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TMJ Disorder -TemporoMandibular Joint Message Board
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Old 09-05-2012, 01:05 PM   #1
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Headaches are out of control

I have muscular TMJ. My head and neck pain are so out of control I seriously want to cry but don't only because it causes more pain!

I always have aches in my neck daily but I am getting very severe forehead, temple and head pain now that is out of control. It is like stabbing pain. I've had this for probably 10 years now off and on but we're talking once a month, max. Now, this pain is becoming more chronic. I am presently on day 2 of the following:

1. Eyes ache and hurt.
2. Sharp temple pain that switches sides and comes and goes.
3. Forehead pain.
4. Feels like someone is taking their hands and pushing down on my head constantly.
5. Severe neck pain and spasms.
6. Jaw stiffness.

What I cannot handle is the temple and eye pain. It's out of control, makes me even sick to my stomach.

Things I've tried:

1. Advil
2. Tylenol
3. Ben Gay
4. Heat
5. Ice
6. Artificial tears
7. Saline nasal spray

NOTHING is helping.

Does anyone relate to my symptoms and what do you do when you have this going on and nothing helps?

I was just at the eye doctor on Friday for increased eye floaters and he said my eyes looked perfectly fine so there's nothing up with my eyes. I wasn't checked for glaucoma but this doesn't fit. He said my retina and every other part of my eyes were normal.

I am at my wit's end with the pain.


Last edited by ClevelandEuc; 09-05-2012 at 01:08 PM.

 
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Old 09-05-2012, 09:33 PM   #2
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Re: Headaches are out of control

Unfortunately, there is not any one easy solution to your issue if it is caused by muscular TMJD.

I've tried your entire list of stuff over time. I've found when the spasms were at their worst, I needed to hit things a bit harder. At this point, you might want to talk with your doctor about a short term script of a muscle relaxer. I have never relied on this, but even a few days taking the muscle relaxers gives me some relief to help break that intense cycle. It also allows me to get a couple good nights sleep. I also found multiple sessions of PT (or even massage) working on my orofacial trigger points, neck, shoulder, first ribs and even some hip alignment really helped with the intense spasms. A good Chiropractor can also help with the alignment issues that occur with TMJ. Proper posture plays an important part as it relates to TMJ issues, as does sleep position, proper chewing and breathing. Exercise also makes a difference.

Are you a bruxer? Clenching, especially the intense nighttime clenching and grinding can make things much worse. This needs to be treated if you do.

Have you seen a TMJ orthodontic specialist to talk about specific treatment options for you recently? If you pain is getting to this intense, it might be time to seek out further treatment. When I finally found a good TMJ specialist and got a great custom lower mandibular repositioning splint, it took about 3 months, but my muscles slowly came out of spasm. Getting the jaw into proper positioning addressed my tmjd muscle issues. I did use the splint in conjunction with multiple other treatments as well though.

I'm almost 3 years into my treatment and still have some occassional bad days, but I'm 100% better than where I used to be. Time, consistency and taking a multiple prong treatment approach has significantly helped. I'm hoping by the time I complete treatment that I'll rarely have to deal with such intense flares of pain.

Wishing you well,
MountainReader
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Asthma, Allergies, severe LPR/GERD, TMJD, Hearing Loss, Ulnar Impaction Syndrome, Shoulder Impingement, Plantar Fasciitis, DeQuervains, Hypermobility, possible Ehlers Danlos Syndrome

 
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Old 09-06-2012, 05:15 PM   #3
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Re: Headaches are out of control

Are you in a splint? I tried to see your old posts but don't see that anywhere? A good 24 hour splint needs to happen right away. I'm 5 months into a splint and while I still have pain its not as severe.

Neurontin or lyrica will help the pain. Also some people have success with antidepressants.
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Old 12-04-2012, 11:49 PM   #4
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Re: Headaches are out of control

Hi...

This is exactly what my tmj has become. It has never been so severe and nothing at all is helping. I have a mouth guard that only makes me wake up with jaw pain. I have no idea what to do

The migraines are horrible... temple.. forehead and entire left side of my head.. face and neck if you hear or find anything that helps PLEASE let me know.

Thank you.

April

 
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Old 12-04-2012, 11:52 PM   #5
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Re: Headaches are out of control

You have mentioned that lyrica will help the pain but the side effects are grusome to someone who doesnt have any health issues besides tmj. Did you experience these side effects that are mentioned with this medication?

 
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Old 12-05-2012, 02:11 PM   #6
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Re: Headaches are out of control

I have been on both and both have heavy side affects the first 2-4 weeks that then fall off. Stick with it and you'll notice them go away. They come back a bit as you increase dosage.
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Old 12-05-2012, 06:12 PM   #7
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Re: Headaches are out of control

Thanks for the reply. I am doubtful that I will give it a try as am not fond of bad side effects. I started taking a magnesium liquid today and today is the first day in six, that I have no pain. Am hoping it stays that way. Also start shiatsu this week so am hoping that helps as well

Thanks again

 
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