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Old 07-18-2012, 06:23 AM   #1
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17 year old son now has Tourette's???

For 10 years I have taken my son to various Drs, psychologists & psychiatrists. He has been diagnosed with PDDNOS, Asperger's, ADHD, OCD & mood disorders. Over the years he has been on many different meds etc. Now at 17 he suddenly has more complex tics. I took him to Neurologist and he put him on topomax and the tics are definitely not better and maybe worse! He also did not think he has Tourette's, but I watched Different the New Normal about Ariel Small and it describes my son's journey to a "T"!

Has anyone experienced topomax making tics worse????

 
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Old 07-21-2012, 07:50 PM   #2
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Re: 17 year old son now has Tourette's???

I have Tourette Syndrome and having been taking meds to help with my tics for 19 years and have NEVER heard of Topomax being used for Tourette's . . . only Epilepsy. I recommend taking him to see another neurologist or having the same neurologist change him to another medication. When he is on the right medication, it should help decrease (not increase) tics.

I have taken Klonopin, Risperdal, Clonodine, and Haldol for tics. Risperdal helped SLIGHTLY, but Haldol works so well for me that people don't even know I have Tourette's anymore. My tics are practically gone while I'm on Haldol. It's an "oldie but goodie" medication. I recommend Haldol, Risperdal, or Tenex. Those are the 3 main meds that are used to treat tics. The generics for those medications should work fine too. My insurance will only cover the generics of those medications.

P.S. Researchers say that Tourette's usually minimizes or goes away in adulthood, but mine did not. When I'm not medicated, my tics are worse now than when I was in puberty.

 
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Old 07-23-2012, 11:01 AM   #3
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Re: 17 year old son now has Tourette's???

Thank you!!!

 
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Old 11-27-2012, 05:55 AM   #4
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Re: 17 year old son now has Tourette's???

My 23 year old son has Aspergers, OCD, ODD, ADHS, and Tourettes he is actually not on any meds and hasn't been for many years but he was never on Topomax.

 
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Old 05-08-2014, 12:36 PM   #5
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Re: 17 year old son now has Tourette's???

My 16 year old son has Tourette's and takes Kepra for Tourette's and Topamax for migraines.

 
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Old 11-03-2014, 06:57 PM   #6
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Re: 17 year old son now has Tourette's???

tics can also be a side effect of some medications

 
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Old 04-18-2015, 06:52 PM   #7
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Re: 17 year old son now has Tourette's???

Quote:
Originally Posted by mamafayesita View Post
For 10 years I have taken my son to various Drs, psychologists & psychiatrists. He has been diagnosed with PDDNOS, Asperger's, ADHD, OCD & mood disorders. Over the years he has been on many different meds etc. Now at 17 he suddenly has more complex tics. I took him to Neurologist and he put him on topomax and the tics are definitely not better and maybe worse! He also did not think he has Tourette's, but I watched Different the New Normal about Ariel Small and it describes my son's journey to a "T"!

Has anyone experienced topomax making tics worse????
First off........most every Neurologist is a complete moron when it comes to tourettes.

Stay with psychologists and psychiatrists for better results. They tend to treat the entire person as to the Neurologist only treating what they "think" is the problem through medication and that is it.....period.....not to mention Neurologist will almost always be way to aggressive with medications and usually end up suggesting dangerous surgeries that are not needed nor proven in long.

Just because the good ole FDA says it's safe does not mean it is. But for some reason like most all md type docs........Neurologist fall right in line with that type thinking instead of staying with the tried and true paths until another path is a HAVE TO situation.

BTW, your son is still to young to know if he is going to be one of the lucky ones. He may outgrow this darn curse we have. Remember........most do (as they call it) "out grow it" by the time they enter their early to mid twenties.

So, don't force him to take horrid drugs that may give horrid sides that MAY last a lifetime whether they help or not.

I would get by with the least amount of drugs as possible until I knew for a FACT that he was not gonna "out grow it" like most do.

 
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