TMJC, I'm so glad that you're doing better. I'm 2.5 months post, am opening to 34 mm (dropped a little bit - masseter muscle is in spasm) and have graduated to almost no meds and a soft food diet. If I push the diet too much, the TMJ/masseter muscles hurt a bit, needing some medication. Still really tired...I suspect as you get older and have a 6 hour procedure it takes longer to get back to normal.
Glad to hear from everyone and how you're all doing!
The following user gives a hug of support to pamo810: TMJC (07-25-2011)
I am glad you are off all meds, AWESOME! I do still have muscular flare-ups-(I had mexican food the other day...chips--not so smart!) moist heat & muscle meds=better!
The joint pain is gone I basically had no joint for so long, I love my new one
Sending my best to all...We got this!
The following user gives a hug of support to TMJC: pamo810 (07-25-2011)
Thought that I would update everyone with a progress report. The new TMJs are doing fine - no pain, just getting used to a squeaky noise. The only pain I have is from the Masseter muscle being in spasms with definitive trigger points. As Medicare will not pay for Botox injections, I went to my pain management specialists and had a bunch of trigger point injections (L>R) which has relieved the pain significantly. Opening to about 35 mm, limitation is probably from the masseter muscle. I'll likely have more trigger point injections to prevent further spasm. Overall, pleased with the surgery. Still on a soft food diet as I have no lower back teeth (and will probably have teeth pulled and dentures made). Anytime I overdo it (take too big of a bite, try to eat something relatively hard) the masseter pain returns. My advice - learn how to do trigger point massage to prevent the masseter from going into spasm.
Hope everyone else is doing OK with the various stages that you are all in! Talk to you later!
I am a few days shy of 3.5 months. I am doing great
Stopped meds unless having a bad day. The major issue is getting those muscles used to where they should be. Still have braces---so ready for them to be gone!
I can hear how excited and pleased you are in your message. Congratulations on your continued successful healing. Can you tell me where and who did your surgery. Did you have braces before the surgery? Here's to you
I posted a comment on here about my TMJ and MountainReader told me you used Dr. Kirk. I would like to get in touch with you bc I am about to have surgery on left TMJ with him but have not found anyone who has been a patient of his. Would love to hear from you. I will be having my first TMJ surgery, an arthoplasty on Left side. Pain and disfunction for over 25 yrs.
HELLO!!!! I am so GLAD to see every one is doing well. I feel bad that I have not been on the board to check in and see how every one is doing! Got a "reminder" from the MO that I had not been on in a while. I am still doing GREAT! Off ALL medications, lost 68 pounds and went back to my paralegal job Full Time September 1 and am LOVING IT! Some one asked me the other day IF I had to do it all over again would I and I can not answer that. Seventeen jaw surgeries in the past twenty years, two full sets of TMJ Concepts Bi-lateral and one more on the left side for good luck (?), WOW! What I put myself, my body and my husband and children through to "try and reduce my pain and regain some function" I NEVER thought I would be pain free with an opening of 45 mm!!!! Yes, I am opening without force to 45 mm. Some days the HORRID, HORRID Pain that I thought was going to kill me, I just could NOT allow my mind or dreams even to think I would be pain free again one day. Not only has TMJ "Treatment" come along way in the last 25 years but WOW so have the implants. Pamo, do you feel your implants? The first set that was a BIG issue for me, I KNEW they were in there and I could feel them. This last set they made for me, I do not know they are there and I can go two, three, four days and forget I have TMJ. Another thing I woudl have NEVER beleived ten years ago. I try to make the most of every day, my husband and I have been able to restructor or marriage and it is 100 x's strong and better than it has ever been and I have began to spead time with my grown children ( still have a 17 year old at home), one on one and reconnect. I can never get back the time the TMJ took away from them while growing up but I think it helps them and me to spend time with them and let them REALLY SEE Mommy is okay, Mommy is NOT in pain, Mommy is NOT on all the pills and Mommy can be Mommy again.
I wish ALL OF YOU THE BEST! We have all traveled long and extremely PAINFUL roads but we have NEVER been alone. I had my left Fossa put back in July 18th and will be returning for my six month post-op on Friday, January 18th. I have not been back since the 18th of July. Once my stitches fell out and the swelling went away.....it was on! With my past history, I know these implants can break but I refuse to sit around and wait for that to happen. I missed out on so much of my life due to pain and extreme discomfort, I want to get back in as much as I can. All my kids came home for the holidays and it was such a WONDERFUL experiance to enjoy all my kids together at home (not fighting! hahaha) my grandbabies and my husband and I was not in any pain or discomfort, I just can not explain how happy I was.
I am going to do my best to get on the Support Group at least once a week if any thing to give the newbies and others encourgement to not give up and never loose HOPE!
I hope everyone is having the Best day they can and remember tomorrow is another day!
Hello all! It's now been 10 months since I had my surgery to remove scar tissue, and the right side is acting up again - I have a feeling it's more scar tissue. I'm not worrying about it though because Tuesday and I am having the remainder of my teeth (20) pulled under anesthesia; Gary Warburton is doing the surgery (he, and I, don't trust anyone else to pull with the artificial joints in place). I'll see what happens to the TMJ, if anything, after this surgery. It's going to be a while before I get dentures as I'm waiting for a car accident settlement (was in two accidents in August and September of last year, which affected back and neck, but not the TMJs, thank God!)
I see most people are still in various stages of recovery - I hope that recovery is permanent. Shirlett, you are an inspiration to us all, and I hope that you continue for a long, long, time with your improvements. I'm still looking forward to having my first tender steak (Filet mignon anyone?) Not quite there yet but am bound and determined to get there!
Everyone take care!
The following user gives a hug of support to pamo810: Shirlett (01-09-2013)
Pamo....baby steps, baby steps...you are on your way! I feel my most important is message is NEVER EVER GIVE UP! Not all of us will be pain free or have our function return to even a great status but never ever give up hope and NEVER give in the the TMJ. This is till your life and you are here to live it. For me, I refused to allow the TMJ to run and & control my life, yes the pain and extreme discomfort played a large part in what I could do and some days that ment I could not even get out of bed, BUT I never gave up hope that my pain may be reduced and I could maybe have some function better than 2mm. I had to find a way to remind myself this is still MY body and MY life and I was going to take control over as much as I could. I refused to allow the TMJ to take over me & my life. Stay strong and positive. I have also had to have scar tissue cut out, not fun, BLAH but it is still a move forward. To all you "newbies" this is why surgery should ALWAYS be your last option...once you get on the surgery ride, you will never get off. So PLEASE, even knowing there are those out there on this board that have had surgery and are moving toward a better life living with TMJ, it has been a long and painful road to get to where we are. I have yet to meet any one who had surgery first and was "cured." So take your time in making medical decisions with regard to your treatment plan.
It's good to hear from you Shirlett and Pam! Shirlett, it is encouraging to hear you are doing so well, finally!! I am very happy for you.
I am exactly a year and a half out from my TMJR surgery and still not doing very well. In the midst of a move and finding new doctors, I've been diagnosed with severe nerve damage, which is believed to be causing all this pain! Thankfully I have found a doctor that is doing a study using implantable neurostimulators for facial pain. They are used a lot for back pain patients, but it is a off-label use for facial pain. The dr has not used it on a TMJR patient, so we will see how it goes in the trial. I am grateful for options though. I just got off Dilaudid (after this long!) and am relying on Lyrica, muscle relaxers and Tramadol for the time being. Like you Pam, I am looking forward to some steak chewing days!!
In other news, I have been writing about my TMJ trials for the past 7 years since my injury, and the book just got picked up by a publisher!! I hope, like you Shirlett, that my story will encourage and strengthen those going through difficult times not only with TMJ problems but other medical issues.
Yes, I am in a MUCH better place than I was ten years ago and I would NEVER want to walk that path again. I still have "bad days" and I know I will never be "cured" from TMJ, BUT I strive every day to not allow the TMJ to control me and my life. My TMJ road continues to have bumps (sink holes, lol) but I pick myself back up and began moving forward. In October I had an abcess tooth, neg side to 17 TMJ surgeries is no feeling in my face so I did not know it was there, positive side was I did not feel it and from those that I have spoken to that have had an abcessed tooth I am glad I did not know it was there. Long story short, the pocket that the infection was in did not close up, I still have a large lump on my left jaw line that refuses to go away, it swells up and swells the left side of my face up along with my eye and ear so now I am going to Shands on Friday for them to try and find out what the lump is. It does not show up on any scan so it could be scar tissue which will have to be removed. I would just leave it there but it is right at the edge of the bottom of the left side implant and that is tooo close for comfort for me. I do not want any thing any where near either implant. So for the last two days I have been on liquids and doing everything I can to not place any pressure or cause any distress to my left side. I have had "panic thoughts", have I done something to the left implant? Has my mandible come unscrewed? Is it broke? I can drive myself crazy! I can be my own worst enemy. And my implants still squeak from time to time along with a squishy noise and I can send myself into a panic over these things also. As for now that always go away. I guess when they stay is when I should really panic. I have returned to work full time and I time I am scared I may have pushed myself and caused my body to react. Payback? So I still have my fear(s) and doubt. When I am in pain I tend to panic and all the TMJ fear returns, I can scare myself to death and woryy that the pain is not going to go away and it has returned. Let me say, I have yet to experiance the level of pain I was in a few years ago. When the pain and swelling does come on I tend to try and talk my body out of it. I wait until it is too late to take pain medication because I want to know that the pain is real before I try to mask it with pain medication. We all have to find ways to cope and maintain OUR lives. I have fear that these implants can break and I really do not know if the FDA will allow me to receive another set. On the other side of the coin I feel bad for TMJ Concepts since I have broke their implants more than once. The FDA has now released all of the reports and it is all on me. The device(s) tested out fine. Just wondering what my body has against the implants? HAHA. I am scared of more surgery. I am scared of surgery. I do not want to come across as I had TMJ Concepts put in, three times and my life is perfect now. Yes, most of the time I am pain free and have great function and can eat what ever I want. These "flare up's" happen about once every three months and last one to three days and then they are over and I move on. I would not trade where I am now for where I was ten years ago. To me all the surgeries, broken implants, pain, tears, discomfort, hopelessness, and no direction have put me where I am today. I refuse to allow the TMJ to control me and I take full advantage of my good days. They do not have to be "GREAT", little to no pain & discomfort and it is a "good day" and I will take every one that I can get. One thing that I tell myself when I am having a pitty me....is there is always some one out there that is in a worse situation than me. I have a Great OS, I have a husband and children that Love me and I have a Wonderful support system. I do worry about those out there going down the TMJ road alone.
Never give up hope and when you get knocked down, take your time getting up. I will update you when I get back from Shands on Friday. Wish me Luck and I REALLY hope I am making this out to be worse than it really is.
I'm so sorry to hear that you're having problems with what might be abscess or scar tissue (praying it's easily fixable scar tissue). I had scar tissue in the artificial joint - didn't interfere with function but caused pain. When that was removed I was opening wider than before the surgery. Hopefully it won't recur. I too have squeaks on the right side but again, I don't think it has any affect on the joint. By the way, the FDA does not have anything to do with allowing an approved device to be used by your surgeon. They are only responsible for the review, approval, and monitoring of adverse effects of a device. Should monitoring demonstrate that a device is more hazardous than any benefit derived from it, the FDA may recall the device. Currently, TMJ Concepts has not been recalled, so it is still available for use. Hopefully you won't have any need of the implants again, but they do have a limited lifetime. Keep that in mind and, as you reminded me, baby steps! Be gentle to the joints, and they will last longer!
Wishing you all the best!
The Following User Says Thank You to pamo810 For This Useful Post: Shirlett (01-17-2013)