Has anyone heard of this? If so what is it and its purpose? I had a consult with a new dr 2 wks ago and today he e-mailed me and suggested we try to reposition the jaw and tongue with a NUK pacifier. It would take a few months to know if it is a success or not. In addition I would need to have trigger point injections, cranial sacral therapy and possibily another round of PT. He said my tmj is definitely a neuromusclar problem and the different therapies (which I have done at one time or another these past 2 yrs ) are necessary to identify the trigger points in the central nervous system causing the spasms in my face and tongue. I'm going to e-mail him back with some questions but was wondering if anyone else has heard of this appliance, tried it, etc or is it his own version of a repositioning splint? Although he states he has 25 yrs in treating tmj I am cautious with any new dr now because others I have tried have actually made my pain worse with some of their treatments.
You know.....I looked back at his e-mail and he does say it is similar to a baby pacifier and that ii helps train the tongue to work with the jaw instead of against it. Something new for me - won't this look pretty - a late 40 something using a pacifier - great!
I know this is not very common but when my tmj started abrubtly 2 yrs ago it started wtih tongue spasms - my tongue literally just started to make a constant uncontrollable twirling motion around my back teeth. The tmj pain & jaw deviation came a week later. Initially it was thought to be a neurological problem but this was eliminated after many, many tests. Today my tongue is pretty much stuck on the left side and feels twisted too. So I guess the dr is thinking that I need to somehow retrain it to move with the jaw? And that sucking on a pacifier will help do this? He also said I would have to wear splints 24/7 (he mentioned several different types that would be used in stages) to reposition the jaw as well. I have an appt 7/6 so we shall see. I have tried so many things - so I am kind of game for anything at this point if it helps.