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TMJ Disorder -TemporoMandibular Joint Message Board
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Old 11-03-2009, 12:24 PM   #1
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rcmorgan540 HB User
Begging for help here!

Where to start. I have seen a TMJ doc before and had a night guard made. I recently went in and they built it back up because I was grinding down. The last few months have not been great and my family is getting sick of me being "sick" all the time. They are telling me to see a shrink and that I am stressed. I don't really feel that stressed. I don't have alot of PAIN per say, but I am just feeling beat up all the time because of the following:

- Brain Fog
- Unmotivated
- Tension type headache , does not really hurt, just pressure
- Pressure in eyes
- I can feel muscle spasms around the temples (mainly right side)
- Slightly lightheaded and VERY mild vertigo
- Sinus type pressure
- My jaw once a week when I open wide feels like a bone is grinding
- I have popping in my ears
- My face never seems relaxed
- I feel like I squint all the time (perfect vision , been checked)

This is destroying my AWESOME life that I have. I hav been blessed in so many ways and this is just driving me crazy. I have taken all kinds of antibiotics for sinus infections .. blah .. blah .. blah. The TMJ doc gave me some flexiril to take which really puts me to sleep. I take it sometimes before bed. Please tell me if anyone has suffered through this, found a solution, and can link it to TMJ. It seems you have to be an advocate today for your own healthcare. I have great insurance, and money is not an object when it comes to health. Thank you all so much in advance for any advice!

 
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Old 11-03-2009, 12:25 PM   #2
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Re: Begging for help here!

Forgot to mention that laying down seems to help all of this. I have normal blood pressure, and normal blood sugar. I am overweight at 6'2" 265 lbs. I was VERY active and a very agressive work/sales performer which is turning to crap over the last few months.

 
Old 11-03-2009, 05:42 PM   #3
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velvetrance HB User
Re: Begging for help here!

I know how you feel.
I lost my family and friends because they grew sick of me being unable to do anything. It literally takes your life away.

You are having muscle spasms that control several functions in your head, therefore, giving you side effects. What doctors will generally show you is the jaw bone itself with the end (condyle) and where the disc is that allows the jaw to open and close without contact from bone to bone. When your bone pops this means the bones have met, the disc has slipped, and they make a noise when coming back together.

A splint is made to realign your jaw. TMJ is a gearing problem generally due to not having a correct bite. Due to this muscles feel the need to compensate and they go into spasm. When the muscles spasm it can cause pain, pressure, headaches and a multitude of symptoms. You need someone to assess how your jaw is misaligned and what needs to be done to fix this. The place I am going to in Atlanta is saving my life. There is a lot I learned on my own that doctors won't tell you because they underestimate patient's intelligence, something I hate. I had to see several doctors before I found one that knew what they were doing. If you want info feel free to private message me.

 
Old 11-03-2009, 05:51 PM   #4
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Re: Begging for help here!

It certainly sounds like tmj - and night guards seldom correct the problem and all tmj dentists are not all highly trained or experienced in treating it (any dentist can take a seminar in tmj and then call himself a tmj dentist) - plus there are numerous theories as to the causes and treatments dentists can subscribe to - a good tmj dentist will know them all - and try them all if necessary and not limit his practice to one size fits all by using the same method or treatment with every patient.

There are some older posts you can search for on how to find a good tmj dentist, web sites to refer to, member referrals of tmj dentists (see sticky posts), what questions to ask, how to get health insurance to pay for some or all of it (most do not cover tmj but other similar medical condtions which present the same symptoms) and the pros and cons of various treatment options.

Almost everyone here has experienced most if not all the symptoms you posted with the onset of their tmj issue - some have recovered or are on the road to recovery and others are still dealing with it, searching for the right dr and treatment or both - so you may need to do some "homework" before searching for another tmj dentist. But you are not alone - there are many here that will try and support you on your journey.

 
Old 11-04-2009, 05:38 AM   #5
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Re: Begging for help here!

I am sorry you are having such a difficult time. This disorder zaps the life out of you. I have been dealing with for several years as well along with many sinus problems and at times the symptoms seem to crossover. It is a good idea to see a really good tmj specialist esp. since money is not a problem for you, as treatment can run up to $6500 where I live. I can't do that, so I opt for hot compresses on the jaw and all soft foods.

I wish you success in finding someone and getting treated. Keep up posted on your progress.

 
Old 11-04-2009, 05:39 AM   #6
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Re: Begging for help here!

Also, maybe your family should read some of these posts and the list of symptoms you can have with this. Maybe they will understand it better.

 
Old 11-04-2009, 01:19 PM   #7
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Re: Begging for help here!

Sorry you're going through such a hard time. I can relate to a lot of what you write, thinking I had sinus at the start, antibiotics.... and then finally realising it was a TMJ problem. Actually its good you know what the problem is, in a way its like half the battle.

Check out the American Academy of Craniofacial Pain.They have a referral area and there maybe a member in your area. In my journey I found these guys to have the best handle on the problem.

Make sure you get a comprehensive diagnostic work up to include x-rays showing the position of the condyles in the fossa and MRI scans to image any soft tissue pathology. This way your treatment plan can proceed on facts not guesswork. There a lot of dentists who claim they can treat these problems but only a few who have the years of clinical experience to be of benefit.

I saw a good specialist in Virginia and I'm a lot better. I don't get brain fog or dizzyness any more. There is help out there!

 
Old 11-08-2009, 01:13 PM   #8
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Re: Begging for help here!

You should ask your doc about the operation that can be done to "cure" TMJ. your put under, and they break your jaw, or take a piece out, whatever is causing the problem. then your mouth is wired shut for about a month. AND GUESS WHAT NO MORE PROBLEMS

 
Old 11-08-2009, 04:30 PM   #9
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Re: Begging for help here!

rcmorgan540,

I strongly disagree with the suggestion above to have your jaw broken and reset. this doesn't cure any tmjd problem. You should seek the help of a qualified tmjd dentist. < edited > You need to be evaluated and have some testing done to properly DIAGNOSE your particular condition and the state of your bite and joints. Hope this helps! Hang in there.

Last edited by hb-mod; 11-09-2009 at 12:10 AM. Reason: Please don't post disallowed websites as per Posting Policy. Thanks.

 
Old 11-09-2009, 07:27 AM   #10
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Re: Begging for help here!

Quote:
Originally Posted by stormy1966 View Post
rcmorgan540,

I strongly disagree with the suggestion above to have your jaw broken and reset. this doesn't cure any tmjd problem. You should seek the help of a qualified tmjd dentist. < edited > You need to be evaluated and have some testing done to properly DIAGNOSE your particular condition and the state of your bite and joints. Hope this helps! Hang in there.
OK, had to put my 2 cents in here----surgery to correct any jaw problem before trying less invasive therapy is just insane in my opinion. Only 4% of tmjd patients are even considered surgical cases. If you have any doubt as to some of the worst outcomes imaginable, just look at old posts of people who have gone through surgery after surgery for their jaw problems, only to be left in horrendous pain, and on meds the rest of their lives to some degree. This is NOT the answer, you need to get to an excellent tmjd specialist, who is expertly trained in Functional Jaw Appliances, and have a thorough exam done before anything else is decided...Later ---J>

 
Old 11-09-2009, 02:10 PM   #11
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not4sakn HB User
Re: Begging for help here!

Our symptoms are almost identical and i too can relate to the quality of life ive lost to this. For me, its like i woke up one day and suddenly my life was changed. Initially i noticed constant head pressure, not migraine sharp pain, just tension like pressure, visual floaters, light sensitivity, mild dizziness, neck stiffness and so forth. My jaw didnt start bothering me until almost 10 months after the initial symptoms began. Now i get facial and tingling in my left arm. Im hoping to have my appliance by this week to see if it helps.

 
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