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Old 04-15-2004, 03:24 PM   #1
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Neuralgia (nerve damage) from Herpes

Has anyone else experienced this? After my first outbreak a few months ago, I have had non-stop symptoms going on. At first I thought it was just more outbreaks, but the symptoms never go away so my doctor believes it is neuralgia (or nerve damage) caused by the herpes.

The skin around my genitals and thighs (front and back) is constantly inflamed and sensitive. It burns at some times during the day, and it is very uncomfortable when my clothes even slightly rub up against it. I also have non-stop tingling going on too in my legs, butt, and even my arms sometimes. However, I never have anything visible at all, so much as a redness or bumps or anything, it is completely invisible. These symptoms have hung around for over 2 months now even though I have not had another outbreak since my first. Has anyone else experienced this? Is it temporary or permanent? Anyway to get rid of this?? It is really uncomfortable to the point where I cant even sit still for more then a few seconds at a time.

 
Old 04-16-2004, 06:05 AM   #2
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Re: Neuralgia (nerve damage) from Herpes

I'm sorry to hear you're having such a hard time. It seems I've heard other people complain about this--maybe someone who has will post. What have you put on the area to soothe it, if anything? Orn uses an aloe vera spray that she says really helps (during ob's.)

 
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Old 04-16-2004, 07:22 AM   #3
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Re: Neuralgia (nerve damage) from Herpes

I'm sorry to hear this aswell. Have you had any treatments (natural or otherwise)? Have your eating habits changed? Have you been under a lot of stress?

 
Old 04-16-2004, 07:44 AM   #4
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Re: Neuralgia (nerve damage) from Herpes

They aren't outbreaks, I haven't had any outbreaks for several months. My doctor says the symptoms I'm feeling (inflamed/burning skin) and the constant tingling are caused by damaged nerve cells from the virus during my last outbreak a while back. Ever since then I have had this stuff going on non-stop. That is why I came here to find out if anyone else has experienced anything like this, and to find out how long it will last (temporary or permanent). I can deal with the outbreaks if they come, but the non-stop pain of neuralgia from the herpes is really becoming a burden...

 
Old 04-16-2004, 07:47 AM   #5
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Re: Neuralgia (nerve damage) from Herpes

They aren't outbreaks, I haven't had any outbreaks for several months. My doctor says the symptoms I'm feeling (inflamed/burning skin) and the constant tingling are caused by damaged nerve cells from the virus. That is why I came here to find out if anyone else has experienced anything like this, and to find out how long it will last (temporary or permanent). I can deal with the outbreaks if they come, but the non-stop pain of neuralgia from the herpes is really becoming a burden. Has anyone else had non-stop skin sensitivity/burning or constant tingling?? Did it ever go away? How did you treat it?

Thanks

 
Old 04-27-2004, 02:05 PM   #6
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Wink Re: been there

Hi

I've had the same thing, very painfull and at times had to take a painkiller.
Everyday again.
It lasted for sure for 4 months.
I knew it had to do with my herpes because it seemed to come from the spot where I always have my blister, my leg, thigh on that side was very painful.
My doctor found it very reasonable that the nerves that lead to the herpes were damaged or inflamated from the herpes. I've been on zelitrex now for 3 months and its gone, and I'm happy again. so don't worry and your right it has to do with the herpes.

Maggie

 
Old 04-27-2004, 04:36 PM   #7
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Re: Neuralgia (nerve damage) from Herpes

Yes, I have it too! I got my first primary outbreak last August, and it was very severe ( according to my doc). I got the whole 9 yards....blisters, could not urintate, walk, I was so ill with the flu symptoms I thought I was going to die. And then...the burning, stinging with no outbreak at all. It has lasted almost 6 months!!!!. There were times when I thought " if this is herpes then I want to die ". For the first time since being diagnosed ( this month has been tolerable). I have it today, but no so bad. I tried everything. The burning/stinging is awful but there is nothing there. I even went to a virologist to look at it and also my gyno. Both said I had PHN...Post Herpatic Nerualgia due to nerve damage. I think it has been worse than the herpes because it is a constant reminder and it is pain. Who wants that? I quit smoking, drinking any alcohol, that seemed to help a lot. I am on supressive Valtrex. When the burning gets too bad to tolerate I take a 1 mg. Ativan. Or I take a Motrin. I am praying that it will eventually go away completely. I pray for us all that they find a cure for this.

 
Old 04-27-2004, 05:09 PM   #8
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Re: Neuralgia (nerve damage) from Herpes

I have this too! My first ob started about 3 weeks ago. I got fatigued, then burning,tingling redness inside and outside the vaginal area but no visible blisters/ lesions. The gyno of course thinks it was just a yeast infection but I've never felt like this. My herpes swab results should be in tomorrow, but I don't know if that will show anything because of no lesions. The itching and burning seemed to go away this weekend but I started having burning/irritated feeling on my buttocks, but nothing visible on the skin. Now I'm getting burning on the front and backs of my thighs and a slight soreness to the muscles of my inner thighs. Also there is an area of my thigh where the skin is sensitive to the touch, *****ly feeling. I have not had one day where I have no symptoms, but they do go away for awhile then come back and are still changing all the time! I don't know if this is the same first ob working itself out or numerous ob's since the symptoms keep changing. I also don't know if I should try to get on suppressive therapy or see how my body adjusts to this. After all, if this is my first ob, perhaps it will go away for awhile after this(?) Does anyone have any advice on if I should go on suppresive therapy? Also, has anyone had the leg burning and had it go away after an ob, or will it definitely stick around for a long time. Thank you!

 
Old 04-29-2004, 06:28 AM   #9
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Re: Neuralgia (nerve damage) from Herpes

Hey everyone.....

This seems quite common...I've had lower back pain on & off since 11-03, only in one spot. I have to take painkillers from time to time...And I believe it herpes related, original diagnosis was in 10-03, one month prior. I did some research and found some interesting material, that everyone here should look into. Do a search on postherpetic neuralgia....Just to see what this damn virus can damage.....It's interesting, that's for sure......Hope everyone feels better......-Ornament

 
Old 04-29-2004, 10:14 AM   #10
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Re: Neuralgia (nerve damage) from Herpes

The muscles in my legs, lower back, and even sometimes my arms will twitch for no reason. This has been going on and off ever since I got herpes...in fact I think it is the most bothersome part of having this disease.

Ornament is right, this is a SERIOUS virus. Its not just a skin disease that causes a few itchy bumps...it is a NERVOUS system disease...and anything that effects your nervous system is bad news and can cause a lot of additional problems (hence the symptoms like permanent nerve pain, muscle twitching, etc.)

This disease needs to be taken a lot more seriously than it is. An effort needs to be made to warn people about it, how easily it spreads, and its damaging effects on the body (in some people). Heck, if they just did "scare tactics" in sex ed class by showing those nasty pictures on the net...that would be better than nothing.

 
Old 04-29-2004, 07:56 PM   #11
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Re: Neuralgia (nerve damage) from Herpes

I'm curious. When you have nerualgia.. do you have the symptoms pretty much every day? I'm asking because I was outbreak free for the last 1 1/2 weeks and now I'm getting symptoms again. Is this my third outbreak or do i have nerve damage? How can you be sure? Good thing it's not as severe as the first or second one. I'm just having irriation and itching. This is really annoying. I only stay outbreak free for 1-2 weeks.

 
Old 05-07-2004, 04:20 PM   #12
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Re: Neuralgia (nerve damage) from Herpes

i have tingling on my vagina since birth of my son 7 months ago. docs dont know what it is and dont think its herpes, any ideas, its really uncomftable, thanks, april

 
Old 05-08-2004, 08:28 PM   #13
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Re: Neuralgia (nerve damage) from Herpes

I get this same neuralgia down the fronts of my my legs and on my lower back during some of my outbreaks. I told my doctor about it and he looked at me like I had two heads, so I dropped it. I also have vericose veins down the fronts of my thighs so I thought maybe it was related to those goofy things.. Feels the same as when I have a really bad flu, my skin just hurts to touch and goosebumps are painful. It only seems to last a week or so with me though.

april-- did he do an episiotomy or did you tear really bad, maybe there was some nerve damage there thats taking its sweet time healing.

 
Old 05-11-2004, 05:51 AM   #14
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Re: Neuralgia (nerve damage) from Herpes

Anyone find any neuralgia relief????? I'm getting tired of taking tylenol-3's for it. Symptons, seem to come and go......Any solutions in sight????
Wondering, -Ornament

 
Old 05-11-2004, 12:59 PM   #15
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Re: Neuralgia (nerve damage) from Herpes

To all,

I am just curious. I have had some nerve pains on my left arm/hand and right leg for some 2 months after a sexual encounter. They happen too sometimes in small patches on my right arm/hand and left leg, but it is usually assymetrical. It happens in my left arm/hand and right leg most of the time. At some time, there were some nerve irritations on the inner side of my thigh too. But, that is gone now. These last 2 weeks i have been feeling better.

I am so afraid that it is STD related.

I don't know if I have Herpes or not because where I live there is no test for it unless you come up with visible symptoms (ie sores, blisters, chancers).

But, I remember that on the 2nd day after the sexual encounter, I had burning and itching inside the foreskin area of my penis. It was red too (rash?). After I applied some Vaseline the next, the burning and itching was gone in 4 days. But, I had some on and off burning sensation in my butt. The burning in my butt was the most worse for a week and a half after the sexual encounter.

To this day I still suspect this might be some STD like Herpes or a yeast infection.

It's mostly the nerve pains that are killing me. But, I am not sure if I have neuralgias or peripheral neuropathy.

I have been most terrified that it is HIV causing these nerve pains. I have heard the connection between HIV and neuropathy.

But, after reading this, I know it can also be Herpes. The thing is that I have never or not had any visible huge sores or blisters I used to associate with Herpes.

Does my situation sound like Herpes or HIV?

 
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