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Tourette Syndrome Message Board
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Old 02-23-2012, 09:45 PM   #1
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Join Date: Feb 2012
Location: new jersey
Posts: 1
shadae HB User
need guidance/feedback.

If you have time, would be very appreciated

Hello I posted on a forum, what seems like an eternity ago(four years to be exact) when I was in the process of testing and waiting very impatiently for a diagnosis. And finally during that long process I was finally diagnosed with TS. The neurologist didn't listen too extensively and just prescribed me haliperidol, I took it but didn't like the feeling. So they sent me to a behavioral clinic at my school, but unfortunately with the process when the behavior center got going I was graduating soon, so I couldn't countinue going there anymore. Presently, I am searching around for some insight or advice on what could I do seeing as I still experience my tics (they have not gotten better with the years as.hoped-I am now 24) and I have no health insurance. For general medical I go to a local clinic. Could anyone point me in the right direction of.how to be seen again or find help. Please I would really appreciate it.

Thank You.

P.s I dont know anyone else with Ts, nor did anyone talk to me about guidelines or if severity comes into play. I dont know if I can say I ”suffer” from my tics as I still hold a job and continue with everyday life and apparently am really good at hiding/masking.it when needed. When I have told people they make me feel like a fraud because I don't have the type.of Ts they see on TV, so is that going to hinder me in finding help or being seen?

 
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Old 03-11-2012, 01:34 AM   #2
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Join Date: Sep 2006
Location: Bakersfield Ca
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akzmom HB User
Re: need guidance/feedback.

Hello, my son is 24 and I noticed his facial tics when he was 9. The only verbal tics he has ever had are clearing his throat and sniffing. They have improved and he too has learned to control them for periods of time when he needs too. Being tired, stressed, nervous, or upset seem to make them worse.I know it is impossible to completely avoid these things but get enough sleep,exercise and do things that make you happy. He has had good results from massage(if you search you can find reasonable prices) and yoga (you dont have to go to the gym, just get a DVD and do it at home). The Tourettes Syndrome Association has some good information. I did a lot of reading when my son was diagnosed and I believe this board was very helpful with information. Hope this helps

 
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