It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



TMJ Disorder -TemporoMandibular Joint Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 04-10-2010, 01:48 PM   #1
Junior Member
(female)
 
Join Date: Apr 2010
Posts: 33
yoga gal HB User
should I do arthroscopy? Want your experiences

Hi,
I need to decide about getting arthroscopy by Mon-yikes!
I have been in a pretty locked very severely closed jaw for months- I tried taking meds to get a splint made and had a severe reaction to them-so quit-then had a small splint made to try and get open for a splint and that did not work-then went to Univ specialists who have told me to just relax and give it time- which I have been doing and it has gotten worse! I also went to another specialist who wants to a splint but do the arthroscopy and some mobilization first. I am so confused! Is it worth the risk to do the procedure or to wait? The Univ DDS doesn't even want to do splint therapy. Anybody have any thoughts - I would REALLY appreciate your experiences- I have read several negative reviews on the arthroscopy is that the majority opinion? This has been going for me since late Nov-Dec-Is it too late for splint therapy? PLease give your thoughts-thanks!
Confused yogi

 
Old 04-10-2010, 05:56 PM   #2
Junior Member
(female)
 
Join Date: Apr 2010
Posts: 13
Chicklet102 HB User
Re: should I do arthroscopy? Want your experiences

Yogi I am a very similar situation and would also like others thoughts on arthroscopy.I have tried conservative options first, therapy, meds and I still am using my splint. Right now I am scheduled for June 11 for the surgery ( It is being done by Allen Tarro near Boston: He will be using laser to remove adhesions) bc I to I have a limited opening bc my right disc is out of place. I had arthrocentesis and they helped a little but than it kind of went back to the way it was before so my option is to have the surgery before the disc gets to damaged.
Im just curious is there not alot of comments on this bc not many have had the procedure? Or maybe some here have but it did not help so the natural response would be to be leery of it, while those who it did work for don't post much anymore bc there problem has been fixed for now. Just a thought but like yogi, any experience, especially positive, would be great.

 
Sponsors Lightbulb
   
Old 04-10-2010, 06:52 PM   #3
Member
(female)
 
Join Date: Jan 2010
Location: Central PA
Posts: 63
TMDlaura HB User
Re: should I do arthroscopy? Want your experiences

Currently I am scheduled to have a bilateral arthropastly with disc plication in two weeks (open joint surgery). All I can say is that when you get to the point of surgery, usually you have tried every other conservative treatment possible. When the pain gets bad enough, you will do anything to get rid of it.

Arthroscopy has a high level of success in eliminating some if not the majority of the pain depending on what they find. I would say if your surgeon is recommending it, he/she believes they can fix the problem.

I was never one to advocate for surgery until I had gone through everything else. My pain cannot get below an 8 on my pain scale, and that is on a good day. After researching beyond researching and talking with others who have gone through my surgery, I feel confident in my decision. My doctor has a very high success rate with my surgery and I am hopeful my pain will decrease.

While I haven't gone through your surgery and probably didn't give you the info you wanted, I just wanted to encourage you not to worry too much. I know it is easier said then done and I still have my days, but know that there are so many out there who have had tremendous success with arthroscopy.

 
Old 10-26-2010, 07:01 PM   #4
Member
(female)
 
Join Date: Dec 2005
Location: Australia
Posts: 84
violet89 HB User
Re: should I do arthroscopy? Want your experiences

Hey Yoga Gal & Chicklet- I have noticed you havent been back to these boards since you mentioned you were having the arthroscopies done.. does that mean you are better now & that's why you're no longer posting? I hope all went well..

But if you could share your experiences about whether the procedure was a success that would be great, as you mentioned there is hardly any post-op feedback on these boards....

I also have a severe limited opening- currently at 22mm & am seriously considering an arthsocopy as its been 2 years since my mouth locked...

 
Old 10-27-2010, 10:42 AM   #5
Junior Member
(female)
 
Join Date: Apr 2010
Posts: 13
Chicklet102 HB User
Re: should I do arthroscopy? Want your experiences

Hi. Sorry I haven't posted in a while.

My actual surgery went the way my doctor wanted it to, he was able to reposition it and suture it in place (these were to fall away after a few months).Only thing that didn't work was he was going to use a laser to remove debree and maybe little spurs to make better movement but the laser wouldn't work that day. I was the first patient of his that happened to, but he wasn't to concerned because he said he used to do surgeries without it and they were sucessful and I jusst figured it wasn't meant to be. Day of I was sore but not unbearable, I do have a strong tolerance of pain so I only took Motrin, I was super nauseas from anesthesia whole day but I am prone to that. I was on liquids and soft foods for a couple weeks and than slowly tried other things. So far so good, going in I was at a 24-26 opening and after surgery I am up to 38-40. I had excercises to do for a while to get up to that measurement but once I hit 40 he said to stop excercises. I know take a muscle relaxer when I feel Sore or tight, like I did to much and that helps. Alot of my thing has been learning not to push it, I am so afraid that I will go back to how I was before that I am very cautious to what I put in my mouth. It will by far means never be perfect but for now I can say Im ok and Im good with that.

I was quite scared to have this done, especially after reading on the boards so many say its bad and not a good thing to do, but I did alot of research and felt my specialist knew what he was doing and the surgery should make it better. Im glad I did it, I know these things are different for everyone but you need to really think what is good for you and talk to your doctor about it. Why should we have to live life in constant pain and depression. I feel that once someone has good outcome we never here from them again and maybe thats why there is not to much positive talk about procedure, but this was my experience. If you have any questions, feel free to ask. I wish I had more people to talk to who felt good about it before I did surgery.

 
Old 11-20-2010, 02:12 AM   #6
Member
(female)
 
Join Date: Dec 2005
Location: Australia
Posts: 84
violet89 HB User
Re: should I do arthroscopy? Want your experiences

Hi Chicklet,

Thankyou so much for replying! I haven't been on the boards for a while as I've been trying to sort out the mess re my jaw, such a confusing process talking to surgeons and dentists!! It's all quite depressing & sometimes its just easier to ignore all my problems I find! But anyway, I was reading your previous posts...my situation is a bit different. I didnt go through the clicking phase, just one day my mouth wouldnt open beyond 20mm. I've now been locked for 22 months, I've really struggled to find doctors in Melbourne that can help me..i just tried valium, physiotherapy, then just gave up for the last 8 months. Anyway I have found a dentist that at least deals with TMJ now, but he said only options are arthrocentis or get a surgeon to do an arthroscopy on both sides. I could try a splint, but he thinks unlikely to work since ive been locked for so long. Mri showed anterior displacement on both sides without reduction ie disc permanently stuck forward & says that no lubrication in the joints.

Im so glad to hear that you're doing well after the arthroscopy...did the drooping eyebrow issue resolve itself? I was told that this can happen, but usually gets better by itself. How long were you locked before you had the arthroscopy? The surgeon is quite concerned that since Ive been locked for so long that the physiotherapy required will be very long. How many sessions did you have? Is your mouth working pretty much normally now & were there any other complications? I heard the main risks are hearing loss, facial nerve damage...I'm really terrified as Im only 26, but I am seriously looking into the arthsrocopy. Did you get both joints done?

 
Old 11-21-2010, 07:39 PM   #7
Junior Member
(female)
 
Join Date: Apr 2010
Posts: 13
Chicklet102 HB User
Re: should I do arthroscopy? Want your experiences

Violet 89,
The eyebrow droop went away after a few months, it took that long to notice that I can move my eyebrow again. It wasn't a looks issue it was an annoyance because I could feel the droop on my eyelid and like you, nerve damage was my biggest fear going into the surgery so to me that made me nervous but it did eventually go away. The actually surgery site by ear was numb for a long time, as in you could only feel touch slightly there and that to has come a long way. So no real loss anywhere due to surgery. I wasn't locked for as long as you have been, little less than a yr. I had pain and clicking but than one day it was locked and after a while I started looking into TMJ more because my doctors here told me it was nothing.After trying some less severe methods for about 3 months I had the arthosentesis done on my left right side. This was a failure for me. Right after procedure I could open wider but by end of day I was right back at around 22, this was a major blow to me because I was really hoping it would work and I would not have to have surgery. I took time to decide if I really wanted to go arthoscopy root, to me it is a big deal, but in the long run I couldn't see anyway of it getting better. I had been in splints for as long as locked and there was no improvement there so I went for it.As I said the recovery was a bit tough and you have to be patient and diligent with the excercises after. Each day I was able to go a bit further, infact I was a little anxious everyday worried that it wouldn't hold and I would lock up but I didn't. As regards to back to normal, I don't think once you have problems like we do you are ever normal again but Im doing preety good. I have opening of about 38-40 now, three fingers wide.I know when I have done to much, and on those days I take a muscle relaxer and it helps a bit. I still where my splint to bed every night as my specialists says thats ok and it was up to me.Im not pain free or headache free but I tink much of that is due to my left side, but I didnt want to do both at same time and for me that was ok.I only had arthroscopy done on my right side as thats the one that was locked. My left side is messed to but for now Im dealing with it, one problem at a time.I am super conscious if im stressing the muscles or tensing up during the day, I am a stress person per say and need to learn to relax better.
I can't say I know what your going thru because we are all different but we do have some things in common. Me being 24 was also so nervous about starting down this surgery road, figuring once I start thats the beginning of the end. But I told myself to take one day at a time and not worry about 1 yr or 10 5 yrs down the road, just now and for now the surgery was good option .Try not to stress yourself out, which I know is so hard to do. I took months finding a specialist that was good and now that you have found a doctor hopefully he can help you.
Feel free to ask any questions or just your concerns, I wish I had someone to bounce all my nerves and questions off of. Stay positive

 
Old 02-26-2011, 02:56 AM   #8
Member
(female)
 
Join Date: Dec 2005
Location: Australia
Posts: 84
violet89 HB User
Re: should I do arthroscopy? Want your experiences

Hi Chicklet 102, How are you? I haven't been back on the boards for a few months as I have been trying to ignore my closed lock problem. But I have 90% decided that I need to get the arthroscopy done, but 10% of me is still unsure which is stopping me from booking the surgery.

Are you still going OK? Are you relatively pain free with still good function? I was told that I'd need weekly physiotherapy for about 2 months and would need to get a splint for my clenching/grinding. So far, it has been difficult to find a dentist that understands why people clench and how to stop it. I think if the surgery goes well and my opening improves, theres a big chance that the improvement may not last due to the severe pressure from the clenching. Not sure if you also have clenching/grinding issues? I'm planning to take 1-2 weeks off work if i do proceed. Were you talking\eating pretty normally about two weeks after the arthroscopy?

I'm really scared at the moment and i'm so indecisive But Its great to hear from someone that is proof that surgeries arent always bad. You give me hope! Good luck

Last edited by violet89; 02-26-2011 at 03:01 AM.

 
Old 02-27-2011, 05:41 AM   #9
Junior Member
(female)
 
Join Date: Apr 2010
Posts: 13
Chicklet102 HB User
Wink Re: should I do arthroscopy? Want your experiences

Violet89,
Im sorry to hear that not much has improved for you, this is such a problem that those without it don't understand how it feels. Im doing pretty good. The side that was operated on, my right side, is still doing good. Nothing has slipped or started to hurt. I was quite nervous for a while though wondering if it wold really work and what would happen at the three month period when the stitching would fall away, would I lock up again. Good news I never did. My only issue is that I have problems with my left side, this was even prior to surgery so nothing relating from it. It is not in proper position and clicks and sometimes gets stuck for a minute and this scares me. My doctor didn't want to do both at the same time seeming the left side was not locked. To be honest I didn't either, I was very nervous about the surgery and whether it would work or make things worse so I didn't want to mess both sides up.Its nothing like my right side was before surgery so I am just going to take that as it comes and deal with it when I must.
Overall I am happy I had the surgery. I understand how you feel about not wanting to have it though. I remember when I went to the doctor after I had been locked for months and we tried less invasive procedures and him telling me that surgery was my best option I freaked out. We live about 3 hrs from doctor and I think I cried the whole way home. Of course stress not good for condition but, I couldn't help it. I didn't want to start down this path of major surgery because theres no going back, but than I thought of how much pain I was in from being locked and thought what is the worse that could happen. Im not telling you all the issues to scare you but just to be honest with you.Its scary to have any type of surgery done, but if you have tried other methods and are still locked, it may be the best option. I had my surgery over 6 months ago and Im doing great in mot regards. My opening is the same that it was after surgery, it hasn't reduced. The pain on that side is basically gone. I know when I have done to much or eaten something that pushed the limits and it gets a little sore but I know how to judge my body and really watch it. You never will be like everyone else without this problem, you will always have to watch what you eat and in some cases cut certain foods out but its worth it. Over the time frame I have found that certain positions cause slight pain, especially when sleeping, but I figure them out and deal with them.
I hope I made you feel a little better about the surgery, I felt just a you did but thinking back I wouldn't change anything. Only thing I wish I didn't do was the arthocentesis. It did nothing for my issue and only caused more pain until the surgery. I understand why my doctor wanted to do it, less invasive, so in that case I agree to giving it a go but it was another bump in the road. Big things you can do in research your specialist and make sure he is the best in your area. Maybe even ask him if some of his other patients like you would be willing to talk to you about the surgery. if you don't have a good doc than that can set you up for problems. I researched mine for a long time, he wasn't the friendliest at first but he knew his stuff and thats what I wanted.

I have mentioned it before but the message boards can sometimes be a bad place when trying to make a decision. For the most part its all doom and gloom with those who;s surgeries have not worked but I always thought thats because those whose surgeries did work don't follow the boards like they used to. There is positive stories out there, and I do feel I am one of them.

Please feel free to ask any questions you have. Don't get to depressed, things can get better

Last edited by moderator2; 03-03-2011 at 07:22 AM.

 
Old 03-03-2011, 02:54 AM   #10
Member
(female)
 
Join Date: Dec 2005
Location: Australia
Posts: 84
violet89 HB User
Re: should I do arthroscopy? Want your experiences

Hey Chicklet102!!

So glad to hear you are going well My bilateral arthroscopy surgery is scheduled for the end of the month- I AM VERY SCARED. But I have been locked for 2 years now & it has really diminished in opening in the last month..I am fed up of it...I'm really struggling to eat and get food in my mouth these days, even brushing is now difficult- i have to use a little kid's toothbrush. The odds are a bit against me though as I have been locked so long, apparently the adhesions/degeneration will be more severe than if I had had the surgery earlier. But you mentioned you were locked for about a year didnt you? You didnt mention if you clench/grind? I saw a dentist recently who said splint therapy afterwards is very important otherwise my joints wont heal as easily (as I am a SEVERE clencher) and I could lock up again...apparently arthroscopies rarely give really long term results and need to be redone???

Lately I have been getting really teary and have been crying when I think of having the surgery, Im so scared that it wont get better and then what do I do??? Its so confusing when so man people tell you not to have surgery and then you wait so long & then now I've been told that it was a big mistake to wait. But I guess people will always find excuses for why things dont work...

Just wondering how do they give you the general anesthetic\oxygen during surgery when you're mouth doesnt open, does the tubes go up your nose? Ive heard that aftewards your nose hurts....but i guess thats the least of my worries!!!

Noone I know has any idea about TMJ and everyone acts like a lock jaw is really weird, noone understands the problems of TMJ. Everyone thinks that I'll be fine after the surgery- and thats the end of it, they dont get that youre mouth will never be normal again and that it is a constant battle to keep it functioning.

Take care

Last edited by moderator2; 03-03-2011 at 07:19 AM.

 
Old 03-04-2011, 04:55 PM   #11
Junior Member
(female)
 
Join Date: Apr 2010
Posts: 13
Chicklet102 HB User
Re: should I do arthroscopy? Want your experiences

Violet89,
I understand exactly how you are feeling right now.I was locked up for about a yr and a few months before I did surgery Into had a lot of trouble eating, getting a fork in with a small bite on it was tough and I agree with the brushing.I started using an electric toothbrush because the head was so small.

Its hard to tell someone not to worry because we still do but the one thing you should try to do is not think of the what ifs now.What if You had done the surgery earlier?What if I don't do the surgery at all?The best thing you can do is focus on the now and what coming up and try to think positive thoughts.This is not easy for me to tell you to do because to this day once in a while I ask myself what if.You asked me if I was a grinder or clencher, I'm not.I truly believe my whole problem began when I bit down on something hard one vacation and my mouth wouldnt close.If I had known than to go straight to someone maybe things would be different, but I didn't know.I was able to close a couple days later and I thought I was ok but than over the yrs I just went down hill.So I was never a clencher but ended up in the same boat.I don't know about the splint therapy but like everything else do your research and take it one day at a time. I had a splint made and wear it to bed when needed...In regards to the anesthesia, I had it through iv. They put the iv line in my hand during prep than wheeled me into the operating room.The doc said hi and that it was rime to start and said they were going to start anesthesia and I was out in a blink.Thisnmay be different for you, you will have to talk to your anethesiologist.I met with mine a week before the surgery.If you have any questions, ask, your the patient.
It is normal to be nervous about any type of surgery but try not to focus on what everyone else is saying or the what ifs.Your thinking your young for all this to happen,I felt that way to seeming I am 24 but you can do it.Have faith.
keep the questions coming if it helps.

 
Old 05-31-2011, 04:03 AM   #12
Junior Member
(male)
 
Join Date: May 2011
Location: Sydney, NSW Australia
Posts: 17
mtos8622 HB User
Re: should I do arthroscopy? Want your experiences

Hi there

This is my first time posting on these boards. I followed this thread between violet89 and Chicklet102 in regards to arthroscopy and was wondering how you're both going?

Chicklet102, I know you've had it done and were feeling pretty good the last time you posted. Violet89, I know yours was coming up the last time you posted, and I'm guessing if you went ahead with it, you would have had it done by now. I also notice you're in Melbourne. I'm in Sydney and it's a struggle to find reputable surgeons as opposed to The States. Admittedly, I haven't looked very hard yet as I've only just started considering the idea at the moment.

I'm a 31 year old male and live in Sydney. My TMJ disorder has gotten progressively worse over the years. Was just a click for so long and I ignored it... never felt any pain so I just disregarded it. Over the last couple of years I stopped popping it and tried to leave it alone and see if it healed after seeing a specialist. It now opens to the right side and I nearly get a 3 finger wide opening. It's not too painful but I'm constantly aware of it. My biggest issue is my left ear. It's full all the time and buzzes, rings and pops constantly. Does my head in at times.

I'm seeing a NM dentist (different one to the first specialist) at the moment and have been wearing an LVI orthotic for the last few months (One for day and one for night). Haven't noticed any difference but my dentist assures me that we've stabilised the bite and should consider PT next. I'm also a night time grinder with sleep apnoea and have nasal reconstruction scheduled for June 15 to deal with my air ways and hopefully deal with the night time grinding.

My current dentist wants me to keep my chin up and not think about surgery but I just want to deal with this TMJ disorder and feel like I'd do anything to be back to normal - high hopes I know but hey I'm trying to stay positive here

Sorry to have rambled on a bit but I'd love to know how you're both going having both had arthroscopic surgery and whether or not you'd recommend it.

Hope to hear from you soon

 
Old 06-01-2011, 10:25 AM   #13
Junior Member
(female)
 
Join Date: Apr 2010
Posts: 13
Chicklet102 HB User
Re: should I do arthroscopy? Want your experiences

Mtos8622,
Hello.Things are still going pretty good in my standards at the moment.It's been a year this month since I have had the surgery and I'm still glad I ended up going through with it.Where your at sounds similar to share I am right now after surgery.I have an opening of three fingers and when my jaw opens it goes to the right. My left side clicks and pops and causes headaches,etc.It hasn't gotten locked yet or had any major issues.I am very aware of how jaw feels so as not to push it,I can feel when it's tightening up and I take it easy with food and where splint more.I have mentioned this to my specialist and he says for now why push it.Only option is to have surgery on left side and frankly I'm not ready for that,mainly because I'm nervous of messing up anything done to right side.I'm sure in a couple hrs,hopefully,something will have to be done but for now It's tolerable especially comparing it to the worst.I don't blame you for wanting to correct now if possible,it's a scary and painful problem.You could research and find good specialist in your area and go for consult.Finding a good one is key though,you don't want to go to a guy who's first thought is to start surgery.I never put myself in anyones shoes but I would try least invasive techniques now and see if anything seems to help.If you start down this long road of surgery though try to be positive.I know when all this began for me and I started looking at the postings from others and how terrible they are and how bad their surgeries went totally freaked me out.I remember crying and thinking I'm to young for this.Remember though many people who do have successful procedures move on for now and don't respond on msg boards anymore so you read alot of people who are in tough situations.I'm just saying stay positive,look at your options and try to be aware of what your jaw is doing now and change habits if they cause go more pain or clicking.Hope some of my ramblings help you.If you have any other questions feel free to post,I know what's it's like. Have a good day

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Arthroscopy procedure PLEASE HELP! yoga gal TMJ Disorder -TemporoMandibular Joint 75 02-25-2011 04:18 AM
Ankle Arthroscopy Questions thefrosh3 Foot & Ankle Problems 23 02-10-2011 06:01 PM
Survived Ankle Arthroscopy thefrosh3 Foot & Ankle Problems 27 02-10-2011 05:35 PM
Arthroscopy surgery? Chicklet102 TMJ Disorder -TemporoMandibular Joint 0 04-08-2010 06:52 PM
TMJ arthroscopy "minor"? monster13 TMJ Disorder -TemporoMandibular Joint 26 08-10-2008 08:05 PM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added




Top 10 Drugs Discussed on this Board.
(Go to DrugTalk.com for complete list)
Botox
Flexeril
Ibuprofen
Klonopin Motrin
  Neurontin
Tylenol
Valium
Vioxx
Xanax




TOP THANKED CONTRIBUTORS



MountainReader (78), Canuck65 (37), Shirlett (26), TMJ82 (22), Jill 227 (17), judye (16), Marlene (13), navymid (10), clencher1 (9), lancewan (8)

Site Wide Totals

teteri66 (1180), MSJayhawk (1006), Apollo123 (906), Titchou (852), janewhite1 (823), Gabriel (759), ladybud (755), midwest1 (669), sammy64 (668), BlueSkies14 (607)



All times are GMT -7. The time now is 12:18 AM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!