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Old 08-06-2009, 08:09 AM   #1
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All kinds of questions

I have appreciated all the input on this board and am frequently amazed at the amount of problems that this condition creates. I know it's hard to deal with on a day to day basis.

First question (eventually): I noticed even more changes about a year after a car accident about 8 years ago: very sore jaw joint, difficult to open wide, spasms with inability to chew food, severe and constant pain into neck and around to spine, and so forth. So I ended up paying for my own appointment to a TMJ specialist, filled out the questionnaire, had the examination involving mostly observation and measuring, only to be told that TMJ was not the issue. I was then offered a trip to a provincial, multi-disciplinary clinic involving several specialists at a fee of $280.00. At the time, my thought was that clearly, in addition to my cervical spine deterioration, I also had jaw problems, and if this dr couldn't figure that out, then why would I want to spend that kind of $ to delve into other areas? Maybe that was a mistake. My question is: even though a dental xray only showed changes called 'rounding' and arthritis, is this condition so hard to diagnose, or was I just in the company of an unqualified specialist that day? He did seem super depressed and withdrawn, but dr with personality problems is nothing new.

I read a post from AndreaL on another thread, who stated birth problems were the cause of her situation. I appreciated that post and was wondering if you would mind telling me exactly what happened. I have had so many severe neck problems, to name one, that I have been asked more than once if something happened at birth or invitro. My mom would not provide me with an answer so I will never know. So I have always suspected something, even the possibility of being severly shaken, although I don't know if such an incident would create all this. Had seizures much of the time too. So that is why I am curious about this, although nothing can be done anyway.

Because of the spine/jaw problem combination, I am often confused as to where the problems are coming from; we are all connected and those nerves are constantly 'talking' back and forth, I guess. (more like screaming, actually).

Thanks all for your informative posts,

choc

 
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Old 08-06-2009, 12:14 PM   #2
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Re: All kinds of questions

Quote:
Originally Posted by trychocolate View Post
I have appreciated all the input on this board and am frequently amazed at the amount of problems that this condition creates. I know it's hard to deal with on a day to day basis.

First question (eventually): I noticed even more changes about a year after a car accident about 8 years ago: very sore jaw joint, difficult to open wide, spasms with inability to chew food, severe and constant pain into neck and around to spine, and so forth. So I ended up paying for my own appointment to a TMJ specialist, filled out the questionnaire, had the examination involving mostly observation and measuring, only to be told that TMJ was not the issue. I was then offered a trip to a provincial, multi-disciplinary clinic involving several specialists at a fee of $280.00. At the time, my thought was that clearly, in addition to my cervical spine deterioration, I also had jaw problems, and if this dr couldn't figure that out, then why would I want to spend that kind of $ to delve into other areas? Maybe that was a mistake. My question is: even though a dental xray only showed changes called 'rounding' and arthritis, is this condition so hard to diagnose, or was I just in the company of an unqualified specialist that day? He did seem super depressed and withdrawn, but dr with personality problems is nothing new.

I read a post from AndreaL on another thread, who stated birth problems were the cause of her situation. I appreciated that post and was wondering if you would mind telling me exactly what happened. I have had so many severe neck problems, to name one, that I have been asked more than once if something happened at birth or invitro. My mom would not provide me with an answer so I will never know. So I have always suspected something, even the possibility of being severly shaken, although I don't know if such an incident would create all this. Had seizures much of the time too. So that is why I am curious about this, although nothing can be done anyway.

Because of the spine/jaw problem combination, I am often confused as to where the problems are coming from; we are all connected and those nerves are constantly 'talking' back and forth, I guess. (more like screaming, actually).

Thanks all for your informative posts,

choc
Hi-Just curious, did you have a rear impact collision? Your discs could have been displaced by the whiplash..Have you ever had an MRI? I also had a bad car accident in 1994 i believe, whiplash, and I never really got the proper rehab, treatment for it. My main problem which caused it all was bad orthodontics. Take care----J.

 
Old 08-06-2009, 02:28 PM   #3
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Re: All kinds of questions

Yes, jmitchell, was a rear-ender but have had neck problems all my life with it turning chronic a year after the accident. Have had a few MRI's with postings on the 'spinal cord' board because of numerous symptoms resulting from osteo, DDD, congenital stenosis, and so forth. Do have some bulging disc problems in cervical and lumbar. The jaw really manifested itself as well, so the combination is something I'm trying to understand. Like why jaw movements can be felt all the way into neck and shoulder, but it's all probably because of too much affecting the nerves in that whole area and weakening the whole set-up. There have been posts by some very nerve-educated people on that board, so I have appreciated that information. Am getting some cranial sacral work done in jaw area as well, so will see if that can re-align things and bring relief of some kind.

Did you have a severe whiplash inury? I had sharp pain through my neck/skull at the time of the accident and only neck pain afterwards, but nothing severe. I had to curtail certain activeties but I was just told 'tissue damage.' Good one. Xrays just showed arthritis. So it must have triggered underlying conditions that just 'took off' a year later, until now, going on 7 years now. Sounds like someone really messed up with your orthodontics, which would be terrible as it is invasive to begin with and patients deserve more than that after what they go through sometimes.

Thank you for posting,
choc

 
Old 08-06-2009, 06:11 PM   #4
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Re: All kinds of questions

Quote:
Originally Posted by trychocolate View Post
Yes, jmitchell, was a rear-ender but have had neck problems all my life with it turning chronic a year after the accident. Have had a few MRI's with postings on the 'spinal cord' board because of numerous symptoms resulting from osteo, DDD, congenital stenosis, and so forth. Do have some bulging disc problems in cervical and lumbar. The jaw really manifested itself as well, so the combination is something I'm trying to understand. Like why jaw movements can be felt all the way into neck and shoulder, but it's all probably because of too much affecting the nerves in that whole area and weakening the whole set-up. There have been posts by some very nerve-educated people on that board, so I have appreciated that information. Am getting some cranial sacral work done in jaw area as well, so will see if that can re-align things and bring relief of some kind.

Did you have a severe whiplash inury? I had sharp pain through my neck/skull at the time of the accident and only neck pain afterwards, but nothing severe. I had to curtail certain activeties but I was just told 'tissue damage.' Good one. Xrays just showed arthritis. So it must have triggered underlying conditions that just 'took off' a year later, until now, going on 7 years now. Sounds like someone really messed up with your orthodontics, which would be terrible as it is invasive to begin with and patients deserve more than that after what they go through sometimes.

Thank you for posting,
choc
HI--Yes, I did have a pretty severe whiplash injury, which I'm sure made the tmj much worse, but at the time, the ER docs didn't give me an MRI to check my jaw out, I honestly don't think they even take that into consideration. They just did a general neck x-ray and sent me on my way with pain meds and muscle relaxers. Little did I know, 15 yrs. later I would end up in the shape I'm in. Wow, if we could only turn back the clock, I would have never gotten braces in highschool to begin with, I didn't even have a bad smile at all, just a few slightly crooked teeth on the side. Now I have a horrendous health problem that I'm trying to overcome. An orthodontist in Ca. that I spoke to a while back said that we wouldn't have enough body bags in the world for people that have had bad ortho. work done. That's really scary when you think about it. Also, I can't tell you how many people I've come across who had both discs displaced by some yahoo that did their wisdom teeth extraction. Anyways, I'll stop my rambling. Looking forward to another late night of trying to sleep comfortably....

 
Old 08-07-2009, 07:47 AM   #5
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Re: All kinds of questions

Quote:
Originally Posted by trychocolate View Post
I read a post from AndreaL on another thread, who stated birth problems were the cause of her situation. I appreciated that post and was wondering if you would mind telling me exactly what happened. I have had so many severe neck problems, to name one, that I have been asked more than once if something happened at birth or invitro. My mom would not provide me with an answer so I will never know. So I have always suspected something, even the possibility of being severly shaken, although I don't know if such an incident would create all this. Had seizures much of the time too. So that is why I am curious about this, although nothing can be done anyway.
Hi Choc,

Only just noticed this post.

Sorry if I repeat what I have already posted in previous threads (I forget what I post and am aware that I tend to 'waffle' on a bit lol!)

My symptoms of TMJD started when I was around 25 and they have grown in number ever since, along with the gradual increase of pain and discomfort. I was 28 when TMJD was confirmed by a dentist but all the dentists I saw never seemed too concerned with what probably caused my jaw problem (they also never really ackowledged the relationship between my TMJD and symptoms of pain throughout the rest of my body)

Through researching about TMJD, to grasp an undertsanding of it for myself (because I felt the dentists were'nt able to give me a good enough explanation) I came across numerous accounts of babies being born by forceps delivery developing TMJD in later life. This rang alarm bells with me because I was born by forceps. However when mentioning this to any of the dentists I saw they dismissed this as being the cause. I was relieved when I met my Osteodontic who is very confident that in fact being born by forceps would explain many if not all of the symptoms I experience.

When delivered by forceps, there is some degree of force used so risk is inherent in the procedure. Risks can include facial nerve damage, skull fractures, and cerebral palsy. The way my osteodontic explained it to me is that when being delivered, they twisted and pulled me out, where the forceps grasped my head and they then pulled, it meant that the part of my head that was clamped in the forceps stayed put whilst the rest of my face (i.e. jaw) and the rest of my body were twisted and pulled, causing damage at birth. unfortunately the only evidence of any damage at the time was a mark to the corner of my eye but of course once the mark had gone and the swelling went down, Dr's though all was well. As I grew and my bones formed and developed, they did so in the wrong way, meaning that by the time I reached my mid 20's (when apparently our bones are finished developing) that's when the real damage became evident.

This makes sense to me as the reason for my TMJD and other problems throughout my body because i can rule out ever being involved in any kind of accident, ever, so it's my only explanation.

Sorry if I waffled, but hope that this offers some undertanding?

Last edited by AndreaL; 08-07-2009 at 07:52 AM.

 
Old 08-07-2009, 05:15 PM   #6
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trychocolate HB User
Re: All kinds of questions

Thank you AndreaL and jmitchell for your most helpful replies. I know you may feel as though you are repeating yourselves at times, but sometimes there are many posts to go through and your updates are appreciated.

I am reading your posts on other threads and learning so much about this condition. I have been enduring many symptoms for so long and been pursuing the spinal cord route because of the similarities. I really need this kind of information as I am headed into a multi-disciplinary, pain-type center next month and am going to address this whole jaw dysfunction area as 'it fits' and further MRI and specialized xrays might be needed. In looking at how you are dealing with this and what you are going through, I will be interested to see what reaction I will get at this clinic.

Thank you again for your help and I will continue to be educated by your posts and others on this board,
choc

 
Old 08-07-2009, 07:00 PM   #7
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Re: All kinds of questions

Quote:
Originally Posted by trychocolate View Post
Thank you AndreaL and jmitchell for your most helpful replies. I know you may feel as though you are repeating yourselves at times, but sometimes there are many posts to go through and your updates are appreciated.

I am reading your posts on other threads and learning so much about this condition. I have been enduring many symptoms for so long and been pursuing the spinal cord route because of the similarities. I really need this kind of information as I am headed into a multi-disciplinary, pain-type center next month and am going to address this whole jaw dysfunction area as 'it fits' and further MRI and specialized xrays might be needed. In looking at how you are dealing with this and what you are going through, I will be interested to see what reaction I will get at this clinic.

Thank you again for your help and I will continue to be educated by your posts and others on this board,
choc
Hi again, If you want to get a bunch of good info as well, read Marlene's posts from 2003 I believe. I think I already told you she was cured by Dr. Brock Rondeau, in Toronto, canada I believe. There's a ton of post by her, but you might learn something good from her posts. Take care!! Jill.

 
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