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Old 04-19-2007, 10:30 AM   #1
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My scalp hurts to the touch on the left side

This is the side where I have my jaw, neck, shoulder, upper back and upper chest pain and pressure. This has been going on two days and I'm am freaked out I have an artery problem instead of myofascial pain. I also have a lot of pressure in the back of my neck and head on that side. I've been dizzy for about a week, but am feeling a little less so today.
Can all this still be TMJ or chronic myofascial pain? I hate going to the docs for every little thing.

 
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Old 04-19-2007, 10:50 AM   #2
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Re: My scalp hurts to the touch on the left side

I just started with a new chiro and she said my atlas c1 was a little tilted and as such my head is sitting crooked. Also my cervicals are messed up.
I have had this continous humming from the back of my head up to the R. cheek and it has seemed to lessen after just one treatment. My R. temporal bone is also misplaced so she is going to work on my head bones too as she said the r. zygomatic arch is a bit forward on the right.
I am hoping. Anyway I have have and still do tender R. scalp, either muscle spasms R. cheek or nerve ticking, tenderness where the base of head and neck meet and the humming (not from the ears) back of head.

Maybe check out a chiro that has years of exp., with cranial therapy and muscle testing ability along with trigger point treatment.

I really think some of us with tmj problems may also have neck issues.

 
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Old 04-19-2007, 01:54 PM   #3
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Re: My scalp hurts to the touch on the left side

I couldn't agree more - although I am not sure what comes first - the egg or the chicken - but if you have tmj, chances are you also going to experience symptoms resulting from cervical spine (neck) misalignment and cranial distortion of some kind and vice versa. They are definitely related.

Last edited by Thelma-Louise; 04-19-2007 at 01:54 PM.

 
Old 04-19-2007, 02:16 PM   #4
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Re: My scalp hurts to the touch on the left side

So Thelma-louise, do you have spots on your scalp that are sore to the touch? I'm really scared it's a vein thing, mostly because, like I've mentioned before, the muscle that goes from the side of my neck to my collarbone is larger on that side, and the vein feels larger. So along with my pressure in my neck and the back of my head, I have the muscle thing and now the sore scalp. Is all this really TMJ/myofascial pain? My upper chest and left arm even feel a little tight, like there's pressure. My GP informed me today that any further questions I have should be directed to the rheumatologist who told me I have chronic myofascial pain, I guess he's done with me. I think I'm done with conventional medicine, although I am worried.

My husband works with a man who started feeling dizzy at work and went to the doctors. He had a lot of tests run and was told it was panic attacks. Well, the guy wasn't buying this, and went again to the clinic, and was told it was panic attacks, and set up an apt. for him to see a Psychologist. They cleared him to go to work, but he just never could make it. He felt too dizzy. Well, my husband found out after the man being off for 3 weeks that he had a stroke, and the "panic attacks" he was having were TIA's. Don't know how they missed that, but let me tell you, I am now more nervous after hearing that because I've been dizzy and my vein issue. I know this could all be TMJ/myofascial pain, and I don't have high blood pressure or high cholesterol, but I'm still afraid. It's not that I think I'm having TIAs, it's the total lack of confidence I have in doctors because they really know so little.

 
Old 04-19-2007, 06:25 PM   #5
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Re: My scalp hurts to the touch on the left side

You know I hate to be critical of the medical field but unfortunately my previous experience as well as recent ones has totally left me very critical of them in general - even though I hear of all the progress we have made and preventative measures, and so forth. My sister has been struggling with something similar to that of your husband's friend for over a year or more to the point she actually passes out and yet despite all the tests and drs she has been to they find nothing wrong and then tell her its anxiety or peri-menopause - its a cop out attitude in my opinion and easier than just saying "I don't know". Its to the point she doesn't even tell a new dr how long this has been going on for or how many drs she has seen b/c they immediately think she is a hypochondriac. It kind of seems like all they want to do is collect your co-pay and be done with it. I could go on and on.

At one point, one whole side of my head, the top of my head, the back of my neck and one side of my face tingled and/or was numb. Taking a shower was brutal b/c the water felt like little daggers or needles being jabbed into the flesh. I also had tingling going down both arms and to the 3 outer fingers on both hands. And I still have what looks like a vein or ligament that is stretched tightly or is more pronounced on my left side near my throat and my collarbones hurt and as I mentioned in prevoius posts, my collarbones seem to keep shifting sometimes to the point they are not even visible and other times very pronounced. Most of this is due to cervical spine issues - you really should have your axis and atlas (C1 and C2 vertebrae) checked out - any shifting or misalignment there will change how your head is positioned as well as could cause compression to various nerves and muscles the jaw, face and cervical spine share. This is what usually causes the strange sensations.

This doesn't mean you shouldn't rule out other possibilites.

When my symptoms first started my PCP did several echos to check the heart and arteries in various parts of the body (carotid, aorta, groin and legs) and a nuclear stress test. He also did an upper GI and Barium swallow test. Then he sent me to a neurologist who did a needle EMG (very painful) and sent me for brain and spinal MRIs and the list of possibilites he came back with scared me to death, but maybe in a state of denial, I don't know, I dismissed them altogether, and looked for other possibilties or causes.

Once I finally got some relief after seeing a NUCCA chiro I knew I was on the right trail, but to this day my PCP thinks I must have a viral brain infection and its running its course so that's why the symptoms have started to abate some! The medical community is very scientific - so if they do not have abolute proof or the result of some test stating this or that - they dismiss it -nothing is relative to them - its either black or white with nothing in between.

Once you start talking to chiros or cranial therapists and accupuncturists and see that these symptoms are fairly common with tmj, myofacial pain syndrome, Ernest syndrome, trimengial neuralgia, cervical spine compression, etc., I think you might feel a lttle more reassured. Did your PCP do any of the tests I previously mentioned?

I really do know how you feel - a lttle abandoned by the medcial professionals, like your left helpness - but it doesn't mean you won't find the right help elsewhere.

Last edited by Thelma-Louise; 04-19-2007 at 06:29 PM.

 
Old 04-19-2007, 07:50 PM   #6
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Re: My scalp hurts to the touch on the left side

Quote:
Originally Posted by Thelma-Louise View Post
I couldn't agree more - although I am not sure what comes first - the egg or the chicken - but if you have tmj, chances are you also going to experience symptoms resulting from cervical spine (neck) misalignment and cranial distortion of some kind and vice versa. They are definitely related.
Thelma,
If a splint was used to balance the upper and lower jaw relationship cured this misalignment, then would be be safe to say that tmj caused this misalignment and not the other way around? Dr. Gelb found this in a lot of his patients. This info is also in Dr. Spahl's book. But i've actually found several cases online about this. Since i can't post links...

GT

 
Old 04-19-2007, 07:53 PM   #7
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Re: My scalp hurts to the touch on the left side

My GP did none of those tests. I did request to be sent to a GI specialist back in January, and I finally have an apt. to see one on May 3, because all of my pain started 16 months ago with right side and abdominal pain and pressure. I think it's gynecological though, which is another story altogether because even though I just found out my CT scan showed my right ovary to be 4.2 cm. larger than my left back in Sept, I was told by the ER doctor and the OB-GYN that it was normal. I would think that would be a red flag because your ovaries aren't very big to start with, and that's the side I have the pain on.
Anyway, I asked my GP about seeing a neurologist in the e-mail I sent him, and that's when he told me all further questions should be directed to the rheumatologist. I barely know her! I think it would be odd for me to ask her to send me to a neurologist, I don't even know if I can do a follow-up apt with her seeing as how I had to get a referral to see her in the first place. But she was very adamant about the fact that my heart needed to be checked out because of my panic attacks. She's convinced I have arrythmia instead, and said she was going to talk to my GP about me wearing a halter monitor. I'm sure if she did, he just brushed it off.

 
Old 04-19-2007, 07:59 PM   #8
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Re: My scalp hurts to the touch on the left side

I don't think my chiro is the right type to treat me. I told him I was diagnosed with chronic myofascial pain, and he said, "So, you have fibromyalgia." Not sure he fully understands. I've tried to reach a dentist who specializes in TMJ, the closest one I could find online is about 50 minutes away, I e-mailed them Monday but never got a response. Today I called and left a message, but I guess they close at 2:00 on Thursday and aren't open on Friday. I also am looking for a massage therapist who knows how to do myofascial therapy, not as easy as it sounds near where I live apparently. I found one but she couldn't take me until May 1. I guess I'll have to call back and book her for then. Meanwhile, I don't think I can call my doctor and ask for anything, and like I said, if I switch to another doctor they still have my whole record and can see all my apts and all the doctors notes about me. WE are thinking of paying a private practice doctor to see me, but we wouldn't be able to afford the tests.

I have had x-rays of my hips, ribs, shoulders and neck that showed nothing. What I want is a CT scan of my neck and back, and someone to at least check my veins and pulses.

 
Old 04-19-2007, 09:39 PM   #9
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Re: My scalp hurts to the touch on the left side

Quote:
Originally Posted by GoodThings View Post
Thelma,
If a splint was used to balance the upper and lower jaw relationship cured this misalignment, then would be be safe to say that tmj caused this misalignment and not the other way around? Dr. Gelb found this in a lot of his patients. This info is also in Dr. Spahl's book. But i've actually found several cases online about this. Since i can't post links...

GT
You know what's so frustrating about this is that your cranial structure needs to be in balance for a splint to help but you need a splint to help balance your cranial structure as well, but like I just experienced, my splint picked up an inbalance and didn't adjust correctly for it. So now I know that I need to first get my head straightened out "literally" and have new splints made. I must have moved some more this week b/c now I can not even get the splints in my mouth - they feel way too large this week and I have no clue why. But some of my pain has eased up finally (TG) so I don't want to force the splints in on the chance my body is naturally re-aligning itself. I literally had to stretch my mouth around them today and once they got in I started getting intense pain so I pulled them out real quick.

 
Old 04-19-2007, 10:02 PM   #10
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Re: My scalp hurts to the touch on the left side

Quote:
Originally Posted by wonderingtoo View Post
I don't think my chiro is the right type to treat me. I told him I was diagnosed with chronic myofascial pain, and he said, "So, you have fibromyalgia." Not sure he fully understands. I've tried to reach a dentist who specializes in TMJ, the closest one I could find online is about 50 minutes away, I e-mailed them Monday but never got a response. Today I called and left a message, but I guess they close at 2:00 on Thursday and aren't open on Friday. I also am looking for a massage therapist who knows how to do myofascial therapy, not as easy as it sounds near where I live apparently. I found one but she couldn't take me until May 1. I guess I'll have to call back and book her for then. Meanwhile, I don't think I can call my doctor and ask for anything, and like I said, if I switch to another doctor they still have my whole record and can see all my apts and all the doctors notes about me. WE are thinking of paying a private practice doctor to see me, but we wouldn't be able to afford the tests.

I have had x-rays of my hips, ribs, shoulders and neck that showed nothing. What I want is a CT scan of my neck and back, and someone to at least check my veins and pulses.
Well that doesn't sound too good - a chiro should know the diff between myofacial pain and fibromyalgia. Sorry - I thought you did have an appt with a neuro coming up - does your insurance require referrals to see specialists? Maybe if you try a diff GP even if he is in the same group he might give you a referral to a neuro if you ask? A neuro could request scans of the spine and neck. Have you checked the great tmj dr post for someone in your area? Hoefully if you do get an appt with a good tmj dr - they can offer referrals to chiros and therapists as well.

Also, I think you may have 2 diff issues going on at one time - if you can, please follow up with the issue of the enlarged ovary - not to scare you, but even benign ovarian tumors or growths can cause arrythmia b/c they can secrete hormones or chemcials as well that can interrupt the hearts electrical rythm.

 
Old 04-19-2007, 11:29 PM   #11
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Re: My scalp hurts to the touch on the left side

I do have to have a referral to see a specialist. Also, I've had a pap within the past two years, so it will even be difficult for me to see an OB-GYN. I'm going to try though because when I saw that in my medical record, I was really upset that they didn't think anything of it.

 
Old 04-20-2007, 06:34 AM   #12
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Re: My scalp hurts to the touch on the left side

Thelma - your so right. My chiro said the tmj's are the upper pelvis and if not balanced then your whole body twist starting with cervical down. Thats whey we have such a hard time.getting this situation under control. But then I was told by a few chiros that the body needs to be straightened first- who knows. Also some people can function ok with everything out of wack and then there are us, who can't.

 
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