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Trigeminal Neuralgia Message Board
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Old 12-31-2007, 12:18 PM   #1
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Join Date: Dec 2007
Location: Atlanta, ga, usa
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ATLRick57 HB User
Geniculate Neuralgia (IcePick Ear Pain)

I have been suffering for 8+ years with reoccuring ear pain. It comes on sometimes very quickly and can linger for days or go away as quickly as it came on. I have been to MD's all over the USA and have not found one yet that could help me with finding out what's wrong. I have recently found articles on the Internet regarding Geniculate Neuralgia. Which I believe is what I have. It seems to be a rare condition and involves the cross compression of the somatic sensory branch of cranial nerve VII "Nervus Intermedius". Sometimes I can go several months without a flareup of this ear pain, and sometimes it can happen several times a month, or per week. The pain gets so severe that I can't move my head without shooting pain through my ear. The pain is always on the left side for me. And the ear gets painful to the touch. Only during one flare up "Feb 12th, 2005" did I become dizzy and have trouble holding my head up and walking. There were 2 Md's present at this party I was at for Valentines Day, and neither had a clue of what was wrong with me. I explained my ear pain, and that it comes and goes, and that this episode was the worst ever for me. I was relieved to finally read within the past few days that other people have what I have. And, some of them have had the surgery to "Uncompress" the nerve. I have started to make some inquiries here in Atlanta for an Otolaryngologist that has knowledge of Geniculate Neuralgia "GN", so I can start on a path to relieve my pain. If any of you know of information that I can obtain regarding "GN" I'd love to have more information to read. If I have opened anyone's eye's to perhaps discovering this may be what they have as well... for that I am glad. Here's to a great 2008, and being on the road to discovering more about Geniculate Neuralgia.

 
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