severe headaches with dizziness - TMJ Disorder -TemporoMandibular Joint Message Board

tammi02 · 08-12-2008, 09:19 AM

I have had TMJ for over 13 yrs and I have tried everything known to man almost. I have had a splint and I have taken Ibeprophen which messed up my pancreas from excessive use. I have tried accupucture and chiropractor and physical theropy and still no releif. I am currently taken muscle relaxers and pain meds and still in pain. I take valuim and norflex and darvocet used to be just one pill each at night but lately its been 3 times a day and I still ended up with dizziness and had to be put on steriods and antivert. I am now in the process of making an appointment with a neurologist. I know that TMJ will be the death of me. NOTHING SEEMS TO HELP ME!! I came here hoping to see where someone has had a success story. I dont know how much more pain I can take.

temera2 · 08-12-2008, 10:23 PM

dearest Tammi2 ,

Goodness your story breaks my heart *hugs..

Can you go into your history more, be specific with your symptoms... ?? And the history.. i want to know everything... i hope when you tell me i can offer some helpful advice but i need to know everything..

I'm thinking of you Darling, Please hang in there. please!

Much Love

tammi02 · 08-13-2008, 06:32 AM

Well It All Started 13 Yrs Ago When I Got This Dizzy Spell Had Lots Of Test For Vertago And Then Went To Ear Nose Throat Specialist Who Istantly Told Me That I Had Tmj. I Went To A Tmj Specialist And He Made Me Spints Both Upper And Lower And Gave Me Meds Flexeril. That Seemed To Get Me Back On Track After A Few Months And Then It Would Just Be Flare Up Now And Then And Would Have To Wear Splint And Take The Meds. I Took Ibuprofen Most Of The Time And Then I Started With Pancreatitis. Was Hospitalized With It And They Swore I Was An Acoholic( Thats Common In Heavey Drinkers) I Then Told Htem I Take Alot Of Ibuprohen And Then They Said Their Our Problem.since Then Which Was A Year Ago I Have Had To Wear Splint Every Night And Neck Pain Everyday Since. I Have Tried Sports And Spine Rehab And Accupucture All Seemed To Make Things Worse.i Ice I Heat And I Messager. Nothing Seems To Be Helping Me. As I Said Before I Was Taking My Meds Once A Day ( My Doctor Had Also Tried So Many Meds And Some Do Nothing At All) Im Now Where I Am Taking Them 3 Times A Day. Its Hard To Work Or Even Have Fun With My Family Anymore. I Am Currently Trying To See A Neurologist For Possibly The Shots In The Neck But Im Really Scared. I Just Dont Feel There Is Any Hope For Me. I Know This Will Be My Demize.

tammi02 · 08-13-2008, 06:37 AM

Dizziness , Neck, Shoulder Pain, Ear, Face Pain And Rawness On The Inside Of My Mouth At The Jaw Bone and dizziness and also have pain from my skull down my back seems to be the muscle which run straight down my spine.I also have jaw limitations i can only my mouth so far not able to put three fingers in my mouth without my jaw lock and popping back into joint.I feel heavey headedness where my neck feel not strong enuff to hold up my head. I Do Know That I Clench Really Bad At Night. I Hate To Sleep Its The Worst. I Wake Up Feeling Like Someone Beat My All Night. I Even Wimper In My Sleep My Husband Tells Me. At Night It Hurts And The Next Day I Feel All The Effects Ofthe Night Before

MissHeadache · 08-13-2008, 10:30 AM

Hey there, sorry you're suffering so much. Your symptoms sound very familiar! You say you have a splint and it worked for a while. I was wondering if you ever get it adjusted anymore? They wear down over time as you eat, grind/clench you teeth in your sleep etc so need building up again regularly. A properly designed and regularly adjusted splint should alleviate many sypmtoms of tmj including all the aches and pains you get in other parts of your body. I would be lost without mine. I used to take painkillers all the time but its often only once a week now my specialist has got the height right on my splint (there is a lot of trial and error involved but once you find the right place you will feel so much better). I clench a lot in my sleep too so get my splint built up again every month or two depending on how I'm feeling. I hope this is some use to you. :-)