dizziness / Vertigo
  • Down Syndrome
  • Drug Interactions
  • Dyslexia
  • Dysphagia
  • Ear, Nose & Throat
  • Eating Disorder Recovery
  • Endocrine Disorders
  • Endometriosis
  • Environmental Disorders
  • Epilepsy
  • Epstein Barr Virus (EBV)
  • Exercise & Fitness
  • Eye & Vision
  • Family & Friends of Cancer Patients
  • Family & Friends of the Mentally Ill
  • Family Planning / Adoption
  • Fibromyalgia
  • Foot Problems
  • Gallbladder
  • Genetic Disorders
  • Grief & Loss
  • Hair Loss / Alopecia
  • Hair Problems
  • Headaches & Migraines
  • Health Insurance Issues
  • Healthcare Professionals
  • Healthy Lifestyle
  • Hearing Disorders
  • Heart Disorders
  • Hepatitis
  • Hernia
  • Herpes
  • High & Low Blood Pressure
  • High Cholesterol
  • HIV Prevention
  • HIV/AIDS Living With
  • Hormone Problems
  • Hospice
  • Human Papillomavirus (HPV)
  • Hypochondria
  • Hysterectomy
  • Immune Disorders
  • Incontinence
  • Infant Care (up to 18 months old)
  • Infectious Diseases
  • Infertility
  • Share Your Infertility Story
  • Inner Ear Disorders
  • Interstitial Cystitis (IC)
  • Irritable Bowel Syndrome (IBS)
  • Kidney Disorders
  • Knee & Hip Problems
  • Lasik Eye Surgery
  • Learning Disorders
  • Leukemia
  • Liver & Pancreas Disorders
  • Lung & Respiratory Disorders / COPD
  • Lupus
  • Lyme Disease
  • Share Your Lyme Disease Story
  • Lymphedema
  • Lymphomas
  • Men's Health
  • Menopause
  • Mental Health
  • Mesothelioma
  • Military Health Issues
  • Miscarriage & Still Birth
  • Mononucleosis
  • Multiple Sclerosis
  • Muscular Dystrophy
  • Myositis
  • Nail Problems
  • Neurofibromatosis
  • Neurology
  • Neuromuscular Diseases
  • Neuropathy
  • Nutritional Disorders
  • Obesity
  • Obsessive Compulsive Disorder (OCD)
  • Occupational Health & Safety
  • Orthopedic
  • Osteoporosis
  • Pain Management
  • Chronic Pain
  • Share Your Pain Management Story
  • Panic Disorders
  • Paralysis
  • Parenting Issues
  • Parkinson's Disease
  • Personality Disorder
  • Phobias
  • Pituitary Disease
  • Polio
  • Polycystic Ovary Syndrome (PCOS)
  • Post-Traumatic Stress Disorder (PTSD)
  • Postpartum Depression (PPD)
  • Pregnancy
  • Share Your Pregnancy Story
  • Pregnancy Tips
  • 2010 Mommies
  • 2011 Mommies
  • Pregnancy-Teen
  • Prostatitis
  • Psoriasis
  • Rape / Sexual Abuse
  • Rare Disorders
  • Raynaud's Syndrome
  • Reflex Sympathetic Dystrophy
  • Relationship Health
  • Restless Leg Syndrome
  • Rosacea
  • Sarcoidosis
  • Schizophrenia
  • Scoliosis
  • Self-injury Recovery
  • Senior Health
  • Sexual Dysfunction Treatment
  • Sexual Health - General
  • Sexual Health - Men
  • Sexual Health - Teens
  • Sexual Health - Women
  • Sexually Transmitted Diseases
  • Shingles
  • Shoulder / Rotator Cuff Problems
  • Shyness
  • Sickle Cell Anemia
  • Sinus Problems
  • Sjögren's Syndrome
  • Skin Problems
  • Sleep Disorders
  • Smoking Cessation
  • Speech & Language Disorders
  • Spinal Cord Disorders
  • Stress
  • Stroke
  • Sudden Infant Death Syndrome (SIDS)
  • Teen Health
  • Thyroid Disorders
  • TMJ Disorder -TemporoMandibular Joint
  • Tourette Syndrome
  • Transplants
  • Trigeminal Neuralgia
  • Trying to Conceive (TTC)
  • Urology
  • Vaccination & Immunization
  • Vitamins & Supplements
  • Weight Loss
  • Weight Loss / Surgical
  • West Nile Virus
  • Women's Health



  • TOP THANKED CONTRIBUTORS

    TMJ Disorder -TemporoMandibular Joint

    TMJ82 (20), MountainReader (18), Jill 227 (13), Shirlett (11), Marlene (8), rocckyd (7), saltyk9 (7), navymid (6), PatientZero (6), sorbil (4)

    Site Wide Totals

    thanbey (581), janewhite1 (527), BlueSkies14 (511), SpineAZ (484), DGabriel10 (464), mscat40 (419), tetonteri66 (418), jennybyc (401), sammy64 (390), jgrangran (359)

    All times are GMT -7. The time now is 11:52 AM.



    Site owned and operated by HealthBoards.com™
    Copyright and Terms of Use © 1998-2012 HealthBoards.com™ All rights reserved.
    Do not copy or redistribute in any form!


    SEO by vBSEO ©2011, Crawlability, Inc.