Fibromyalgia mentioned during TMJ visit
So I finally had a visit with a specialist about a week ago and he is more than willing to help me at the finr tune of $2900 out of pocket. I am living with it bearably right now...actually doing pretty good since I got my diagnosis. Who knows- maybe I am doing better b/c I am not thinking about it as much.
Anyway, long story short this dr. came in after reviewing nurse notes, CAT scan, and MRI. He says "I think I know what is wrong with you and my dr. has the same thing". I looked at him like a deer in headlights and he says
I was like, WHAT? How could he know all this? ALl I knew about fibromyalgia is that it is hard to diagnosis, no known cure, and you basically live with it. I had handed him a very lengthy letter about all that was going on with me for the past year b/c I did not feel that his questionnaire would cover it all. This is probably where he got his diagnosis. Long story short, he did not talk about it much and moved on to my jaw.
Well, this whole "fibromyalgia" thing has been bugging the crap out of me so I thought I would look it up and try and put two and two together based upon his comment. I was appalled. I have about 85% of the symptoms. I don't really know where to go from here with it since I am not dying in pain, but I just thought it strange and wanted to share this with everyone.
(PS, he wants me to do a sleep study for trial and error purposes in treatment but I am not going to do it for I do not have any symptoms whatsoever).
I bolded what I have wrong with me:
Fibromyalgia meaning muscle and connective tissue pain, is a disorder classified by the presence of chronic widespread pain and a heightened and painful response to gentle touch (tactile allodynia). Other core features of the disorder include debilitating fatigue, sleep disturbance, and joint stiffness. In addition, persons affected by the disorder frequently experience a range of other symptoms that involve multiple body systems, including difficulty with swallowing, functional bowel and bladder abnormalities (my interstitial cystitis), difficulty breathing, diffuse sensations of numbness and tingling (non-dermatomal paresthesia), abnormal motor activity (i.e. nocturnal myoclonus, sleep bruxism), and cognitive dysfunction (brain fog). An increased prevalence of affective and anxiety-related symptoms is also well known.