Re: Atypical Trigeminal neuralgia pain?
director is right,you really DO need to see a pain management specialist for your particular pain issue.this really IS the best way to tackle your pain and get the right type of meds and possible therepys that work best for you.everyones pain is different and very highly individual as far as how it is best treated.just because the trileptal(my son actually takes this)didn't work for you doesn't mean that some other of the many different anti S meds wont do the trick for you.they are all a bit different in their overall make up.pain docs just treat pain,thats all they do,unlike any surgeon who does NOT want to be Rxing any narcotics to anyone for anymore than the six week post op period,even that can be pushing it with some of them.surgeons just are not good with any sort of real pain management for anything really.
you just need to go to the experts with this one.you have alot of damage there in an area that is very highly innervated and vascular,that in itself has its own set of possible problems.i wish you luck and hopeyou can find a really good pain doc to help you to deal with this.you shouldn't have to live this way.none of us should.please keep us posted as to how things are going,K?Marcia
11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.