Re: trigeminal neuropathy - scared !!!!
I have this too. Don't be scared, it sucks but nothing to be afraid of. There is a really good site by a facial pain society lots of info. I take tegratol for mine, it helps alot, I hardly ever get the lightening bolts in the last several months since I started this med. I started with Trigeminal when I was in my early 20's, I had periods when it would go away for months at a time or even a year, then the attacks would come back, It took years and I mean like 15 years to get a diagnosis, finally from a neurologist. I am almost 50 now, I have pain all the time now, but meds help. There are many treatments, I have not used any but meds but if the meds quit working I will try something else.
Again, I know it is disturbing and hard, but you can handle this, there is alot of hope with this neuralgia, there are specialist neurologists who mainly deal with facial nerve problems. I wish you good luck, your not alone, I've made it 27 years with this condition, Its bad, but you can make it.
PS, I have even seen some support groups at larger hospitals in cities, I know there is one in Cincinnati ohio.
Fibro,neuropathy,TN, failed acdf 3 level, stenosis of the spine, cvid