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Old 10-28-2010, 01:26 AM   #1
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I had surgery temporomandibular joint arthroplasty, please read, give me advice

Hi! I am 29 years old and have been suffering with TMJ for several years.
I have the headaches, the limitation in opening opening my mouth, the neck/back/shoulder/face and all the rest of the areas pain.
When I was 17 yrs old I underwent a upper and lower jaw surgery to fix a severe underbite I had developed. I had to have serveral metal screws and other lil gadgets to reconstruct my jaw.
As the years went by I noticed the pain in my face but I always thought it was related to the ( 9 hr) jaw surgery I had done when I was 17.
About 4 years ago the pain was becoming worse so I had a serious of test done, I went to all sorts of doctors. None knew what was causing all the pain.
It came to a point I thought I was going crazy. I managed to get intouch with the surgeon that had operated me back in the day. I was convinced it was the metal in my face that was acting up!
He ran a serious of tests, gave me anti immflamitories but the pain started to get worse. 2 yrs ago I had an MRI that showed that the disk in the jaw was dislocated. I was refered to a TMJ specialist.
Again, the entire process of all sorts of treatments, because SUREGERY was the last option.
I endure painfull treatments that made little to no difference to the pain I was experiencing, as time passed my symptoms worsen and it started affecting my daily life style. I had difficulties in school, at work , at home.
So finally he decieded to try to inject my face with cortisone ( trigger point/joint injections) it was SOOO painfull once they went in, but then I was num for a few hours. I thought I had found the s0lution to my pain.
Well, once the numming wore off I was in worser pain.
I tried all meds, the warm cloth on my face, the injections and nothing worked so in January 2010 I underwent an athroscopy, I had read it had high chances that it could make my TMJ better by a large %.

To the surprise of my surgeon my right side was very" iky" and messy.
My pain after surgery actually WORSEN!!!
I was so dissapointed, since my right TMJ was so messy I had to have another surgery.
2 weeks ago I had a Right temporomandibular joint arthroplasty, menisectomy, articular emminectomy and insertion of fat graft to right temporomandibular joint space, fat graph taken from abdomen.

I was admited for 2 days in the hospital. To the surprise of the surgeon he found that the disk had completly come out of its area, and had a huge hole in it. there was no way of fixing it. so they removed it and filled the void with some fatty from my tummy.
I have been recovering since, The pain I can not say much yet, since the pain I am experiencing is because of the procedure that was done.
I am really hopeing that this is the last surgery I will need and that my TMJ will be gone
Right now my face is very swollen. Unfortunantly I ( for the time being) cannot move my right eyebrow and my right eye doesnt close all the way.
I was aware that there were gonna be risks, so I am dealing with it one day at a time.
I am taking perks for the pain, some oxys that are similar to the perks just alot smaller, I am taking anti immflamitories ( all these are killing my tummy but dealing with the pain) and I was on antibiotics.
I feel very light headed, and I am not very good on my feet for too long because I get very tiered and begin to shake.
I hope if there is anyone out that that has undergone this surgery to reply.

I would like to know how long they took to recover, have you lost movementé sensation to your eyebrow or eye, has it been a permanent thing

Thank you all.
bye

 
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Old 10-30-2010, 06:14 PM   #2
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Re: I had surgery temporomandibular joint arthroplasty, please read, give me advice

Hi! I feel for you. From my experiance, it is very common to loose the use of your eyebrow(s), eyelid(s) and smiling! Sometimes during TMJ surgery the Inferior Alveolar Nerve can become squished from all the swelling going on, after multipal TMJ surgeries the nerve can become damaged and with each surgery it takes longer for the nerve to heal. I have been dealing with TMJ for over 14 years now, 13 surgeries later and three sets of TMJ Concept implants, I have function and my pain is very low, BUT I still have TMJ and will always be a "Tmj Patient", there is NO CURE for TMJ but you can learn to live with it. I hope you find relief from your pain and know that you have a support system here on the board. Take Care!
Shirlett

 
Old 10-30-2010, 07:55 PM   #3
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Re: I had surgery temporomandibular joint arthroplasty, please read, give me advice

Quote:
Originally Posted by starsdust View Post
Hi! I am 29 years old and have been suffering with TMJ for several years.
in January 2010 I underwent an athroscopy, I had read it had high chances that it could make my TMJ better by a large %.

To the surprise of my surgeon my right side was very" iky" and messy.
My pain after surgery actually WORSEN!!!
2 weeks ago I had a Right temporomandibular joint arthroplasty, menisectomy, articular emminectomy and insertion of fat graft to right temporomandibular joint space, fat graph taken from abdomen.

I was admited for 2 days in the hospital. To the surprise of the surgeon he found that the disk had completly come out of its area, and had a huge hole in it. there was no way of fixing it. so they removed it and filled the void with some fatty from my tummy.
I have been recovering since, The pain I can not say much yet, since the pain I am experiencing is because of the procedure that was done.
Right now my face is very swollen. Unfortunantly I ( for the time being) cannot move my right eyebrow and my right eye doesnt close all the way.
I was aware that there were gonna be risks, so I am dealing with it one day at a time.
I feel very light headed, and I am not very good on my feet for too long because I get very tiered and begin to shake.
I hope if there is anyone out that that has undergone this surgery to reply.

I would like to know how long they took to recover, have you lost movementé sensation to your eyebrow or eye, has it been a permanent thing

Thank you all.
bye
Hello Starsdust,
I suffered from TMJ issues for 26 years, until I had a very successful bilateral joint replacement surgery done in September of 2009. As part of my treatment I underwent 2 arthroplasties on each side as well as two arthroscopic procedures on each side. I do believe that this qualifies me to address your issues with side effects from your recent surgery.
You said that you had surgery to your right side 2 weeks ago. I looks like the doctor did quite a bit of work at that time. I have had the same types of side effects from my operations as you. Being 2 weeks post-op I wouldn't worry about the swelling, numbness or other side effects.
It took my right eye 8 weeks to close after the last surgery. The doctor was concerned that it took this long for the eye to close, but since it closed it has been fine. Are you taping your eye at night? Taping it closed was a key for me to keep my eye moist.
Swelling is a common side effect too. Again it took me several weeks before all of the swelling was gone.
Being light headed and not steady on my feet are also side effects that I had. They too resolved over time, and once they were gone, they were gone for good. It was very frustrating for me not being steady on my feet as I'm independent and didn't like depending on others.
I also had some facial paralysis. My eyebrows did not move for several weeks after the procedures. After this last operation, the joint replacement, I never did get back the movement of my right eyebrows. My surgeon told me that the data is showing that 10% of patients end up with some facial paralysis.
I know that these side effects are frustrating, and that you feel like you'll never get your old face back. The good news is that most of the movement does come back. I still have some numbness on my ears, but in my book it's a small price to pay for getting my life back with my new joints.
I hope that I've helped you. If you have any more questions please let me know. Also, let me know how things work out for you.
Have a happy Halloween.
Peggy

 
Old 10-30-2010, 09:13 PM   #4
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Re: I had surgery temporomandibular joint arthroplasty, please read, give me advice

Quote:
Originally Posted by Pegala View Post
Hello Starsdust,
I suffered from TMJ issues for 26 years, until I had a very successful bilateral joint replacement surgery done in September of 2009. As part of my treatment I underwent 2 arthroplasties on each side as well as two arthroscopic procedures on each side. I do believe that this qualifies me to address your issues with side effects from your recent surgery.
You said that you had surgery to your right side 2 weeks ago. I looks like the doctor did quite a bit of work at that time. I have had the same types of side effects from my operations as you. Being 2 weeks post-op I wouldn't worry about the swelling, numbness or other side effects.
It took my right eye 8 weeks to close after the last surgery. The doctor was concerned that it took this long for the eye to close, but since it closed it has been fine. Are you taping your eye at night? Taping it closed was a key for me to keep my eye moist.
Swelling is a common side effect too. Again it took me several weeks before all of the swelling was gone.
Being light headed and not steady on my feet are also side effects that I had. They too resolved over time, and once they were gone, they were gone for good. It was very frustrating for me not being steady on my feet as I'm independent and didn't like depending on others.
I also had some facial paralysis. My eyebrows did not move for several weeks after the procedures. After this last operation, the joint replacement, I never did get back the movement of my right eyebrows. My surgeon told me that the data is showing that 10% of patients end up with some facial paralysis.
I know that these side effects are frustrating, and that you feel like you'll never get your old face back. The good news is that most of the movement does come back. I still have some numbness on my ears, but in my book it's a small price to pay for getting my life back with my new joints.
I hope that I've helped you. If you have any more questions please let me know. Also, let me know how things work out for you.
Have a happy Halloween.
Peggy
Peggy and the rest of you Shirlette, going through so many surgeries and such, its downright scary to read all the failed surgeries and nightmares in between I must say. God bless you all .

 
Old 10-31-2010, 02:05 AM   #5
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Thumbs up Re: I had surgery temporomandibular joint arthroplasty, please read, give me advice

Thank u!!! It has brought tears to my eyes to know that I am not alone in this!!!
I felt so overwhelmed with these new adjustments and I too am independent and it has been really hard learnning to depend on others.Aside from the eye/eyebrow situation I feel that loosing stability have really made me feel dependent.
I use to always be on the go go go and know I guess I am taking a much needed unwanted break.
Thank you all for the comforting words.


Peggy thank you for sharing with me and giving me some hope that I may get my eyebrow back! I hope with time.
Peggy how long did it take for the swelling around your ear to be done.
and did you hear or feel like buzzing noise??
Half my face feels tingly.
Did they shave the side of your head too?? I am sooo sad about my hair!!! I am getting married in 6 months!! and I will not have it long enough!!!
Shirlett Thank you aswell. I was starting to wonder if my smile was ever going to be the same.
For the time being I take pics of myself over and over to try to get that look back but I fail missarably.

thanks again for the advice and soothing words, good night all, and be blessed!

 
Old 11-03-2010, 12:40 PM   #6
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Re: I had surgery temporomandibular joint arthroplasty, please read, give me advice

Starsdust,
You are NOT alone!! Your hair will grow back, mine always has! Try and stay positive! The TMJ road is never easy but PLEASE know you have a cyber support family and most of us have similiar experiances with the TMJ. There is always someone out there who has experianced what you are going through. For me, I try to remember that there is ALWAYS someone out there who is in a worse situation than me. I feel lucky, not over the 13 surgeries, but I have a loving husband and three wonderful children who have all been on this TMJ ride with me and supporting me. They can not even come close to imagining the pain & discomfort I have been in over the years but they love and support me any way. Take joy in planning and looking forward to your upcomming wedding and I hope all goes GREAT for you! Just remember, you are never alone with your TMJ!
Take Care!
Shirlett

 
Old 11-04-2010, 05:27 PM   #7
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Re: I had surgery temporomandibular joint arthroplasty, please read, give me advice

Quote:
Originally Posted by starsdust View Post
Thank u!!! It has brought tears to my eyes to know that I am not alone in this!!!
Peggy thank you for sharing with me and giving me some hope that I may get my eyebrow back! I hope with time.
Peggy how long did it take for the swelling around your ear to be done.
and did you hear or feel like buzzing noise??
Half my face feels tingly.
Did they shave the side of your head too?? I am sooo sad about my hair!!! I am getting married in 6 months!! and I will not have it long enough!!!
thanks again for the advice and soothing words, good night all, and be blessed!
Good Evening Stardust,
The swelling around my ear took about four weeks to go completely down. I had a feeling of fullness in my ears and the sounds were muffled. I spoke to the surgeon when I went back to get my stitches out (about one week post op). He looked in my ears and found some dried blood. He told me that this was not unexpected. At his reccommendations I flushed my ears out every day for about a week. The dried blood came out and my hearing returned to normal. I just used warm water and a syringe to flush them with. I wouldn't suggest doing this unless you talk with your doctor first.
My face went through some strange sensations. At first it was completely numb, then it went to tingling and at times I had mild shooting pains through my face. The shooting pains were just a few here and there and it felt like something was regenerating, no real pain. It took about 3 months before all of the feeling came back.
No, no, no they did not shave my head. I did not lose my hair. The doctor just trimmed the hair right where he made the incisions. You couldn't see it unless you got right up to me and looked at me very closely. I was concerned about how I would look, but you'd never know that I had surgery.
Sorry that it took me so long to get back to you. I promise to respond to your posts in a more timely manner.
Please let me know what else I can do for you.
Hang in there, it will get better.
Peggy
Congratulations on your upcoming marriage. I'm sure that you'll make a beautiful bride.

 
Old 01-29-2011, 10:11 AM   #8
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Re: I had surgery temporomandibular joint arthroplasty, please read, give me advice

How are you doing now? I am having a bilateral arthroscopy March 7th.. thanks

 
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