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Trigeminal Neuralgia Message Board
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Old 02-08-2010, 02:25 PM   #1
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bhauff HB User
TMJ and Trigeminal Neuralgia

Saw a Neurologist today. Will be having an MRI on Wed. My family practicionar sent me to the neurologist. He diagnosed me with Trigeminal Neuralgia. He perscribed a nerve medicine (anticonvalgent).

I would just like to say if you are having TMJ problems and you are also having sharp pain in your ears, or shocking electrical sensations in your face it may be something more than TMJ.

I have been on this medicine for about a week and things are so much better it is even hard to explain. Don't give up and keep trying to find help and answers.

Typically the doctors would see that I had TMJ and look no firther.

Thanks

 
Old 02-08-2010, 07:33 PM   #2
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Re: TMJ and Trigeminal Neuralgia

Thanks for sharing your encouraging story. My primary doc thinks I have trigeminal neuralgia too. He wanted me to go on Lyrica but i've hesitated for now. If TMJD surgery doesn't take away that pain, he is going to refer me to a neurologist. I'm hoping I don't have that too; one problem is enough to handle! My symptoms do mimic trigeminal neuralgia but I also know they are TMJD symptoms too.

 
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Old 03-31-2010, 07:10 AM   #3
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Re: TMJ and Trigeminal Neuralgia

I have the same, went on with "TMJ" for almost a year before doctors caught it. Can I ask what medicine? I am taking lyrica, but it's not under control so I am looking for alternatives. Any ideas?

 
Old 04-07-2010, 11:49 AM   #4
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Re: TMJ and Trigeminal Neuralgia

Thank you for giving my problem a name!! Although I'm reluctant to go on a daily medication, the ear pain and dizziness has made me change my mind. I've tried Cymbalta, Lyrica and will be starting on Neurontin tonight. Did you have any luck with Lyrica or any other new medications?

 
Old 04-10-2010, 12:09 PM   #5
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Wink Re: TMJ and Trigeminal Neuralgia

Quote:
Originally Posted by Chuckles710 View Post
Thank you for giving my problem a name!! Although I'm reluctant to go on a daily medication, the ear pain and dizziness has made me change my mind. I've tried Cymbalta, Lyrica and will be starting on Neurontin tonight. Did you have any luck with Lyrica or any other new medications?
Don't do the lyrica!! I thought it helped at frist, but now I can't get a doctor to take me off of it. I am now on such a high dosage, they are going to have to titrate me down. So I am asking for Neuirtin (sp?), I have also found Mucinex helps with the dizziness. I do take that and it seems to help with some of the vertigo as long as I can keep my head clear. Just wish I could get doctors to agree on treatment. I am now going through allergy testing. I finally talked to someone who also has this wonderful disorder, and she gets allergy shots and uses sensodyne toothpaste! That's it!! If that works I'll try anything at this point.

 
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