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TMJ Disorder -TemporoMandibular Joint Message Board
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Old 05-10-2012, 09:10 AM   #1
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TMJD Specialist?

Hello Everyone,

I have looked on the Great Doctors Thread already. I was wondering if anyone has had a good experience with a TMJD specialist in southeast Michigan area; please send me a private message.

It appears finding someone who is a member of the American Academy of Craniofacial Pain is what I should be looking for. Maybe also someone who uses Functional Jaw Orthodontics, however, I can't seem to locate anyone who is a member of BOTH of those academies.

I think I'll stick with the AACO member I guess.

BTW - making a LONG story short, I developed chronic 24/7 headaches after having my 4 wisdom teeth pulled years ago. I've seen TONS of neurologists, ENTs, eye docs, headache clinics, TMJ docs/dentists over the years. Dental x-rays/tomograms apparently indicate posteriorly displaced condyles, and possibly medially displaced disks. The pain is 24/7 behind/around my eyes, forehead, temples, bilateral. Also, ears feels clogged/stuffed, head feels like a sinus headache (but it is not). Anyway, I'm ready once again to try some new treatment and I want to start with a good TMJD doc. I hope I have the stamina to 're-tell' my story all over again the new doctor (it gets so tiring).

One last question - although I've had an MRI scan of just about everything above my waist (head, neck, brain, sinuses), the TMJD docs I have seen have never wanted to take an MRI (only tomograms/x-rays). Shouldn’t an MRI be warranted since none of the splints I have worn have worked to date? I have worn the orthotic that has moved my lower jaw down and forward, but that did not help. I have tried the NTI splint too, however, I don't grind, and that did not work either. Whomever I end up going to, they must treat the cause, not the symptoms.

Ready to start the whole process again! Thanks in advance for any advice or tips or suggestions!
mbr64

 
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Old 05-10-2012, 08:03 PM   #2
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Re: TMJD Specialist?

Quote:
Originally Posted by mbr64 View Post
... I have worn the orthotic that has moved my lower jaw down and forward, but that did not help...
mbr64
Hi mbr64,

Sorry to hear about your situation, I know how frustrating it is to go from doctor to doctor. I also have 24/7 chronic muscle tension and spasms around the jaw, temple, head, and neck area, and have also seen more than 20 doctors in the last 18 months.

Sorry I'm unable to answer your questions, but I'm hoping you could share your experience with us, particularly about the orthotic that moved your jaw down and forward. The reason why I'm asking is because this is the current treatment I am doing (I'm about 2 weeks in my orthotic now). So I would really like to hear stories from others who have gone through it before, whether or not the story is successful or unsuccessful.

So my questions (specifically about the orthotic, not the NTI splint) are:
1. Did you go through the TENSing and K7 to make the orthotic?
2. How long did you wear the orthotic for?
3. Did you wear the orthotic 24/7? (Including speaking and eating with it on).

Also, question about posture:
1. Have you checked with any chiropractor to see if you have any postural issues? (e.g atlas/neck misalignments or loss of lordosis, etc).

Thanks!

Again, sorry I couldn't answer your questions. I wish you all the best in finding someone who can help!

 
Old 05-12-2012, 07:47 AM   #3
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Re: TMJD Specialist?

Hi -

The NTI splint did not work for me, I think because I don't grind or brux, that's why. However, it didnt hurt anything either.


I wore the orthotic on my lower teeth, and yes it was crafted after using the TENS machine and other things. It did move my jaw down a bit and forward a bit. I think maybe I didnt give it enough time wearing it 24/7 - I can't recall now, but I'm sure I didnt wear it 24/7 for too long. Moving forward, if the new dentist wants me to wear it 24/7, I'll do that for as long as it takes.

I also wonder if maybe I dont have a muscle problem, but rather a joint issue, I'm not sure a splint will work? Not sure on that. That's why I would like a doctor to take an MRI of my TMJs to determine if the discs or condyles are screwed up or deteriorated.

I have seen a chriopractor and have had images of my neck taken. I may pursue that route again just to see if anything is wrong there.

Whatever you do, if surgery ever becomes an option, make sure to get a lot of opinions before you ever do surgery, IMO.

Thanks
mbr

 
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