Hi everyone. I haven't been on here in many months...but I wanted to update you all on my treatment and progress. I have been in NM treatment for approx. 1 and a half years now. I have been wearing a series of NM orthodics, made to be worn 24/7, even while eating. When I started treatment, I had no quality of life. I was suicidal, and in total agony. Pain level off the charts. I had basically every symptom known to man regarding TMD. (BTW--I developed TMD when I had traditional ortho. and extractions 22 years ago)
I now can say that my life is finally getting back to normal. My pain levels have dropped from about a 20...off the charts.....to about a 3-4 daily. I am still in PT, CranioSacral therapy....Atlas Orthogonal chiropractic care once a month...and I am still in phase 1 NM treatment. Hoping to start with phase 2 soon..which will be moving my teeth and expanding both jaws to correct what my orthodontist did to my bite and face/jaws..22 years ago. NMD has saved my life.
such a wonderful update! This gives me (and possibly other TMD victims) hope as well...
I wish everything goes smoothly with your phase II. Please comment on the method of jaw (or is it the dental arch?) expansion. Also, do you plan on keeping/stabilizing the increased vertical dimension created by your splint? If so, how will this be done?
Thanks everyone for your responses...I am not 100% sure how we are going to tackle phase 2 yet. There are several ways that the expansion can be done. My doctor will use traditional expanders for the upper and lower arches...but the bite will still be measured with NM diagnostic testing. I will definitely keep you updated when we start talking specifics. Phase 2 is tricky...yes, because you have to keep the right vertical dimension while you are moving things around. Not quite looking forward to that...lol...because I really just started to feel human again.
Will keep you posted! J.
The following user gives a hug of support to Jill 227: MountainReader (06-15-2011)
What good news! what I've noticed about many of these message boards is the plethora of sad, upsetting stories. Sometimes I get depressed just reading them and then feeling sorry and hopeless for myself.
My husband reminded me that when people start feeling better...they are not posting as much. They are back to living their lives.
That is why I'm truly thankful you posted an update to let us all know that there is hope!
May I ask you a few questions?
1. Did your insurance cover any of this? (my NM only takes my money and I must try to get reimbursement myself...which they won't pay anyway)
2. Did you wear an ALF appliance? ( my NM recommmends)
3. Do you think all the $ for the NM was worth it?
Again...I'm SO glad to have discovered this forum recently. I'm a busy mom and I have been so depressed and feeling helpless.
Hey Jean.....Yes, there is hope out there...About insurance....No, I have NO coverage...and I have 2 kids also in treatment...YIKES!! lol. We are broke. It was worth every penny though to get my kids to a proper specialist...and to start to feel well again.
The ALF is a fantastic appliance. I have friends that are using it as well for expansion...it's a good thing, but of course the dentist treating you should be highly skilled. It's used in phase 2 modalities...not in phase 1. Remember too....TMD is a whole body dysfunction..not just the jaw. I am in PT, craniosacral therapy, and A/O chiro. treatments currently. Postural dysfunction needs to be addressed as well to calm the muscles in the head/shoulders/neck areas. Things like hyper pronating feet and knees also need to be checked...because when the mandible is not in the correct posiiton...it is like a chain reaction in the skeletal system....the house of cards falls....and it needs to be put back together slowly...and carefully. I would be happy to answer anymore questions about my treatment. Take care! J.
Last edited by Jill 227; 06-15-2011 at 07:49 PM.
The Following User Says Thank You to Jill 227 For This Useful Post: jeanharlow (06-15-2011)
I can't thank you enough for your post.
tomorrow I'm going to type up my NM Dr's treatment plan so you all can take a look and tell me what you think. (at your convenience)
Also TMJ82 has been very kind and helpful as well. I'd appreciate her input also.
Crazy that your 2 kids have tmj issues as well. My teen daughter is now complaining of the same thing. Her jaw hurts and has locked before.. My thought was oh please no...not her too!I can't stand to think my children would suffer through this as well. Its good you are so pro-active on your plan for the kids.
Thank GOD i've found this forum. Truly nice to share these thoughts with people who understand. My husband and Mom are trying to be understanding but they just don't get it. Its difficult when you look "well" and have no physical maladies.
There have been days when the pain in my head was staggering and I could barelyget out of bed to care for my little one.
However, I'm confident that there is a way out of the dark and I'm looking forward to seeing the light!
Thank you so much !!!
thank you, jill.
im now going to type up the evaluation from the dr. maybe you can explain it to me in real language since i don't understand and you are well-versed in the language of TMJ.
"Patient presents with chief complaint of TMJ. An MRI performed in 8/09 reveals a medially displaced disk and the left tmj and marked decrease in anterior translation" WHAT DOES THIS MEAN?
Clinical evaluation indicates facial asymmetry with a left torsion cranial lesion, internal rotation of the right maxilla, a head tilt to the left, maxilla canted up toward the right, a midline shift to the right, a limited jaw opening of 25mm, a heavy maxillary frenum and a high palate.
Treatment requires 2 phases: First is the TMJ phase to properly position the maxilla and mandible with respect to cranial base, decompress the tm joint, and attempt to recapture the displaced disc. The 2nd phase is the Orthodontic Phase to level and align the teeth in the position obtained in phase 1. The next stip is to have a complete workup to determine the amount of expansion and advancement rerquired to establish tmj decompression, the proper maxillary and mandibular arch form for improved swallowing and breathing.
The workup includes a 3D conebeam CT scan of the cranium, a complete photographic series, a joint vibration analysis , a new MRI and impressions of the teeth and gums.
The ALF/Omni applianes of phase 1 treatment are 6,000. The appliances require periodic adjustments at 4-8 weeks.
Concurrent with Phase 1 treatment is cranial osteopathy, and myofunctional swalling therapy. Also, it is likely prolotherapy witll be required to strengthen the ligaments in the TMJ.
Approx. treatment time is 12 months, at which time another MRI will be performed to ascertain TMJ condition. if the disc is still displaced, than surgery will be required. If things have improved, then we move on to Phase 2."
OK!!!!! sorry that was so long! First of all it sounds like I must look like Quasimodo in the hunchback. And honestly- I can't see any facial asymmetry.
As for the swallowing..what??? how could I be swallowing wrong? Wouldn't I know???
Anyways, this NM is a highly respected Dr. and I personally like him and want to trust him. But I'm scared as hell.
I would SO appreciate your feedback on this. I know its long..so whenever y'all get a chance...I'm here. My first appt. is scheduled for a week and I"m contemplating canceling it. Mostly due to $$$$$$!!!
Hey there again....I am not that well versed in disk displacement...medial I think means it has shifted to the side...not front and back...but dont' quote me on that. Asymmetry, rotation of the maxilla, and the cant in the maxilla can all be fixed with functional jaw orthopedics, and osteopathy. The high palate...is what is giving you tongue thrusting issues evidentally, (thus, the need for a myologist). I bet you have airway issues too...are you a mouth breather??
If you'd like, I can copy this and send it to someone who can give me some insight on the treatment plan. Being that it's friday...I don't know if anyone will answer emails...most docs don't work on fridays..lol.
All of this sounds much worse on paper than it is....yes, the disk displacement is not the best outcome....and I have heard that medial displacement is harder to treat than anteriorly displaced disks....but again, that's just something I've heard from other doctors. Yes, all of this is going to be expensive.....but like for my case...I chose my health over finances...because I had no quality of life anymore.....I know it's so hard...and a big decision. I will let you know if I get a reply back soon. Hang in there...
it all started about 2 years ago when I started waking up feeling dizzy and exhaused. pain in my head, eyes and neck and ears. I went to all kinds of different drs... (PCP, neurologist, ENT,Heart DR.) I became so anxious that I was put on Zanax and effexor and NO ONE mentioned TMJ. It wasn't until about 4 months of fruitless tests, appts. etc. that we discovered what was wrong and it was because my jaw locked!
In hindsight, my jaw had clicked and popped every time I yawned but I had never even heard of TMJ and none of the Dr's mentioned it either.
I went to an oral surgeon (under rules of blue cross blue shield) He made me a soft splint which i wore 24/7. Went to physical therapy and instantly started feeling better! I thought I had beat TMJ and was so happy again.
And then....a few months ago, I noticed all the symptoms returning. Then my jaw locked and WHAM...here I am back to the horrible pain in my face, neck
dizziness, inability to chew...etc.
That's when I sought out the NM Dentist with the ALF idea. However, I've never before heard anyone say my face is assymetrical or i swallow incorrectly!
I'm truly at a loss.
I think so many of us are in the same boat. Not knowing what/where/who to go to and how to react.
People like you are a huge help. We can share ideas, commiserate and also to cheer each other on! I'm so happy to hear your treatment is working and you are on the path to happiness again!
hi everyone. I haven't been on here in many months...but i wanted to update you all on my treatment and progress. I have been in nm treatment for approx. 1 and a half years now. I have been wearing a series of nm orthodics, made to be worn 24/7, even while eating. When i started treatment, i had no quality of life. I was in total agony. Pain level off the charts. I had basically every symptom known to man regarding tmd. (btw--i developed tmd when i had traditional ortho. And extractions 22 years ago)
i now can say that my life is finally getting back to normal. My pain levels have dropped from about a 20...off the charts.....to about a 3-4 daily. I am still in pt, craniosacral therapy....atlas orthogonal chiropractic care once a month...and i am still in phase 1 nm treatment. Hoping to start with phase 2 soon..which will be moving my teeth and expanding both jaws to correct what my orthodontist did to my bite and face/jaws..22 years ago. Nmd has saved my life.
hi jill! I've seen you mentioned facial distortion once in healthboard. How could your dentist fix that? What splint you wore to fix that facial problem? I tried to ask everyone here, but no one answer me. I got anterior displacement w/o reduction but no hurt. My biggest complain is my face!! It's almost skeletal. Sunken cheek and thin temple areas, just like you have posted before. Plssssss answer me!!