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Old 10-05-2009, 06:14 PM   #1
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Possible TMJ issue - not yet diagnosed

For over a year now Ive had some very strange symptoms that kind of started out of no where. Ive seen numerous doctors, both in and out of state. Having spent thousands on doctor bills and still no definite answer as to whats causing my problems.

My symptoms consist of neck pain/stiffness, tension like headaches (constant pressure around my head), occipital headaches (at base of skull), some left sided shoulder pain, burning and tingling in my upper back and down left arm at times, left sided jaw pain that arises intermittently, occasional dizziness but not to the point of falling, occasional nausea, dry feeling in eyes and visual floaters, fullness in ears but no odd sounds or ear pain, slight pop in left side of jaw but no severe pain or locking. My head feels like Im constantly hungover is the best way to describe it.

The majority of my symptoms are classic tmj. Ive had brain and cervical spine mri's, mra's, ct scans, bloodwork, seen ent specialists, but no one has checked my jaw.

Most of my symptoms existed way before my jaw ever started hurting at all and even now, the jaw pain isnt consistant or that severe. Is it common to have tmj issues but no jaw pain or pain not that severe but thats causing many other serious symptoms?

Where does most neck pain occur with tmj? The back of my neck is always sore/stiff and the left side which is where my jaw pops.

Are there any good doctors located in South Carolina? Ive done a search and I can only find 1 true specialist near me. His name is Danny Crout. Does anyone have any information on him? How can I know if hes board certified?

 
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Old 10-05-2009, 10:30 PM   #2
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Re: Possible TMJ issue - not yet diagnosed

What you describe is pretty much identical to what I have experienced, little pain in the actual TMJ but a whole bunch of knock on problems.

Symptoms coming out of nowhere (i.e no car accident, traumatic event etc), neck pain, horrible headaches, tingling in hands, dizzniness, dry feeling in eyes, clicking, but not much pain in the actual TMJ itself. Diagnosis was bilateral disc displacement.

The muscles that open your jaw are in the front of your neck so if there in any problem with the TMJ they will spasm and cause pain and as the neck is an interconnected whole the ones at the back will be affected as well.

Make sure the specialist you go to does good diagnostics; x-rays aren't enough, you need MRIs of the TMJs to show up any soft tissue problems.

 
Old 10-06-2009, 08:08 AM   #3
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Re: Possible TMJ issue - not yet diagnosed

Quote:
Originally Posted by not4sakn View Post
For over a year now Ive had some very strange symptoms that kind of started out of no where. Ive seen numerous doctors, both in and out of state. Having spent thousands on doctor bills and still no definite answer as to whats causing my problems.

My symptoms consist of neck pain/stiffness, tension like headaches (constant pressure around my head), occipital headaches (at base of skull), some left sided shoulder pain, burning and tingling in my upper back and down left arm at times, left sided jaw pain that arises intermittently, occasional dizziness but not to the point of falling, occasional nausea, dry feeling in eyes and visual floaters, fullness in ears but no odd sounds or ear pain, slight pop in left side of jaw but no severe pain or locking. My head feels like Im constantly hungover is the best way to describe it.

The majority of my symptoms are classic tmj. Ive had brain and cervical spine mri's, mra's, ct scans, bloodwork, seen ent specialists, but no one has checked my jaw.

Most of my symptoms existed way before my jaw ever started hurting at all and even now, the jaw pain isnt consistant or that severe. Is it common to have tmj issues but no jaw pain or pain not that severe but thats causing many other serious symptoms?

Where does most neck pain occur with tmj? The back of my neck is always sore/stiff and the left side which is where my jaw pops.

Are there any good doctors located in South Carolina? Ive done a search and I can only find 1 true specialist near me. His name is Danny Crout. Does anyone have any information on him? How can I know if hes board certified?
HI--look on his website or call his office and make sure he belongs to the American Academy of Orofacial pain, also, the American Academy of craniofacial pain. It's a huge plus if he's a Functional Jaw Orthodonist as well, because they understand the jaw/teeth relationship better than a regular ortho.--especially if you need braces in the phase 2 part of treatment. Take care...J.

 
Old 10-06-2009, 09:46 AM   #4
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Re: Possible TMJ issue - not yet diagnosed

In addition to what others have suggested you may want to see an upper cervical chiro or orthoganist - many times alignment issues with the verterbrae of the c-spine do not appear abnormal on scans or film - especially if the discs are not herniated or bulging or deteroriated in some way - but c-spine problems can induce symptoms similar to tmj - even for those with tmj - most of the symptoms are caused by the affects of the tmj dysfunction on the neck's alignment. If you do go for an MRI of the jaws and it shows nothing wrong or abnormal then definitely go see a cranial chiro, upper cervical chiro or orthoganist.

 
Old 10-06-2009, 10:43 AM   #5
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Re: Possible TMJ issue - not yet diagnosed

I had braces when I was a teenager so i shouldnt need them again.

As far as cervical spine tests and doctors I've seen here they go...

3 neurologists
1 neurosurgeon
1 orthopaedist
physical therapist
massage therapist
atlas orthogonist
chiropractor

Cervical spine ct scan,mri, and mra

The only thing they saw were bone spurs the surgeon said was not causing nerve impingement or narrowing the canal at this point.

Here's the doctors affiliations that I'm seeing next week...

Diplomate - American Board of Orofac Pain Diplomate — American Board of Gene Dentistry American Academy of Craniofacial Pa Academy of Dental Sleep Medicine Carolina Sleep Society American Dental Association Academy of General Dentistry South Carolina Dental Association Spartanburg County Dental Society Greenville County Dental Society

Last edited by not4sakn; 10-06-2009 at 11:17 AM.

 
Old 10-06-2009, 11:07 AM   #6
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Re: Possible TMJ issue - not yet diagnosed

Here's a list of the affiliations and credentials of the doctor I'm seeing...

Diplomate - American Board of Orofac Pain Diplomate — American Board of Gene Dentistry American Academy of Craniofacial Pa Academy of Dental Sleep Medicine Carolina Sleep Society American Dental Association Academy of General Dentistry South Carolina Dental Association Spartanburg County Dental Society Greenville County Dental Society

 
Old 10-06-2009, 01:23 PM   #7
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Re: Possible TMJ issue - not yet diagnosed

Quote:
Originally Posted by not4sakn View Post
Here's a list of the affiliations and credentials of the doctor I'm seeing...

Diplomate - American Board of Orofac Pain Diplomate — American Board of Gene Dentistry American Academy of Craniofacial Pa Academy of Dental Sleep Medicine Carolina Sleep Society American Dental Association Academy of General Dentistry South Carolina Dental Association Spartanburg County Dental Society Greenville County Dental Society
Hi again--I got tmjd from braces, and phase 2 will be braces again to correct the horrendous bite, or lack of that my old ortho gave me. In your case, I hope you don't need them again, but you may. I hope everything goes well. You can post your doctor's name, not his website, and we can check him out if you'd like.
Good luck, and best of health to you.

 
Old 10-06-2009, 01:55 PM   #8
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Re: Possible TMJ issue - not yet diagnosed

I think I got my problems from childhood orthodontics as well. He took out 4 premolars, said I had 'overcrowding'.

I know now they hardly ever do this.

 
Old 10-06-2009, 09:20 PM   #9
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Re: Possible TMJ issue - not yet diagnosed

Quote:
Originally Posted by jmitchell View Post
Hi again--I got tmjd from braces, and phase 2 will be braces again to correct the horrendous bite, or lack of that my old ortho gave me. In your case, I hope you don't need them again, but you may. I hope everything goes well. You can post your doctor's name, not his website, and we can check him out if you'd like.
Good luck, and best of health to you.
Thanks.

The doctor I'm going to see is Danny Crout in spartanburg sc.

How common is it to have all the other symptoms of tmj before your jaw ever starts hurting?

 
Old 10-06-2009, 11:28 PM   #10
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Re: Possible TMJ issue - not yet diagnosed

Hi,new here.

I was going to post a new post but this is related. I don't have any popping sound, but I do feel a sort of tightness, i guess u can call it, or a feeling of congestion in jaw and cold in throat which moves to behind ears, and a lot of nausea, some neck and shoulder pain. Sometimes dizziness and lightheadness. Could this be TMJ. I've never heard of this until i googled my symptoms. I've been my doctor, to a walk in clinic several times, I've even been to emergency.

I have had a flu before all this started and sinuses. Doctors all seem confounded. I'm really concerned. The nausea especially is so horrible. I can't sleep. Oh should add one or two days, I feel ok, then nausea and throat feeling comes back.

Last edited by sharpie205; 10-06-2009 at 11:32 PM.

 
Old 10-07-2009, 04:55 AM   #11
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Re: Possible TMJ issue - not yet diagnosed

Its odd that you mentioned having the flu before your symptoms. I too had a bad cold that lasted about a month before going away completely prior to my symptoms as well. Mine came on about 6 weeks later.

I've had numerous tests and labs drawn that tested for viral infection though so it could just be a coincidence.

 
Old 10-07-2009, 10:47 AM   #12
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Re: Possible TMJ issue - not yet diagnosed

Quote:
Originally Posted by sharpie205 View Post
Hi,new here.

I was going to post a new post but this is related. I don't have any popping sound, but I do feel a sort of tightness, i guess u can call it, or a feeling of congestion in jaw and cold in throat which moves to behind ears, and a lot of nausea, some neck and shoulder pain. Sometimes dizziness and lightheadness. Could this be TMJ. I've never heard of this until i googled my symptoms. I've been my doctor, to a walk in clinic several times, I've even been to emergency.

I have had a flu before all this started and sinuses. Doctors all seem confounded. I'm really concerned. The nausea especially is so horrible. I can't sleep. Oh should add one or two days, I feel ok, then nausea and throat feeling comes back.
HI there--you might want to seek out an excellent osteopath for a consult. You may be able to get an idea of what's happening going that route. Doctor's don't know how to treat tmj, if that's what's wrong. You may have some sort of muscle issue, especially regarding the SCM muscle. A good Cranial sacral therapist or osteopath might be able to give you some answers. Good luck..

 
Old 10-07-2009, 02:41 PM   #13
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Re: Possible TMJ issue - not yet diagnosed

HI

Thanks for the replies. I'll try and see if I can get to an osteopath.

 
Old 10-12-2009, 08:33 PM   #14
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Re: Possible TMJ issue - not yet diagnosed

I saw the TMJ Dr. Today and he was very nice. We discussed a lot of stuff today. He made an impression for a custom bite guard. It's going to be around $800 and luckily my insurance is paying some of it. Is this a decent price?

He also recommended I change my sleeping habits and get my arm out from under my pillow. He said this added stress is terrible for me.

Last edited by not4sakn; 10-12-2009 at 08:36 PM.

 
Old 10-14-2009, 07:29 PM   #15
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Re: Possible TMJ issue - not yet diagnosed

You have the classic symptoms of TMJ disfuction. Call Myotronics in Seattle and ask them for a specialist in the area but only one who has been using their products for at least 10-15 years. Don't get some kid just out of dental school. It takes a lot of years of treating TMJ to really perfect treatment. Also get to an endocronologist and have your thyroid checked.Also their is a ligimate in the neck that can become calcified and as you turn your head, lean over etc. it can put pressure on the artery and cause dizziness, nausea, pain etc. It can be seen on a simple panoramic x-ray or a CT tomography x-ray. We see it all the time. These people think they are crazy cause no one can figure out what happening. Once its removed they feel much better. Sounds like you are also having lots of muscle spasms. Those buggers can cause lots of your symptoms too. Magnisum Malate is a good source of magnisum to help. At least 800 mg a day initially.All and all the TMJ can cause so many problems down the neck and back. You know the jaw bone is connected to neck bone, neck bone is connected to back bone etc(get it). If the TMJ is out (dislocated) it can pull everthing its connected to out and even cause cricks in your neck and shoulders.

 
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