Originally Posted by dizzynotblonde
I have a geat deal of pain in my upper jaw area (5 years now), have had 2 teeth pulled w/o any relief. Dentists say they see nothing wrong so it must be sinus - ENTs say they see nothing wrong so it must be dental. FINALLY I was referred to a maxillofacial surgeon who says it's TMJ. I've always heard this is a rip-off, but he gave me a shot of novocaine in the joint and w/in 5 minutes the pain was markedly better. He says I need arthroscopic surgery, with a bite splint and PT afterwards. This will run me at LEAST $3500 and he doesn't take my insurance!
He says it's "referred pain" from the joint. I've also suffered from an undiagnosed dizziness for the past 6 years, and my ears ring like crazy. He says these symptoms MAY be alleviated by the surgery as well. So far he hasn't quoted me any particular chances of success, tho he does say it's not a cure-all.
I find this whole idea quite frightening. He says the cartilage is completely out of the joint, and something about a 'sac' that may have already burst. I'm looking for info. Has anyone here been in a similar situation, had this surgery, or suffered from these symptoms? This is the first time I've been offered ANY possibly "solution" to my pain and I'd love to feel better - but that's a LOT of money! If it works it'd be well worth it. Any thoughts anyone? Thanks!
My theory: Dentists and ENT's like to play "hot potato". They don't want to be responsible if they drop it but they don't want to find out how it can be "cooled down" so to speak.
I think most, if not all, TMJ therapy is unnecessary and you should see a non-surgical TMJ specialist. The "vets" on here will all tell you that. Only specialists understand the complexity of this problem.
The "cartilage" they are speaking of is simply a cushion between two bones: the maxilla and mandible. whatever doctor said sac, do me a favor and NEVER SEE HIM AGAIN. That's a disc and it's not going to pop, it may slide out of place cause the joint and the two joints to touch becoming very painful but that's pretty much what it is. You have one in your knee also called the meniscus that can slide out of out place with people who suffer knee problems.
The ear problem is because when the disc does slip the bone (mandible) it presses on the ear canal causes pain, dizziness, disorientation, and vestibular symptoms. That is my main condition. Pain does not compare to the disorientation whatsoever. Because your jaw is acting up and probably out of alignment which is why the bones are shifting therefore the muscles shifts, you will have spasms as well which are painful.
SEE A TMJ DOCTOR. Dentist, Orthodontists, ENT's, Neurologists are, for the most part, clueless because this was not in their field of study when they treated TMJ. Now that medicine has progressed a lot more information has been figured out and new technologies are able to be out of pain.
If you need any information, feel free to messages me on here. I'd be willing to even speak on the phone if you like and help you find a doctor. I've had a lot of help from my new family who has stood by me and given me a stress free environment to heal.