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Old 01-26-2006, 03:19 PM   #1
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Anyone ever experience this?

hey,

Has anyone else here ever experienced this?

When I get up from sitting down or whatever and I stand up,I get this heaviness in my chest and almost like fast pulses in my chest. I also get lightheaded at the same time. These symptoms don't happen everytime I get up,but it happens a lot. Its been going on for the last 2-3 years off and on. The moving feelings and tingling from my head down into my arms and legs and body has also been around for 2-3 years. My legs feel so weak when I walk,like they are gonna give out.

I know this is a TMJ board,but I didnt know where else to post. I hate having allergies and stuffed sinuses and TMJ on top of all this WEIRD serious nervous system stuff...

If it was a deadly disease I'd be dead by now right?

[Please avoid using slang/cuss words. Words like "rubbish", "garbage", "stuff", or "junk" etc. are preferred. Thanks - Well-come Moderator.]

Last edited by Well-come; 01-26-2006 at 06:14 PM.

 
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Old 01-27-2006, 07:48 AM   #2
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Re: Anyone ever experience this?

Kevin, it doesn't sound like a deadly disease to me, if you have TMJD all that stuff could happen. I've been suffering from TMJD since I was 15 (10 years ago). At a show, I got hit from behind really hard from behind, he was a big guy and i was and still am a tiny girl. Anyways I got whiplashed and that totaly threw my jaw off. After the initial swelling let up my only symptom was jaw popping but no pain, headaches, etc.

About 4 and a half years ago my problems really started and I can link the start of it to having all 4 of my wisdom teeth removed at once. Since then I've been having problems with dizziness, headaches and numbness/tingling in my face, arms and more recently legs/feet. At first it was just on and off, I would have a bad day here and there, no big deal. I still went to the doctor and had a physical exam, and nothing was found wrong with me. Slowly it started getting worse, more bad days and less good ones. With more doctor visits, switching doctors, still nothing could be found. And in the last few months I havent had a single good day. Ive had several physicals, seen ENT specialist, and a neurologist. The only thing physically wrong with me is my jaw, and tight muscles. I have a night guard to keep me from grinding at night but it hasnt done much besides almost completely stopping the popping. My jaw still doesnt open more than 2 of my fingers before my left joints gives out a lot of pain.

Well I hope this kind of eases your mind a little bit, I went through that "I'm gonna die" phase too, but all those doctors can't be wrong. I'll just have to suffer like crazy til I see a TMJ specialist in march and hope they can help me.

 
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Old 01-27-2006, 09:21 AM   #3
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Re: Anyone ever experience this?

Well thanks for the reply very much.

I don't have numbness though in my arms, head, or legs. Its like moving vibrations and feelings. I can feel it every time I sit down and if I put my legs in certain positions I have to move them because the feelings so crazy that I cant keep my legs still. It feels like its all over my body. It seems like its connected to my lightheadedness and heaviness in chest and stuff. I also sometimes get a queasy feeling from my head into chest if I look down sometimes..diseases suck..

ugh..

 
Old 01-27-2006, 11:34 AM   #4
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Re: Anyone ever experience this?

These movements... are they like tingly? or muscle spasms? or shakiness?

 
Old 01-27-2006, 01:03 PM   #5
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Rawspice HB User
Re: Anyone ever experience this?

Quote:
Originally Posted by kevinnader

If it was a deadly disease I'd be dead by now right?
That is what I used to tell myself.

I'm like you, I have so many questions but very few answers. I also get the heart beating thing. When I walk up the stairs I can hear my heart beating very loud in my chest and even in my jaw where I have the pain. It only lasts for about 15 seconds, I don't know if this is to do with my tmj or something else. I also used to suffer with so much weakness in my legs during my school day's. I used to feel weak and sick almost everyday but I don't get that so much now. The worse thing for me now is pain and it's mostly in my jaw. I can't say that I get the numbness or moving vibrations you describe.

 
Old 02-03-2006, 08:46 AM   #6
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Re: Anyone ever experience this?

Hello

I also get the same type of feelings you get.. My legs are heavy, I loose my balance, I get dizzy a lot and when I am really tired I get dizzy speels and sometimes feel like I am going to faint..
I have been wearing a 24/7 splint for the past two years and I am better as far as my TMJ is concerned .. that is I dont get that much pain, I can talk and eat but I get the feelling I am constantly being twisted .. All that I do requires more effort than before and I get tired much more easly not to mention cranky .. All I know is that TMJ has so many side effects that I sometimes feel like I am living in a glass bubble .. always carefull and aware of every movement because I know that any little thing can throw me off balance and then to get back to where I was before is complicated..
All the best to all of you .

 
Old 02-09-2006, 07:25 AM   #7
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Re: Anyone ever experience this?

I have tmj for two years, just got diagnsed, and i have developed all kinds of strange symptons over time.These past few months especially new tightness in the muscles of my chest and back (before it was just face, head, neck). I feel just like you feel when I change position. I have actually thought many times I was going to die, because I thought I had heart problems, and the numbenss, tingling, needles, pins, muscle twitches have traveled down my body now I feel i my legs, feet, arms, hands. I now know I have tmj, and hope all this crasy stuff that is getting worse is coming from the tmj, in the hope that it gets better as it gets treated. Hang in there, we have not died yet. I was told by my tmj specialist that chronic, untreated tmj can and does affect the neuromuscular system.
gypsy

 
Old 02-09-2006, 09:27 AM   #8
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Re: Anyone ever experience this?

Kevinnader, please, keep me posted on what you discover about your condition.My legs also feel so weak at times they give out. I also feel the rapid pulses in my chest as I change position, it's really very positional with me. at times I feel my heart slowing down also, or feel the pulse through my ears! There is one new neuro-otologist who believes I have a perilymphatic fistule in my ear (liquid leaked into my middle ear). This is not confirmed as he says that the only way to confirm is exploratory surgery. However, so many doctors have misundertood my condition and even misdiagnosed that I am reluctant to leetting someone operate on me on the "exploratory" basis. He dsays fistulas can cause my balance and leg weakenss problem.
I wish to discover whether chronic, untreated tmj can cause all these symptons we experience after a long time. the muscles in my head, neck chest, shoulder blades are extremely tight. please let me know what you discover about your condition since we have symptons in commom
gypsy

 
Old 02-12-2006, 10:03 AM   #9
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Re: Anyone ever experience this?

kevinnader,

hi. i have also developed the exact same symptons you describe. For me it's very positional. I get prickling sensations, moving sensations all throught my body before it was just in my upper body, now, in my feel and legs too. Needles, pins, tingling, stuff like that. What is very positional for me though is as I change position, I also feel my heart pulsing, it goes really fast. Laying down for me is the worst, it scares me sometimes. The muscles in my chest are extremely stiff, and i get a horrible feeling that comes from my neck/throat down to my chest especially as I move. Staying in the same position for too long also exacerbates my condition, like sitting in the same position for more than severalminutes. I just discovered I have muscular tmj and am wearing appliances. But I will go see a rheumatologist to find out if I have developed something else through all this. I have been told that untreated, chronic tmj can and does affect the neuromuscular system.
please keep me posted as you are the only person I have come across wit the same symptons all over the body like me.
good luck and all the best
gypsy

 
Old 02-12-2006, 01:46 PM   #10
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kevinnader HB User
Re: Anyone ever experience this?

ya it sux.

Glad im not the only one. Today its bad. It ALWAYS sucks in church every sunday morning. When I was sitting down still I could feel the feelings from my legs into my head. The whole way up. I was also like weak too. Feels like theres lots of weakness with it. If I change positions I get heaviness in chest. If I stand up at church on sunday mornings,I cant stand still and I feel very weak and light headed. This has been happing for 1-2 years. It is especially worse on sunday mornings,I dont know why. Maybe cause im doing something so early in the morning unlike the rest of the week-church.

Dont get me wrong,it happens all day but it is worse on sunday mornings as I mentioned.

Wish there was a medicine that would stop it...

Last edited by kevinnader; 02-12-2006 at 01:53 PM.

 
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