It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Trigeminal Neuralgia Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 05-23-2008, 08:46 PM   #1
Newbie
(female)
 
Join Date: May 2008
Location: australia
Posts: 1
jwistle HB User
glosspharyngeal neuralgia

Could anyone help with info/advice on my problem.

A am 44yrs female with MS approx 12yrs, recorded lesions for 10yrs with neruo doctor saying ‘it may be MS we’ll wait and see’. Sent to physician who couldn’t believe I’d been left so long without diagnosis and treatment. Now been treated MS meds 2yrs. I am mobile, using crutches occasionally. I have had TN & glossopharyngeal neuralgia for about 8yrs mostly controlled, but have now developed glossopharyngeal neuralgia spreading through my torso and if it lasts long enough and severe enough I get TN with it. Used to only occur 1 every few weeks but now increased many daily with long duration hrs if not controlled by extra doses of Gabapentin. Longest I've had it before treated at hospital 2hrs of wavelike spasms lasting 1min to 5min. I became all bent sideways and just able to stand. Pain in throut. tongue, soft palate, ear and down front back torso, arms and top of legs. Left with hangover pain in those areas for hrs (hurts to touch areas). Can recurr constantly for hours or a couple of attacks a day. The worst pain I've experienced. Equal to OP childbirth with only gas for pain as labour only 1hr. It is very scary. On Gabapenton 300mg (900mg 3 times/day) with extra 600mg for attacks which I can do twice but then I have to go to Hosp. Does anyone know the long term outcome of this condition. Have read on net articles that it can be life threatning as the nerves involved, Glossopharyngeal and Vagus control the heart and breathing.

Can you help with any info.


 
Sponsors Lightbulb
   
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Trigeminal neuralgia dream77 Trigeminal Neuralgia 43 09-27-2011 11:33 AM
Trigeminal Neuralgia Jill43 Trigeminal Neuralgia 30 10-01-2008 11:05 PM
trigeminal neuralgia and TMJ? plkelly Trigeminal Neuralgia 16 09-18-2008 01:16 AM
Neuralgia causing ear pain ? enie Trigeminal Neuralgia 16 11-02-2007 02:35 PM
vagoglossopharyngeal neuralgia ngd59 Trigeminal Neuralgia 22 08-07-2007 08:33 AM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 05:20 AM.



Site owned and operated by HealthBoards.com™
Terms of Use © 1998-2014 HealthBoards.com™ All rights reserved.
Do not copy or redistribute in any form!