Trigeminal Neuragia anyone - Trigeminal Neuralgia Message Board

jtsimikas · 12-18-2002, 08:05 PM

Anybody out there been diagnosed with Trigeminal Neuralgia?

I just curious to see how other people are coping.

Any success stories?

sukers · 12-18-2002, 09:52 PM

Yes! I had trigeminal neuralgia 30 years ago. It was such horrible pain, the worst I've ever had! The ENT put me on Dilantin, an anti-seizure med. and that helped right away. Six weeks later, the dentist discovered a badly infected back tooth on that side. He pulled it & things really improved. For over a year though I couldn't bear to have the wind blow on my face & kept it covered outside. After that it was fine & has been ever since! There's hope, don't give up. I know how this feels and my heart goes out to you but know there are even newer meds today that can give relief. God bless. Please keep me posted & write back if you want to talk.

jtsimikas · 12-20-2002, 08:20 PM

I'm glad you were able to rid yourself of your TN symptoms. I've been dealing with it for 5 years.

I've considered getting my wisdom teeth removed just in case the TN was triggered by that but have yet to do so. Your message might sway me to have this done, since the dentist recommends that I have them extracted anyways. Although my wisdowm teeth aren't problemetic right now.

I've also had some TMJ problems on the left side of my face where I experience the TN symptoms.
I have seen 3 neurologists and they have all come to the conclusion that there is no correlation between TMJ and TN.

Also, the medications (Neurontin, etc) do not work for me so I have stopped taking them.

John

wmkcolors · 01-13-2003, 11:31 PM

I've been experiencing similar symptoms and am going to see a neurologist soon. I've had alot of dental work done over the past few years and this seems to trigger the painful episodes of TN. Does your pain ever subside? For how long?

Hangin in There · 12-12-2005, 10:28 AM

My elderly mother has had TN for over 20 years. One side is worse than the other so I have to remember which cheek to kiss. She also takes dilantin, which helps, but doesn't take it away. She has false teeth so having a bad tooth removed isn't an option. I feel sorry for her.