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Old 06-21-2011, 12:04 PM   #31
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Re: New to all this/ still waiting to see a specialist.

Yeah, I would not worry about your teeth. More than likely they are healthy and the problem is not the teeth.
It is very likely that you, like me, have some sort of neuro-muscular TMJ that throws your bite and muscles out of alignment. I think it is your best bet to figure out what is causing the TMJ and eliminate the cause, and you can opt for splint and braces after that.
As an example, in my case it was the dental bridge so I had it cut and feel better; however, I still need to align my teeth because they are in a total mess :-( I have braces out in yeasterday, hopefully they can give me a good bite I had before this nightmare happened.

 
Old 06-21-2011, 12:27 PM   #32
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Re: New to all this/ still waiting to see a specialist.

I was excited when she said there was nothing wrong with my teeth. That just means my routine is working. LOL I hope and pray that everything works out for you. You sound happy with the progress so far. I am still just in the waiting phase to even see someone. IRRITATING!!!!

 
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Old 06-21-2011, 11:19 PM   #33
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Re: New to all this/ still waiting to see a specialist.

I am really just getting irritated with the pain. For the past several hours I have been fine. While brushing my teeth before bed, a few of my teeth were sensitive and teeth that never bothered me before where hurting while flossing. But this morning when I was doing the same routine they were fine. This is why I can't get past the "something is also wrong with my actual tooth" thing. Then there are many nights when I go to put my custom fitted night guard in, it feels like it is a very tight fit. As if I am forcing my teeth to fit into the guard. But in the morning there is no pain, pressure, nothing.

I am hoping that the ENT calls me sometime here soon, considering that is apparently the road that I have to go, because I am so tired of dealing with the random pains. I feel as if he didn't believe me and is blaming it on sinuses or allergies. I did ask for a prescription for allergy medicine, but I am old enough and know my body to know that what I am feeling is not related to that. I know when I am having sinus/allergy pain and it feels nothing alike. I know I have to be patient because I am not even being seen by the TMJ specialist yet. And I feel like I still have a ways to go. I guess I am just scared that I am going to "blame" all the pains I am having with individual teeth on the TMJ and then actually have an issue with one of them and it not get resolved quick enough.

TMJ82 You mentioned several times that yours was caused by a bad dental bridge. Do you mind me asking why you needed the bridge in the first place. I know it was to replace a missing tooth, but what happened.

I know that I am, and it is constantly in the back of my head, scared of loosing my teeth. Especially at a young age. There are some days/nights where I have so much pressure in my mouth, that it honestly feels like they are going to just pop out. I am 29 years old and just, 17 months ago, had our first child. We are wanting more but I want to wait until all this is resolved because I don't want to make things worse. I don't even know if we should just go ahead and start trying for another one now or just wait.

I am sorry for the rant and I more that likely have repeated myself tonight with an earlier post. But it really does help me writing it down and then getting advice from someone whom is going through the same a very similar situation.

Thank you so much for taking the time to help me and de-stress me.

Last edited by armywife2007; 06-21-2011 at 11:40 PM.

 
Old 06-22-2011, 08:21 AM   #34
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Re: New to all this/ still waiting to see a specialist.

armywife2007
no problem, I know how you feel. I myself had a flare of pain tonight and could not sleep pretty much the whole time. One thing keeps me going, is that the flares are not that often now and seem to gradually decrease in the intensity. So hopefully, I am on the right track.
We are pretty much the same age, I am almost 29 I have neglected my teeth while being a student, so I ended up having a tooth root-canaled without a crown (only a filing). That lasted about 4-5 years and broke when I was pregnant. So I did not take care of it until after I gave birth and was done breast-feeding. By that time, the tooth was non-restorable. Stupid me for deciding to save some money and opt for a bridge! Should've had an implant done right away, which is what will eventually be done when I am off with braces.
I know how you feel when you say that your teeth are moving. My moved A LOT, I could see that by the way my front teeth looked and shifted. My midline is almost a tooth to the left and it was pretty centered before. Now as I got braces only 3 days ago, they seem to not move that direction anymore. I am hoping and praying that braces stopped that crazy movement for good, and will eventually reverse the chaos that was done to my bite. And of course, I am hoping to get rid of annoying bodily pains.
I also know too well what you mean when you say that you know your body and it is not allergy. No, it is NOT. I never had allergies and anyway, I could tell you that this is nothing like an allergy. From my sad experience, I only could tell you to stop wasting your time and money on ENTs, traditional dentists, primary care etc. Go directly to TMJ specialist, even if you have to pay out of pocket. Or else, you can do braces but this might be risky. I will let you know how I am doing if you don;t find a solution by that time. So far, seems like I might be on the right track...

Last edited by TMJ82; 06-22-2011 at 08:45 AM.

 
Old 06-22-2011, 08:25 AM   #35
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Re: New to all this/ still waiting to see a specialist.

P.S. Be prepared to face a lot of misunderstanding from doctors and people around you. My husband still thinks that "teeth dont move. period." and that I am imagining all that. He thinks that all those pains are only in my head as well. If you go to a primary care complaining about pain, I guarantee they will not find anything wrong. Probably, you are like me - very in tune with your body, much more than other people. So you and I feel everything earlier (I knew for sure I was pregnant 3 days post ovulation because everything down there hurt - and NOBODY, including my husband, believed me). This is a gift, but it is also pain in the butt, because you may find out that people just do not get you, and you are completely on your own taking care of this.
Please feel free to send me a personal message if you'd like to chat about this.

Last edited by TMJ82; 06-22-2011 at 08:32 AM.

 
Old 06-22-2011, 08:46 AM   #36
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Re: New to all this/ still waiting to see a specialist.

I have already faced misunderstanding with many doctors and dentist. But thankfully my husband believes me. As for wasting money and time on ENT's, PCM, ect. This is the route I have to take for my insurance and considering my husband is in the Army, I don't have to pay for anything that is medical such as the ENT and Primary Care Manager. But as for TMJ I know that will be a trickier subject because it is one of those gray areas that Tricare only covers so much of or not at all.

I feel like I am being thrown in circles and that alone is irritating. Apparently there are only 2 other wives here that have dealt with TMJ. One says that she got her referral from her dentist and the other said she had to go to the hospital to get hers. Both say that they have to drive the 2 1/2 hours to Shreveport Louisiana. But when I do a search for specialist up there I find nothing. It is frustrating. I don't mind driving the distance I just don't want to waste the time (when it comes to seeing the TMJ specialist) with the wrong one.

 
Old 06-22-2011, 08:56 AM   #37
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Re: New to all this/ still waiting to see a specialist.

armywife2007
you have to look in the Internet if there are doctors/dentists/orthos that do TMJ evaluation and treatment in your area. You will probably have to drive some, but consider giving them a call and consulting what type of therapies they usually do for TMJ. That is how I found my doctor, who did a splint that lessened my pain and overall, leveled my ruined bite somewhat.
However, if your major concern is drifting upper teeth, the splint therapy alone might not resolve it. You will never know before trying, though. You might need braces afterwards to correct your bad bite that causes the teeth movement. But certainly, I would get right on it and start with the splint.

P.S. Why dont you do a search, find a right doctor and ask your PCM to give a referral for that particular doctor?

Last edited by TMJ82; 06-22-2011 at 08:58 AM.

 
Old 06-22-2011, 03:35 PM   #38
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Re: New to all this/ still waiting to see a specialist.

So I called my insurance company today because I was feeling like I was getting the run around, and I wanted the information from them. Well, I talked to two different people. One said that I NEEDED a referral from my doctor and the other said that the one from the dentist would work as long as they filled out the referral paperwork and sent it to tricare. Well then I registered online with Tricare so I would be able to see the referrals and if they were approved or not. When doing this I noticed that the referral for the ENT that was just sent on Monday was denied due to incorrect information. SO I CALLED. The lady I spoke with said that it was denied because the doctor didn't specify whether it was for ENT or TMJ. So she sent it back with the correct information on it. And said that she will sent me to the TJM specialist up in Shreveport, LA. I even started crying while on the phone with her because I was so frustrated. And told her not to think anything of it. She was so nice and calmed me down and said that she was sending me to the best in the state, has only heard great things from them and they are in network. YAY!! She even said that she would call me in the next 48 hours and let me know what was going on.

 
Old 06-22-2011, 05:57 PM   #39
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Re: New to all this/ still waiting to see a specialist.

This is great news! Hopefully you finally get to see a good TMJ doc. Please let me know how it goes!
As about me, I barely slept last night because of pain, and surprisingly, all my symptoms misteriously disappeared as soon as I left home and went to work. I was fine the whole day, and as soon as I came home, I got anxiety and mild nausea, my bite feels terribly off and my pain starts to return. Maybe my husband is right that, in addition to real symptoms, my mind is playing tricks on me. Maybe he's also right that I need to give some time for braces and splint to work. To be honest, I feel better over time, but this is a slow gradual improvement, not that abrupt stop of all the symptoms that I expected.
Oh well, this is life. I have accepted that my body will never be the same again, so at least I am hoping for a stable bite and pain free life in future. Please let me know how you are doing!

 
Old 06-22-2011, 06:41 PM   #40
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Re: New to all this/ still waiting to see a specialist.

Quote:
Originally Posted by TMJ82 View Post
This is great news! Hopefully you finally get to see a good TMJ doc. Please let me know how it goes!
As about me, I barely slept last night because of pain, and surprisingly, all my symptoms misteriously disappeared as soon as I left home and went to work. I was fine the whole day, and as soon as I came home, I got anxiety and mild nausea, my bite feels terribly off and my pain starts to return.
I was told by a dentist in Indiana that stress can play a part in the pain as well. He told me that I needed to destress my life.

 
Old 06-22-2011, 08:28 PM   #41
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Re: New to all this/ still waiting to see a specialist.

Tooth pain is very annoying. I get it from time to time and I know it is from grinding or clenching my teeth at night. I recently got pain in one tooth, it was on the morning I woke to find I had chewed up the inside of my mouth. So I know I was clenching my teeth and biting myself. I try to sleep on my back so as not to aggrevate my tmj. I do exercise too before going to sleep so the joint muscles are relaxed. Stress is a big factor for me and I have to be careful and recognise when there is too much stress in my life. The pain in my tooth is beginning to subside but it can never happen soon enough. Good luck and know you are not alone.

 
Old 06-22-2011, 08:48 PM   #42
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Re: New to all this/ still waiting to see a specialist.

Quote:
Originally Posted by ltzoomer View Post
Tooth pain is very annoying. I get it from time to time and I know it is from grinding or clenching my teeth at night. I recently got pain in one tooth, it was on the morning I woke to find I had chewed up the inside of my mouth. So I know I was clenching my teeth and biting myself. I try to sleep on my back so as not to aggrevate my tmj. I do exercise too before going to sleep so the joint muscles are relaxed. Stress is a big factor for me and I have to be careful and recognise when there is too much stress in my life. The pain in my tooth is beginning to subside but it can never happen soon enough. Good luck and know you are not alone.
Thank you. My random pains are usually just like I said random. I can be making dinner or sitting and playing on Facebook. It will last for about 5 minutes and then subside. Just more annoying. But I know when I start to get the pressure and pain in my teeth, the pain in my jaw (from ear to chin) will start soon. And then from there it goes down the neck up the head. And then I think it is funny. My dentist says that I need to be using a sensitivity because he said I have sensitive teeth. Well I know the difference between drinking cold water or hot coffee and it hurting from these random pains.

Thankfully I have found one friend here in Louisiana that is going through a similar situation. It has nothing to do with TMJ but it does deal with pain and doctors thinking she is making it all up.

 
Old 06-27-2011, 06:04 AM   #43
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Re: New to all this/ still waiting to see a specialist.

Hi armywife2007
just checking on your situation. And also wanted to share my news since it might be also relevant to you.
I had CT scan done last week due to constant nausea and pain, mainly in the left side now. I did not remember if I have mentioned but my left eye is noticeably bulging and the eyelid is droopy. Well, they have found a large bony structure in my left frontal sinus, called the exostosis. It is probably what's pressing on my eye and might cause pain and pressure as well (and maybe even teeth movement who knows - everything is so intimately connected in the face). Don't laugh, they have referred me to an ENT :-) I will make an appointment right now. This is not life threatening, but I don;t want a bone of unknowing origin obstructing my eye.
Just wanted to share, in case you have had a CT done. If not, might be something to ask your ENT about if you still have a referral :-)

 
Old 06-27-2011, 08:41 PM   #44
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Re: New to all this/ still waiting to see a specialist.

ENT that is funny. LOL At least they have found a reason for the pain. I have been to an ENT within the year and there was nothing there. So I am currently still waiting for the referral lady to call me back and tell me what is going on with the referral for the TMJ specialist. Hopefully they call me sometime here soon.

 
Old 06-28-2011, 07:54 AM   #45
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Re: New to all this/ still waiting to see a specialist.

armywife2007

the ENT was basically useless, but I figured that anyway. My TMJ is what is causing all that and not something else.
Today I feel worse than ever. Looks like I have backed up to the point where I started the TMJ treatment. I could barely function today because of the constant muscle spasm on the right side of my face and neck, eye pressure and ear fullness. My ribcage pain/burning sensation on the right side is also horrible.
I will see my TMJ doctor later today, but at this point, I am hopeless. I wonder if he could make me a repositioning splint at no or little charge, because I am running out of money. Gosh, I dont even believe the repo splint will help. I would not wish this thing on my worst enemy.

 
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