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Old 09-13-2011, 08:54 PM   #1
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rwhitlock HB User
Light-induced tics?

Hi, I'm hoping someone can help us out. Not sure if this is TS, or something else.

My eight-year-old son has had this odd tic for a little over a year now. It occurs when he's in bright direct light, usually sunlight. He turns toward the light, as if drawn to it- he won't wear a hat or sunglasses- and blinks or flutters his eyes while waving his hand in front of his eyes. Often he will have an added twitch or spasm.

We took him to a pediatric neurologist, who said his EEG was fine, and said it seemed to be simply a habit, and not to worry about it. We're highly doubtful of that opinion, but unsure where else to go. It seems sort of like TS, but I haven't heard of light-induced tics like this. My wife has had a couple of seizures- could this be epilepsy-related? Or something like stuttering? Do we need an MRI, CT scan, therapy?

Hoping someone can shed some light on this. It is frustrating for him and for us.

Thanks,
Randy

 
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Old 08-16-2012, 06:56 PM   #2
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flintrock HB Userflintrock HB Userflintrock HB Userflintrock HB Userflintrock HB Userflintrock HB Userflintrock HB User
Re: Light-induced tics?

Hyou have found answer by now. I was reading on this subject just last week. It is a form of light-induced epilepsy. Children who play video games also have these episodes
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Old 02-19-2013, 02:59 PM   #3
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Cool Re: Light-induced tics?

It's funny to hear your post. It exactly describes what I had for over 40 years - I've never met someone with symptoms like mine.

Let me tell you that I was diagnosed with epilepsy, where light is the trigger. For 40 years medication hasn't helped.

Now I'm being sent to a movement clinic.

I guess all I can say is good luck. And if you find out more, let me know - it's been a long 40 years. On the other hand, I've learned to live with it, and I consider myself a successful professional, with a graduate degree. It wasn't easy, but can be done.

What I did? I avoided being outside... Though I love being outdoors... Neither glasses nor hats ever helped - actually: a few straw hats did help. You'd have to try different ones, till you find one with the right straw pattern. It seems to be something with the math in it.

 
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