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Old 12-19-2008, 09:01 PM   #1
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Question newbie on board, much needed help and support!

Hi there!, ive been suffering from tmj for nearly are year now. I'm 20 years old and find it very hard to cope with because it seems to be endless suffering which has taken away many pleasures of mine. I'm currently seeing a specialist who says that i have a displaced disk in the right side of my jaw. I've been wearing a mouth splint every night while I sleep for 5 months now. hoping that my muscles will relax and the disk goes back into place. I can't open wide, is very stiff and can only eat soft food. I would very much appeciate it, if anyone similar to my problem can help me by sharing their stories on their treatment, if any were helpful or did the complete oppisite and what you are going thru . I would love to hear success stories! When i started to have symptoms of pain, i started to stress badly fearing i wouldnt get better which lead me to have panic attacks, loss of weight and prevented me from doing any schooling this year. Therefore i would like to know of any strategies that help relax the mind and body while suffering from tmj. Today, i try to help myself by not thinking about it and to keep my mind occupied but it is always in the back of mind. My heart goes out to each of you, who are suffering from this disability daily and wish you all the best of luck in easing your pain and disfunction. Feel free to ask me any questions as well!

 
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Old 12-21-2008, 04:44 PM   #2
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Re: newbie on board, much needed help and support!

Welcome! I didn't want your first post not to have no response so I thought I would post just to say hello and welcome you to the boards. I do not have a personal success story to share with you at this time but fully understand the pain and suffering you have endured and still experience. Hopefully you see your dr regularly and he is monitoring your progress so you can make a full recovery quickly. Unfortunately most members that do post are those that are struggling with their treatment or symptoms and pain in one way or another but there are members here who have seen improvement or have recovered that check the boards now and then - and maybe they will see your post and share their stories with you. I hope you continue to see improvement and are finally able to put this all behind you at some point and get on with your life.

 
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Old 12-25-2008, 01:13 AM   #3
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Re: newbie on board, much needed help and support!

thanks for your reply thelma louise just wondering how long have you been suffering from it? I don't see my specialist to often just every 2 months so far to check how im going.

 
Old 12-25-2008, 08:35 PM   #4
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Exclamation Re: newbie on board, much needed help and support!

hey there sweety!!

Welcome to the board.. i would of written to you AGES back but i dont have the net at home so i just came on after 2 weeks!!!

I am ALSO you're age!!What symptoms do you suffer??

My threads all indicate my pain of tmj and struggles of EARACHES! Have a read , i apologise if they are not too pretty i have had so many ups and downs!!! that is the only one which plagues me! How about you??

Hope to hear from you soon honey! I want to know your symptoms , we can both work on a health plan thing for you and hopefully we will both recover!! Also tell me your severity!!??

I immensely struggle to study it in fact inflates my earaches!! anyways ill write more when i hear from you! i want YOU to get better so much hey god i know how you feel !!

We are all here for you! im hoping to hear from you soon!!! BIG HUG

 
Old 12-29-2008, 12:52 AM   #5
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Re: newbie on board, much needed help and support!

Hey there temera! thanks for reppplying...i have read your threads about your earached they sound so painful you poor thing! i only had an earache once from tmj unpleasent! I am praying for you and I to get well! my problem is pretty severe...i have a displaced disc in the right side of my jaw, before it happened my jaw use to click, now it has stopped clicking. therefore i cannot open my mouth at full range, feels stiff so i can only eat soft food, i eat so much pasta! Ive been wearing a splint just while i sleep for 5 months now, and my specialist has said i have improved abit. but to me it hasnt felt likee it...also while having this problem i accidently received a knock to which cause a muscle to tighten up and some days i get a bad pain under my top gum Come to think about it i guess i have improved a bit, i couldnt laugh or talk much but now i can do those 2 things im so grateful to have my laughter back! Are you currently seeing a specialist and do you have other symptoms besides your earaches? hope to hear from you sooonnn hun. take care xx

 
Old 12-30-2008, 11:48 AM   #6
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Re: newbie on board, much needed help and support!

I completely understand how you feel. I've wanted to go to soo many bachelorette, birthday and Christmas parties just this month. I missed most of them, and the ones I did go to, I had to leave early because of my headaches and jaw.

I mostly eat soup, canned fruit, applesauce, chili, peanut butter, watery oatmeal and occasionally a grilled cheese sandwhich that I tear apart in little pieces. If I stray from that I can tell a difference immediately after eating. I did loose a lot of weight. The first bit I lost was not from TMJ, I had gained quite a bit of weight in college and starting taking that off before my jaw went crazy. Now I can't even think of running on a treadmill!!!! But I can guess that I lost 10-15lbs just from my jaw. Probably 5 or more in the past 3 weeks. I am short, so that is more than it sounds

I guess I am lucky my jaw wasn't too bad while I was in college. It really only flared up my last year. By my last year, it really didn't matter how many classes I skipped. I know that sounds bad, but I could do just as good without going, most of the work was projects, and the other was just electives. I two months shy of 24 now, but I've been having problems for 2-3 years. I had just turned 22 when I graduated.

I guess I just wanted to let you know you are not alone. I was about your age when it started. I have been up and down since.

I read a book that suggested Yoga helps. I believe the reasoning is it is good for your balance and muscles and also for relaxation. I haven't tried it, but I am about to get yoga for Wii. I feel silly for thinking about doing it, but if it helps then that is great.

I have problems in both sides of my jaw. They take turns flaring up. As far as treatment with my jaw goes, when I take my meds, wear my splint 24/7 (normally I just wear it at night, unless my disc moves--I can tell when it is out of place because my jaw stops popping and I can't open my mouth wide at all. My TMJ Dentist told me to wear it during the day when this happens), use moist heat, eat like I mentioned above, get a back rub from someone, my jaw will usually move back into place in a few weeks. I But I am sorry to say it is always sore, along with most of my other muscles and I usually have the headache with it. I may not have a headache for a few hours each week I hate taking so much medicine.
But like I said earlier, it is up and down all the time....so don't give up!

Good luck to you with your treatment.

 
Old 01-03-2009, 04:19 AM   #7
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NEED HELP!! new to TMJ

I really need some help here. I have had the clicking and popping for as long as i can remember, but the pain just started a few months ago. I broke a molar from grinding my teeth and after the dental repair the joint has taken full revenge!! Today marks EIGHT WEEKS that i have had a severe headache that stretches down into my neck with horrible pain in and around my eyes. Frequent sharp shooting pains in the sides of my face and general feeling of YUCK! i went to a TMJ specialist and have all of the tmj disorders one can have with the exception of disk displacement. Does anyone else have this headache or should i look at another cause for that? They have been treating me with 1500mg of Robaxin twice a day and though it helps me sleep it is not stopping the pain. I have an appointment to get fitted for a mouth piece but what do i do in the meantime? Originally the doctor said that my headache was a sinus infection and i was treated with antibiotics for three weeks with a week between then when that wasn't working they put me on steroids for 10 days. The steroids seemed to help for a couple of days but no real relief.

I am at my wits end! I have lost 12 pounds and am now 5'7" and weight 129 pounds...too thin! All i can eat is soup and pasta without making it worse. I can't sleep, my work is suffering and my husband is going crazy with me. Any info would help. I don't see a lot of people with the same facial pain symptoms as i have so maybe this is something else. I would love to put my mind at ease so anyone out there that can help, Thank You!!

 
Old 01-06-2009, 10:11 PM   #8
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Re: newbie on board, much needed help and support!

i am in the same boat and it is very frustrating. The Robaxin seems to help during the day and i am getting fitted for a night guard tomorrow. I am going to try using a stronger muscle relaxer for night time. I have been doing a lot of research and there is info out there that if you can "reset" the muscles at night it helps the healing in use with the splint.

Good luck to you

 
Old 01-07-2009, 08:25 PM   #9
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Exclamation Re: newbie on board, much needed help and support!

Hi 4fourlegs, does your bite feel lower after the molar repair? I mean can you close your teeth further than before that? Do your front teeth touch when you bite?
I'd suggest checking your bite with a dentist competent in occlusion.

I've been struggling with the tmj pains, ear pains, sinus like symptoms (I don't have any infection) since my back teeth were lowered and the bite totally messed up. Learned from dental websites that the main reason for tmj (95 or 98%??) is caused by bad occlusion.
Living on pain killers is no fun.

Hope all of you will find the cause of your pains and resolve it soon! Just be careful not to have irreversible changes by dentists if you will need any adjustments. Ask them for a back-up solution beforehand!

 
Old 01-11-2009, 08:06 PM   #10
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Re: newbie on board, much needed help and support!

hey everyone has posted such wonderful and supportive replies,

i know how everyone feels with the eating issues, i have never had trouble opening my jaw but what happens is when my earaches come, i feel like throwing up so i have absolute no appetite!

m4ria88 no worries for the reply honey, i'm always here for you!!! i am currently just seeing my dentist which i met last may,and i have a upper and lower splint. i have worn these splints since last may! i also had displacement which it took them 14 months to work out , i was so angry because they originally had be on this NTI splint but it didn't help me at all , as i heard they are good for headaches but i never have had a tmj headache , ever. All i have is the earaches which are usually accompanied by jaw and facial pain but basically thats all liveable but not my earaches that is my prime symptom. Sometimes i wish i had another symptom as i cant take earaches , i want head pain instead but i will never know if its worse. so i should just accept what i have. Its just so so sharp the pain . I have just posted a post discussing my 09 update, have a read, you can see i fluctuate.

Hey but m4ria88 seriously you're displacement can be fixed, mine is! i had the same displacement and after having a lower and upper splint which is called i repositioning splints im sure , x-rays indicate my displacement is gone but the thing is i suffer my earaches still indicating i probably have muscle issues.. oh i dont know im confused. but i have faith you will recover. Do you get occasional earache? Write back and let me know how you are!!

Lindy23 i am so proud that you are doing yoga! Good on you How is it going, has it helped your headaches?? That is also wonderful you have completed you're degree, do you think it flares in times of stress?

fourlegs how is the new splint coming along beautiful? Any progress? Stillhope are you also on splint therapy , you also have earaches like me Gosh they hurt so so much!!! Do you think the ears flare in times of stress?

I hope to hear from all of you soon

 
Old 01-11-2009, 08:19 PM   #11
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Re: newbie on board, much needed help and support!

Hi temera2, thanks for your interest in all of us. No, I am not wearing a splint. The one that I had made was clearly making things worse right away and I do not want to add more damage to my tmj, so I don't wear it; just lost a lot of $.
I had strong earaches like there were metal rods in my ears or so. I also had the ears compressed and "clogged". As I learned causes are different. The first kind of pain happens if my jaw was forced to move too much forward, usually the chin moves forward too like trying to reach smth. , or the head drops down. Clogging is more from hitting too hard on some teeth.
I'd suggest, try to rest your head and jaw by not allowing it to close, hopefully, your pain will ease up. Then watch what happens with the jaw when you do close your teeth.

Making observations and educating ourselves is what can help!

Surely, in times of stress everything gets worse: muscles tense up, pull the bones, the bones press on nerves, nerves make more muscle spasm and here we go...

 
Old 01-12-2009, 12:01 PM   #12
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Re: newbie on board, much needed help and support!

Hi Temera, I am sorry to hear that you are not getting better. I read your 09 update, so this is kinda for both posts. My ears hurt as well, but not all the time, just when my jaw is really bad. My right ear has been hurting/sore for the past 2 months, with headaches, and muscle pains all over. Is yours sore when you touch it on the outside, like a bruise? Mine just started doing that, it use to only hurt from the inside. I can't sleep on that side or anything, because the pain wakes me up. It had been a couple months before I had a displacement, though, so I guess I should consider myself lucky for that break. I still had pain and soreness, but not like what I have now.

Unfortunately I have not felt good enough to start yoga. I have no energy and just want to lie in bed with a heating pad all the time.

I don't think stress is a factor with my jaw. I am a very easy going person when I feel good. Mentally I am not stressed, but when I start feeling really bad and getting physically stressed out, then I get stressed out mentally. I actually think I am getting a little depressed because my quality of life is not so good right now. It probably doesn't help my jaw out, but stress isn't the cause.

I have been noticing cold weather is a MAJOR cause. I am glad I live in South Louisiana! It is an unusally cold winter here, though. It actually snowed last month. It's been 8 years since we've seen snow. I can't handle it, and it is taking a toll on my jaw and muscles for sure. Hopefully I will make an improvement this spring.

You said your dentist told you that with splint therapy your disk shouldn't dislocate? Mine told me one time, I was crying in his office--embarrassing, but I couldn't handle the pain--that it will not always be in the right spot. I had origanally went in for my left side dislocated, and my right side in and out all the time. Now, I do believe it is just my left side. If it doesn't pop in every morning, it will stay out for about two weeks. So I don't know if it is just how my jaw is, but he did say I will probably have to deal with it for the rest of my life

I am glad I found this site, to see that there are other things you can do to try to help with everything. I just thought since I saw a specialist, he knew the best thing to do for me. I know that's not the case anymore, he just knows how to do the best thing he could do for me. I am lucky he is a great guy, and referred me to an ortho in my area who actually took classes with him concentrating with TMJ. Can't wait for my braces!! I haven't scheduled anything yet, but it will be in the next 6 months. He also said he would recommend surgery to push my bottom jaw back and to bring my top jaw fwd, but after hearing all these terrible stories about TMJ surgery, I am very reluctant to consider this.

Good luck to you.

 
Old 01-21-2009, 04:33 AM   #13
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Re: newbie on board, much needed help and support!

Oh temera! it's so nice of you giving so much support to all of us! i have read your update and i see your earaches arn't getting better i don't get any earaches, my symptoms is mostly stiffness due to my displacement. I think you should try and go see a specialist who specialises in tmj and to explain why you get these awful earaches. I'm going to see my specialist in 2 more weeks to see how i'm going and to start physio therapy. hopefully that will help me. I see your displacement got fixed, how long did it take for you?
Quote:
Originally Posted by temera2 View Post
hey everyone has posted such wonderful and supportive replies,

i know how everyone feels with the eating issues, i have never had trouble opening my jaw but what happens is when my earaches come, i feel like throwing up so i have absolute no appetite!

m4ria88 no worries for the reply honey, i'm always here for you!!! i am currently just seeing my dentist which i met last may,and i have a upper and lower splint. i have worn these splints since last may! i also had displacement which it took them 14 months to work out , i was so angry because they originally had be on this NTI splint but it didn't help me at all , as i heard they are good for headaches but i never have had a tmj headache , ever. All i have is the earaches which are usually accompanied by jaw and facial pain but basically thats all liveable but not my earaches that is my prime symptom. Sometimes i wish i had another symptom as i cant take earaches , i want head pain instead but i will never know if its worse. so i should just accept what i have. Its just so so sharp the pain . I have just posted a post discussing my 09 update, have a read, you can see i fluctuate.

Hey but m4ria88 seriously you're displacement can be fixed, mine is! i had the same displacement and after having a lower and upper splint which is called i repositioning splints im sure , x-rays indicate my displacement is gone but the thing is i suffer my earaches still indicating i probably have muscle issues.. oh i dont know im confused. but i have faith you will recover. Do you get occasional earache? Write back and let me know how you are!!

Lindy23 i am so proud that you are doing yoga! Good on you How is it going, has it helped your headaches?? That is also wonderful you have completed you're degree, do you think it flares in times of stress?

fourlegs how is the new splint coming along beautiful? Any progress? Stillhope are you also on splint therapy , you also have earaches like me Gosh they hurt so so much!!! Do you think the ears flare in times of stress?

I hope to hear from all of you soon

 
Old 01-21-2009, 05:38 AM   #14
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Exclamation Re: newbie on board, much needed help and support!

hey my beautiful friends!!

Thank you so much for all you're replies!

Stillhope i am so sorry the splint didn't work out? What is your action plan for the moment? I know Valium and endep have helped with the earaches.. Are you on drug therapy , we need to work out a way to cure our symptom hey.. perhaps try a repositioning splint? i know the costs are crazy hey honey but do you think that might do the trick?? You have a muscular issue hey?

Hey lindy23 yeah my ears fluctuate in pain , its usually sharp and out of now where but most of the time its accompanied by jaw pain , no it doesn't feel bruised however it just feels like my jaws have run a marathon and are real tired if that makes sense! i sound crazy, sorry! okay yeah i know how those earaches are , exactly how you demonstrate.. do you know what helped ease the severity however, my splints.. it used to be bone on bone but now i think its muscular so these earaches aren't half as painful! The drugs i posted on my other post do help also? Are u on any drug therapy? Oh gosh i totally understand how you feel with mentally tired from pain but honey you i know this is hard but you must keep going! i know its so so so hard but the splints can fix our displacements like it has mine and then all we will have to work out is how to remove our muscular pains then we are cured !!! do you agree? I hope this is the case for us all!! Have you tried upper and lower repositioning splints?? ARGHHH BIG HUG!! i live in the hottest of places so its always warm but i cant stand the cold... dont worry honey spring will be on its Way!!! i cannot understand why i never have had headaches
I know though i had tension headaches for 2 weeks then it turned into nasty earaches and it never ever became a headache but just that earache. Honey tell me why the splints couldnt fix you're displacement?? That should have?? Were you on upper and lower ones?? they are known as American block splints Dont do the surgery unless you are convinced the splint therapy hasn't worked.. tell me more about your splint experiences?

m4ria88 thank you so much for your kind words! Thank you also for replying , i care for you all so much on this board.. i wish we would all recover NOW!! But i am grateful to have you all. I am not sure how long it took for the displacement to get corrected honey but the earaches were less severe in my splints since I've had them in .. my dentist told me 6 months later the disc has recaptured but thats why i'm confused because why o i have earaches still.. they aren't as bad as without the splint .. gosh they were BAD , i shudder to think of that pain but i know with the splints i saw heaps of recovery.. if i could just stop these muscle spasms earaches i will be set free. i hope this is the cure for us all.. but tell me about you're specialist.. i am in a tight spot as i dont know if i should be patient and trying waiting this out with my splints or what?

But i hope to hear from you all soon , you are all in my heart!!! Take care my beautiful friends and may our pain free days be here soon!!!

 
Old 01-21-2009, 09:05 AM   #15
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Re: newbie on board, much needed help and support!

Let me try to get this all in! LOL. I wear a night guard on my upper. When I first went in I had a dislocation of my left disc and displacement of my right, with muscular sprains on both sides. I wear it every night and during the day when my discs are out of place. I am taking Lodine and Soma when I feel it is bad. I also just started taking Natural TMJ relief created by Dr. Jeffrey Wheaton. It is a mix of herbs, vitamins and minerals. I will let everyone know how that helps. Soma seems to be the only muscle relaxer I can take. My disk has recaptured for the moment. My problem is with my bite and the muscles, so my dentist says at least until I fix my bite, I will have problems with my disks dislocating. It is not always the same one. Sometimes it is both. So I am happy for the moment, but at the same time waiting for my jaw to dislocate. I still have clicking and muscle soreness in my jaw and neck, and a headach but at least I can open my mouth wider, and the headaches are not half of what they were.

Good luck to you Temara!

 
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