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Old 07-21-2005, 11:28 PM   #1
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Join Date: Apr 2005
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redpanda HB User
Anyone know about kidney transplants and bone problems?

I am a 31 year old women who had a kidney transplant last year after being on diaylsis for almost 9 years. During that time I had a partcial parathyroidectomy to help curb a phosphate/calcium problem common among dialysis patients. For years the doctors kept telling me I still needed to control my calcium and phosphorus levels and watch my parathyroid hormone levels, because it could cause problems with my bones.

To make a long story short, I am still having bone and muscle pain which started about 4 years ago. My parathyroid hormone level is so far out of control again they are going back in to remove a large amount of the remaining gland. I am then going to be taking fosamax. I am just curious to know if anyone has had a similar problem, or know how well the fosamax works. My only concern at this point is getting rid of the pain so I can return to doing strange things like jogging, and bicycling.

 
Old 07-26-2005, 10:41 AM   #2
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Location: Oak Ridge, TN, USA
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hrtofluv HB User
Re: Anyone know about kidney transplants and bone problems?

RedPanda (like the name),
I can't answer any questions in regards to the kidney transplant - cause I'm not sure why they would mention the bone trouble. I could speculate that they gave you a ton of steroids during this transplant?! If that is so, then the steroids do a number on your bones.
A bone density scan will be able to tell you the damage. Fosamax is a drug taken orally that will help build your bone density. There is several different types of bisphosphonates that are available - Fosamax is just one. I have experience with one that was done via infusions - Aredia. So if you go that route, I can try to offer experience for you.
If you can provide more information (or start a new thread), maybe someone else will be able to lend their advice as well.
Wishing you all the best!
hrtofluv

 
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