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Old 02-09-2013, 04:19 PM   #1
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Cool What to say...

Hello to all...
It's true, I really didn't know what to say to make a first post here. I am looong time in "jaws" of TMJ disorder. I've just spend days reading the most of this forum, determined to find success stories, if any.
I don't know if I was expecting to find someone who got cured or to find out is this thing going to kill me and when can I expect it.... of course, you can't find those answers in life everything is just like in relativity theory.
Anyway, there are success stories on the forum but most of the are not active any more, so I can't ask them how they're feeling today. I might say that I'm better today than somewhere in the past, and I'm not in any treatment. I can see that most of the people are in "claws" of NM dentists, some getting better, some not, but all certainly providing a good living for those specialists.
I'll try to say more next time, thanks for listening...

 
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Old 02-09-2013, 10:36 PM   #2
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Re: What to say...

Welcome to the board.

While I can't say I'm a "success story" yet, I can say that I've been able to get some pretty severe symptoms under control. I'm in the process of Phase II treatment to try to keep the symptoms at bay. I've learned a lot over the years and right now, I'm very pleased with what I've been able to accomplish so far.

I'm in treatment with a functional orthodontist with training in orofacial pain treatment. I found a lot of success with PT and trigger point work as well.
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Asthma, Allergies, severe LPR/GERD, TMJD, Hearing Loss, Ulnar Impaction Syndrome, Shoulder Impingement, Plantar Fasciitis, DeQuervains, Hypermobility, possible Ehlers Danlos Syndrome

Last edited by MountainReader; 02-09-2013 at 10:37 PM.

 
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Old 02-10-2013, 02:53 AM   #3
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Re: What to say...

Hi dunkl

Although new to the board I am successfully keeping TMJ at bay using PT, stretching and myfascial treatment. I have not had to use splint or anything like that as I was able to treat mine without medical assistance.

I do keep a constant vigilance to ensure I stay on top of things and to act preventative instead of having to treat symptoms. I would like to look into trigger point treatment at some stage to see if I can correct some muscular imbalance which caused my TMJ but that will have to wait for now.

What are your symptoms and when did your TMJ start? How are you treating or managing it?

Last edited by lancewan; 02-10-2013 at 03:01 AM.

 
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Old 02-11-2013, 05:07 PM   #4
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Re: What to say...

Hello and thanks for the interest
I've tried writing something about my history, but there was so much there that I just couldn't finish...

In summary, it started in nineties, from not knowing what's wrong with me, trough being treated by various doctors, to realizing that I'm on my own, starting to get information from libraries, publications, internet... Started as pain in my teeth and upper jaw, so I was ping-ponged back then between dentists and otorhinolaryngologysts for a long time.

I'm always in pain, in my jaws/teeth. Accompanying that, all symptoms mentioned by other people here, except locking and limited opening. Not all symptoms in the same time, to keep things interesting . I finished last year with harsh chronic fatigue and pain all over my body, but that is better now, because of exercising and stretching.

I was looking to trigger point therapy myself lancewan, but practitioner told me that it's rarely effective without stretching first. And stretching is free, so I'm on it right now.

I must say with all things I have read (and experienced) in my life about this, I don't "believe" in NMDs and splints, but there are a lot of people feeling better in this type of treatment, so I will have to try. ( I am a clencher, and I can't think of anything else making me this ill. I am trying to "train" myself not to clench during a day, but I don't know what's happening in my sleep.) Being so expensive, I don't know when.

One of my symptoms that is always present is tinnitus, and it's giving me hard time when I want to relax, get some silence. No silence for me Relax is another funny word, I don't think I can do that properly, I will tell you that story sometime.

MountainReader, I've read most of your posts too, among others, I'm glad treatment is working for you, and I hope it will continue to work for you.
I wanted to ask you, what happened when you started your treatment with Dr. Guinn. I was reading some of his papers and he seems to have very healthy and intelligent view on TMJ problem. Do you think he wasn't "into" your case enough to wish to help you?

I'm really having a trouble putting words here, like I have too much on my mind that I want to say, much more that can pass trough my fingers in the real time. Will try better next time.

 
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Old 02-11-2013, 08:15 PM   #5
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Re: What to say...

Hi again,

I think it is great you are doing your research. A lot of what I've learned has been through books, the internet and people sharing on HealthBoards. It not only helped me in my search for treatment, it also helped me figure out what I needed to ask when I had appointments.

If you haven't checked it out yet, my favorite book (and I've read my share) on TMJD is The TMJ Healing Plan by Cynthia Peterson. It educates on what the TMJ is and what to expect with TMJD. It also discusses a variety of things you can do on your own as well as the options that you may want to consider medically.

I'd say that I have mixed views on splints. I now think that they can be extremely beneficial if it is designed and fitted well by a highly trained dentist. Through experience, I've also found that splints not designed properly or not fit properly can contribute to TMJD or actually make things worse. The combination of splints my current orthodontist designed and fitted me for did wonders for me. The lower mandibular repositioning splint combined with ultrasound and PT really helped me rediscover my "natural" bite and get my facial muscles loosened up so I was comfortable in my "correct" bite. Because I had issues with bruxism and my lower jaw falling back when I slept, which made my TMJ symptoms worse. Instead of wearing my repositioning splint 24/7 I had a new nighttime upper splint custom made for me. After adjusting to the splint, I fell in love with it. This particular splint had a "beak" in the front that kept my bite at the same height as my daytime splint. It also had a slanted wedge that came down in behind my lower teeth so my jaw couldn't fall back when I slept. There was no way my teeth could bite together when wearing it so I wasn't able to brux either. My most HATED splints were the NTI's. They are a very bad choice for me and I was in extreme pain last time I tried even though the splint was adjusted and fit well.

Your comments made me look back on my early TMJ board posts. I couldn't believe when I realized I'm literally 3 years + into treatments now.

You are right. Dr. Guinn is very intelligent and knowledgable on TMJ. His practice is 100% TMJ. I liked that his approach is to look at natural approaches for treatment. He did have some things he recommended that I did find useful. He recommended my awesome PT. He also discussed other health issues I had that could impact my TMJD symptoms. He was very emphatic about need to get my shoulder treated. After my second visit with him, I just realized he wasn't the best fit for me and my needs. I chose to seek out another opinion. If I wasn't happy with my other options, I may have gone back to him. I connected much better with my current orthodontist. I found that he and his approach was a much better fit for addressing my current issues. The one thing I really liked about both dentists was that they both take a whole body health approach to addressing TMJD issues.

My problem was that I'd had surgery 2 years prior and had regained full ROM of my shoulder and my shoulder was as good as it could be. I have ligament laxity and joint hypermobility. My shoulder will always sublux a bit when it moves. Any surgery to tighten it will likely cause me to lose movement. The risks far outweight the benefits for that. That same laxity has caused me some wrist issues and has contributed to my TMJD also. Unfortunately all of my worst issues have all been on my right side. In the last year I've also had 2 surgeries on my right wrist. All those months in casts and splints has thrown my shoulder, neck and tmjd off.

Dr. Guinn did recommend a relaxation CD that I found useful. Freedom from TMJ: Power Dream by Denise Lynch. I played it regularly for a long time to help me relax before sleep. I often fell asleep listening to it. My dentists said that even with that I was receiving benefit subconsciously too.
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Old 02-12-2013, 02:58 PM   #6
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Re: What to say...

To both of you, you have my utmost respect and sympathy in dealing with your TMJ. I feel lucky that mine has been so easily resolved I wish you both the best.

P.S. Have either of you looked into Tapping or EFT? There seems to be a lot of good info and results where this techniques has helped a lot of various people using this technique to resolve a number of issues.

 
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Old 02-12-2013, 03:39 PM   #7
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Re: What to say...

Relaxation is the key, but somehow I can't reach it.
The book I have is Upgaard's "Taking control of TMJ", but I have read many and they are pretty much saying similar things. If you have read Upgaard, MountainReader, you can tell if Cyntia's book has something different or better, because that's the one I haven't read.
I can't exactly afford buying everything they say it helps, because most of it is false marketing, and money means work, work means more pain, more pain less ability to work... you know that vicious circle. I'm pretty much on my own in this. But many people are saying good things about that book, I probably want to get it. Books are never waste of money for me.
That relaxation CD, is that music, or voice saying something to your brain?

 
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Old 02-12-2013, 09:58 PM   #8
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Re: What to say...

Quote:
Originally Posted by lancewan View Post
To both of you, you have my utmost respect and sympathy in dealing with your TMJ. I feel lucky that mine has been so easily resolved I wish you both the best.

P.S. Have either of you looked into Tapping or EFT? There seems to be a lot of good info and results where this techniques has helped a lot of various people using this technique to resolve a number of issues.
Thank you for kind words
I've tried tapping once, guided by friend who was in it. Have not found myself in it frankly...
I have tried though something that looks like something called Trauma Release Exercise. Actually I was determined to see what's behind alternative approaches few years ago; among others, I choose a guy practicing bio-energy. What I was doing there, what he was claiming to be bio-energy going trough him to me, was actually almost the same thing they doing on TRE (some guy trademarked those three letters), that I've seen on videos on the net some time ago. Who's stealing from whom, I don't know they are all claiming to be something special, but possibly all stealing from Mr Wilhelm Reich. I didn't find anything so much spiritual about it, but the way I've seen it, some gravity forces, and the way our muscles function, induce a tremor trough body which leave a person really really relaxed after exercise. I was actually relaxed everywhere but in my jaw.

Right now, I can say aside pain and tinnitus, I'm happy when there are no neurological (or psychological) problems during a day (when I don't have twitching, problem breathing, when I'm not too tired in the morning) , I can function like that. When tension headaches arrive, I use ibuprofen, it holds 'em in bearable level.

Last edited by dunkl; 02-12-2013 at 10:05 PM.

 
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Old 02-13-2013, 03:15 PM   #9
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Re: What to say...

dunkl

The good thing is that you dont have an issue getting to a relaxed mental state so this helps managing your TMJ, the tension headaches are something you can deal with by working on the temple area and the area above the ears,

I normally have tension there and by massaging these areas helps release tension in my scalp, I have very little tension headaches when doing this and normal stretching.

Also work on your jaw muscles but work them slowly and deeply to help get tension and pain out of them, this will also reduce the tension headaches and other related symptoms.

 
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Old 02-13-2013, 06:11 PM   #10
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Re: What to say...

Welcome (I guess) to the boards...
I would like to consider myself a "success" story. I am better than where I was a year ago. I think of my TMJD every day, but due to a great TMJ dentist, and a repositional splint, I am finally getting my life back. It has been a long and not very pretty road. I've had to make some pretty significant lifestyle adjustments, and obviously dietary ones.

I've just moved into phase II and am truly hopeful that the worst is behind me. But, if there is still bad to come, at least I now have lots of tools in my pocket to deal with it!

 
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Old 03-02-2013, 05:08 AM   #11
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Re: What to say...

Gretel07, I'm glad you're on your way to recovery.
I've just had "better" days in the last two weeks, and I can tell that by the way I feel last few days. It's an interesting thing, how fast one can forget about certain symptoms, not even realizing they're gone. Now when I "got it" all back, I feel it's even harder to cope with all again, but I guess I'm happy I've had a few days feeling better. Unfortunately, I can't tell if I did something to make me feel better, or to make me worse again afterwards.

 
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Old 03-02-2013, 05:34 AM   #12
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Re: What to say...

I had a very bad day yesterday and linked it to some exercises I did at PT on Thursday! For me, anything lifting over the head can trigger a "bad" day. I am trying to strengthen my shoulder muscles and thought I could "handle" it... wrong! Exercises on the ball for me... no lifting overhead.

Think back to what you were doing over the last few days... pulling bushes out in the yard? hunched over your desk at work? pushed it a little too hard at the gym? There is usually a trigger... but it takes some time to figure out what it is.

 
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Old 03-02-2013, 07:16 PM   #13
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Re: What to say...

Lancewan how did you resolve your tmj and what caused it if I may ask??

 
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