Join Date: Jan 2008
Re: you're doing well :)
klpeach, I am in your position, and what we have sound really familiar. I have had tmjd for about 7 years, and it flared up after my mom tragically died 1 month before our wedding. Fast forward now, 7 years later, and I had a flare up in September, and it stayed, and the pain was in my left side jaw, teeth, face, and ear, then in October it went into the rest of my body, in my neck and shoulders, then hands and feet, then muscles, joints, and bones. I have traveled to many doctors, and surgeons, and had surgery scheduled, and then denied by my insurance company. As time has gone on, I never got treatment, I got worse, and instead of disc issues, I now have real bone issues too, I have been on medications to treat chronic pain, and muscle spasms, and then I finally found a dentist, who just opened a orofacial pain center, and treats just issues that cause chonic pain in the mouth, a lot of tmjd. I started seeing him in May, and he has promised he can help me, and help me get better. I am still skeptical, that a bite splint can fix my jaw that is dislocated on the right side, and severely worn down on the left side, and shows signs of osteoarthritis, but we will see. I have also been diagnosed with temporal tendonitis from him, and since seeing him, the migraines (what I have always called them) have gotten worse, and I sometimes are unable to use my left eye, the pain is so bad behind the eyeball. My new dentist, said that it could take up to a year to fix, but surgery might be an option still, and he would send me to Kentucky, he believes that is where the best surgeon is who treats issues with the tmj.
I am 31, and I have been diagnosed with fibromyalgia, and myfascial pain syndrome along with tmjd. I never thought I would be battling chronic pain. It has hurt my marriage, as my husband tries to understand, but he wants his wife back. I have gained weight, and I do not have the energy I used to have. I am not able to jump up anymore and go do things, and never know how my day will go. How do you guys do it, and do you battle pain in other areas too?
Good luck, and keep writing, it helps to get it out, and talk to other people who are going thru the same thing.