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TMJ Disorder -TemporoMandibular Joint Message Board
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Old 09-26-2007, 06:58 PM   #1
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notmyself2007 HB User
going out of my mind and no hope in sight

i feel like i am losing my mind things that i used to always do normally like clean my house is becoming a mountainous struggle everyday i feel myself slipping away further and further into despair and noone around me knows or understands what i am going through they think i am just being lazy and i dont want to do it if they only knew that is so far from the truth i start doing it and the confusion sets in and i get soooooooo tire so easily i dont understand what is happening to me i feel like i have no quality of life and no hope of it ever changing i am not even working presently and have no insurance so i cant even get treatment that may or may not help me i wake up in the morning feeling as though i havent slept at all even though i slept for a full 8 hrs and sometimes longer gone are the days of getting a full nights sleeping and waking up to feel fully recharged and refreshed and ready to take on the world my husband is on the verge of leaving me because of the work situation and cleaning the house etc... which i cant blame him for if there is anyone out there who can give me a glimmer of hope please respond

 
Old 09-26-2007, 10:31 PM   #2
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lucall HB User
Re: going out of my mind and no hope in sight

Hi and I do know where you are coming from and alot of us do. For one your husband needs to read upon T.M.J and read the symtoms that you are going through. Hopefully afterwards he will be more supportive. TMJ will cause severe drowziness and disorientation and I believe you know all of the other symptoms..let alone you not feeling awake during the day! No you are not lazy. But what has helped me I have forced my self to do a tiny bit more than I feel like. I did say a tiny bit more. NoOne wants s to feel helpless. It will just make you feel worse. But first you hav't to feel rested to be able to conquer that task. Take coral calcium in morning it will help you feel better and if you hav't to take melatonin 1/2 before you go to sleep. I have been suffering with T.M.J. for 13 years now. I am in your shoes and totally understand and so..... many others. May God bless and Hope this helps!

 
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Old 09-27-2007, 11:28 AM   #3
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Thelma-Louise HB UserThelma-Louise HB UserThelma-Louise HB User
Re: going out of my mind and no hope in sight

Brain fog - its awful. It makes it difficult to complete takes and stay focused, forgetful and absent minded and doing normal daily tasks seem like they are major endeavors. Sleep is affected b/c you are not going into the REM stage so you never get the "restorative" sleep the body needs to function. Socializing becomes an effort. I can't recall any of the family events and celebrations that have occured during the past 3 yrs even though I went to them - its all been a blur. And most people don't undertand it unless they have experienced it. I thought I was in the early stages of Alzhiemers (sp?) when it first started. The good news is that it does eventually ease up and go away with treatment.

You don't give much info but if you worked previously before getting tmj and qualify for SSDI you should apply. It took me more than 2 yrs to finally get approved - in the meantime I basically just opened a home equity line of credit and a few 12 month zero percent credit cards and used both to pay my living expenses and tmj treatment paying just the minimum due each month. If you do get approved for SSDI you will be eligible for Medicare and although it doesn't cover tmj related dental treatment it will cover chiro visits and other therapies that can help with some of your symptoms.

I know things are rough right now but please know many of us have experienced it, and still do, and know what you are going through. You're not losing your mind - you are disabled. But you do need to do what the previous poster suggested and write down daily goals or challenges for you to complete each day. Some days you may get only one done - so cross it off the list and other days you may get more done - but it will help keep you motivated, help ensure certain things are done - even the routine or mundane things like taking out the garbage, keep your mind off of how you feel a bit and allow you to pat yourself on the back to see what you can accomplish despite being or feeling out of it most of the time.

Hope you are feeling better soon - PS for the past 3 yrs I have been taking Tylenol PM at night (in addition to other prescription pain meds) and it allows me to get 4-5 restful hrs of sleep - the more restful sleep you get the better you will be able to handle all of this.

 
Old 10-04-2007, 05:31 AM   #4
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eltwins HB User
Re: going out of my mind and no hope in sight

I have a feeling I have TMJ, it has not been diagonsed yet. I read up on the symptoms and I have got them. Then I have moments of doubt when I then panic myself silly and give myself anxiety disosrder. I have done that today and so come on here again and I just read about your symptom of drowziness and disorientation. That is it in a nut shell. That is exactly how I feel. I have real bad moments of it, then not so bad, then nothing and then straight back in at really bad without any warning. I have an overall feeling of head pressure, pain in head, sinus', jaw and neck. A sometimes clicking jaw, unable to eat crisp/hard foods.

But I was really worrying about this drowziness along with the other symtpoms. I hve convinced myself I have a brain tumor and that isn't good for someone with anxiety disorder also. I have also been under a lot of stress.

Is this what TMJ is all about, or should I be loooking at something else?

Last edited by eltwins; 10-04-2007 at 05:31 AM. Reason: typo's

 
Old 10-04-2007, 07:19 AM   #5
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rosarymaker HB User
Re: going out of my mind and no hope in sight

Hi eltwins, please find a reputable tmj specialist and get info on your symptoms. Not knowing what is causing your distress is making your anxiety worse and then your pain just gets worse. About your drowsiness, I've had tmj for a long time and just couldn't figure out why I could just fall asleep in my chair not even leaning my head on a pillow. Know I realize it's pain. You know when you have a really bad headache and need to lay down, well this is constant so you have these symptoms and have to try to lead a normal life. Knowledge is power and what you learn will lessen your anxiety and you can start to heal. God speed.

 
Old 10-23-2007, 07:44 PM   #6
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Re: going out of my mind and no hope in sight

I am at 4 1/2 month suffering now and also no end in sight. Mine started with a simple stuffy ear. No other symptoms for 2 months so my Dr threated me for allergies which seems to be common with this problem. Finally sent me to an ENT who also treated me for allergies. On to the audiaologist who determined my hearing was fine. I asked if they thought it was TMJ and all said NO. Other symptoms have developed over the last 2 months. Headaches in front and back, shoulder and neck pain. Pain behind my eyes, jaw and teeth pain. Jaw clicking and popping. Head pressure that makes me feel like my head will explode. I thought I was having a stroke. I can deal with most problems but the head pressure and the plugged ears has put me in a depressed state. I can hear fine but when I eat or talk it is muffled and amplified. I feel a vibration when I talk that brings on the headache. When my teeth hit it is like having a microphone to my teeth.

I am getting ready to go on a dream vacation that has been planned for a year. I am dreading it as this problem is on my mind every waking hr. I do not feel family understands the depths of my misery. Unless you have walked in our shoes you have no idea. I did go see a TMJ specialist who said that I have artheritis in my jaw and TMJ. He wants to fit me with a splint and will put me on meds and possibly Physical therapy but the cost is $3,000. He does not accept insurance but my Medical insurance will pay 50% after deductable as long as the problem is Medical and not Dental. He said if I do not have relief within 8 weeks I probably will not. That is reasurring!

My audiologist has referred me to an oral surgeon who will be covered 100% under my medical insurance...yippee! Unfortunately I do not see him till Oct 29. 3 days before my vacation. I hope my symptoms help answer other peoples questions. I would like to know if anyone else has had this hearing problem, for how long and did it ever go away?

 
Old 11-17-2007, 03:38 PM   #7
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bayoulady HB User
Re: going out of my mind and no hope in sight

Hey there, I am sorry that you all are going through this, but I am also grateful that I am dont have a weird tropical disease of some sort. My left ear is stopped up and there is pressure above that same ear and it is sore to the touch. Also, I feel a little offbalanced and disoriented. My favorite place to be is on the couch because the more I stand, the more offbalance I feel. Anyone else have the pain/pressure/tingly feeling above the ear on the side of the head?

Thanks for being here. I need the hope right now. I cry while I am in the shower because I am so miserable. I have teeth missing and I am waiting on that to be repaired before I will receive lasting relief.

God bless you!

Danielle
Louisiana

Last edited by bayoulady; 11-17-2007 at 03:39 PM. Reason: misspelled word

 
Old 11-17-2007, 05:20 PM   #8
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Amy26 HB User
Re: going out of my mind and no hope in sight

Do you guys ever feel like there is something in your ear? Or that its "stopped up" ... my ear is driving me crazy right now (my ears have been ringing for 3 months) as it feels like its clogged up or something is in there. My ear seems to pop a bit if I close my mouth tightly and I've tried popping it manually as well as cleaning it out with a q tip. It feels really wierd.

I too suffer from the excessive sleep. I'm tired all the time... I go to sleep and when I wake up I'm just as tired as I was before. I take naps constantly too. Jaw pops and cracks when I open it wide. Headaches...the brain fog you spoke of.

How does one find a TMJ specialist? My health care website does not have a look up for one.

 
Old 11-17-2007, 05:39 PM   #9
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SanDee53 HB User
Re: going out of my mind and no hope in sight

My left ear has been plugged for 5 months now. I have seen an ENT and an audiologist and both said nothing is wrong with my ear. They referred me to an oral Surgeon but while waiting to see him I found a TMJ specialist who told me I have TMJ and said I would need a splint for both day and night and would possibly prescribe medications and physical therapy and then told me the treatment cost would be about $3,500 and he does not accept insurance though after full payment he would give me forms to send to my insurance. My insurance said that since he is not in my network that I would have a $300.00 deductable and then they would pay 50%. I then went to the Oral Surgeon who my medical insurance will pay 100% minus my $12.00 per visit copay.

He said I have minimal TMJ and feels my problem is more muscular. I have been waiting treatment authorization which finally came in so I will go for impressions next week. I will be fitted for a splint that I will wear at night. He gave me jaw exercises and told me to use hot and cold compresses before and duting these exercises. I also will start physical therapy on Monday. I was on a cruise last week and treated myself to a full body massage. She did deep tissue massage and the right side was OK but when she did the left side I was in tears. She said that I was full of knots on that side so there may be some truth to his diagnosis since it is my left ear that is clogged. he did ask me if I was under any stress since this started and i said my daughter and grandson moved in and he feels that may be the cause of my plugged ear. I also sit at a computer 6-12 hrs a day. I do not sit up staright like I should so I feel that may also contribute to the problem.

There are only about 50 TMJ specialists in the US so I am told. I would get on the phone and start calling oral surgeons and find ones that treat TMJ. Also you may want to see an ENT to rule out a problem with your Eustation tube. How many of your symptoms are like mine? If you have not seen a Dr yet you may want to start with your family Dr. They may clean your ears as they did mone. Most peole say that they are put on meds for allergies as I was too. After 2 months I knew this was not the problem.

Plugged ear feeling like I have water in it.
I hear fine but when I talk it is muffled. I hear what I say on the inside of my head and not the outside.
I feel a vibration in my head when I talk.
I sufffer from ringing in the ears now but it is not as bad as the stuffy feeling.

I hope this information will help. I do not wish this on anyone but it is nice to know that I am not the only one suffering with this problem. Until I developed it I had never heard of this problem.

 
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