Re: Headaches are out of control
Unfortunately, there is not any one easy solution to your issue if it is caused by muscular TMJD.
I've tried your entire list of stuff over time. I've found when the spasms were at their worst, I needed to hit things a bit harder. At this point, you might want to talk with your doctor about a short term script of a muscle relaxer. I have never relied on this, but even a few days taking the muscle relaxers gives me some relief to help break that intense cycle. It also allows me to get a couple good nights sleep. I also found multiple sessions of PT (or even massage) working on my orofacial trigger points, neck, shoulder, first ribs and even some hip alignment really helped with the intense spasms. A good Chiropractor can also help with the alignment issues that occur with TMJ. Proper posture plays an important part as it relates to TMJ issues, as does sleep position, proper chewing and breathing. Exercise also makes a difference.
Are you a bruxer? Clenching, especially the intense nighttime clenching and grinding can make things much worse. This needs to be treated if you do.
Have you seen a TMJ orthodontic specialist to talk about specific treatment options for you recently? If you pain is getting to this intense, it might be time to seek out further treatment. When I finally found a good TMJ specialist and got a great custom lower mandibular repositioning splint, it took about 3 months, but my muscles slowly came out of spasm. Getting the jaw into proper positioning addressed my tmjd muscle issues. I did use the splint in conjunction with multiple other treatments as well though.
I'm almost 3 years into my treatment and still have some occassional bad days, but I'm 100% better than where I used to be. Time, consistency and taking a multiple prong treatment approach has significantly helped. I'm hoping by the time I complete treatment that I'll rarely have to deal with such intense flares of pain.
Wishing you well,
Asthma, Allergies, severe LPR/GERD, Anemia, TMJD, Hearing Loss, Ulnar Impaction Syndrome, Shoulder Impingement--both shoulders, Benign Joint Hypermobility, possible Ehlers Danlos Syndrome