It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Trigeminal Neuralgia Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 04-19-2010, 09:12 AM   #1
Senior Member
(female)
 
Join Date: Jan 2007
Location: Atlanta, Georgia
Posts: 224
TV in RV HB User
trigeminal neuralgia...help!

My sister is having neuragia attacks that are so severe that she is convulsing, crying and shaking. She can't see a doctor immediately but she has an appointment. She would like a strong medicine that would knock her out but she can't do that because she has a 2 month old infant whom she is breast feeding. The baby has allergies so infant formula is not an option right now. She is taking pain medication in low doses but she wants to know what triggers these episodes so that she can avoid an onset. Also, what can she do during an attack to relieve the pain without medication?

Any advice would be greatly appreciated.

 
Old 04-19-2010, 10:04 AM   #2
Member
(female)
 
Nummbie's Avatar
 
Join Date: Apr 2010
Posts: 63
Nummbie HB User
Re: trigeminal neuralgia...help!

Quote:
Originally Posted by TV in RV View Post
My sister is having neuragia attacks that are so severe that she is convulsing, crying and shaking. She can't see a doctor immediately but she has an appointment. She would like a strong medicine that would knock her out but she can't do that because she has a 2 month old infant whom she is breast feeding. The baby has allergies so infant formula is not an option right now. She is taking pain medication in low doses but she wants to know what triggers these episodes so that she can avoid an onset. Also, what can she do during an attack to relieve the pain without medication?

Any advice would be greatly appreciated.
She should go to the Emergency Room! Hope she feels better soon. Also, there are donor programs for breastmilk check with La Leche League.

 
Sponsors Lightbulb
   
Old 04-19-2010, 10:11 AM   #3
Facilitator
(female)
 
Join Date: Apr 2005
Location: Birmingham, AL
Posts: 15,043
Titchou HB UserTitchou HB UserTitchou HB UserTitchou HB UserTitchou HB UserTitchou HB UserTitchou HB UserTitchou HB UserTitchou HB UserTitchou HB UserTitchou HB User
Re: trigeminal neuralgia...help!

The facial pain association (used to be called the TN Assoc) has resources to help her.
When my sister suffered from this, most events were brought on by unknown triggers. However, any cold air on her cheek would also set off an event. She eventually had vascular decompression surgery at the Presbyterian Hospital at the University of Pittsburgh. She's been fine ever since.

I hope your sister finds a neurologist who is well versed in TN that can help her.

 
Old 04-19-2010, 11:50 AM   #4
Senior Veteran
(female)
 
Join Date: Nov 2009
Location: Eagle River
Posts: 1,272
Blog Entries: 68
EagleRiverDee HB UserEagleRiverDee HB UserEagleRiverDee HB UserEagleRiverDee HB UserEagleRiverDee HB UserEagleRiverDee HB UserEagleRiverDee HB UserEagleRiverDee HB UserEagleRiverDee HB UserEagleRiverDee HB UserEagleRiverDee HB User
Re: trigeminal neuralgia...help!

My Dad had this and the only thing that helped him was to have the nerve cauterized. He had it done at the University of California...San Diego I think. I could find out. It's an extreme measure, but TN is called "the suicide disease" by some because of the pain so sometimes extreme measures are called for. There are treatments from drugs to surgeries.

 
Old 04-19-2010, 01:37 PM   #5
Senior Member
(female)
 
Join Date: Jan 2007
Location: Atlanta, Georgia
Posts: 224
TV in RV HB User
Re: trigeminal neuralgia...help!

Thanks guys, She is going to see her dentist tommorow so that they can rule out an absess before considering surgery. Thing is, we don't know how far away an appointment for surgery might be. Are there any other natural steps that she can take to avoid agravating another attack, or home remedies to ease the pain? The donor breast milk program is very interesting, thanks. She said that she will go to the emergency room if it ever gets that bad again.

 
Old 04-19-2010, 06:16 PM   #6
Facilitator
(female)
 
Join Date: Apr 2005
Location: Birmingham, AL
Posts: 15,043
Titchou HB UserTitchou HB UserTitchou HB UserTitchou HB UserTitchou HB UserTitchou HB UserTitchou HB UserTitchou HB UserTitchou HB UserTitchou HB UserTitchou HB User
Re: trigeminal neuralgia...help!

There are several meds they can try - not just pain killers. They just didn't work long term for my sister. The problem with this condition is it is caused by a malformation...so there are no "natural" cures as the malformation has to be corrected.

Please check out the facial pain association for their info. They list doctors approved by the association in various states.

 
Old 04-20-2010, 09:30 PM   #7
Junior Member
(male)
 
Join Date: Mar 2010
Posts: 16
gregw HB User
Re: trigeminal neuralgia...help!

Yes, she needs to see a doctor with experience with TN pronto. There are meds for nerve pain that work pretty well for some. Not sure she could breast feed on them, but she may have to do something much sooner then surgery. Tegretol is the most commonly prescribed drug for this. It worked pretty well for a friend of mine, but she eventually opted for the surgery and has been pain free since the nerve had a chance to calm down after surgery.

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Trigeminal neuralgia dream77 Trigeminal Neuralgia 43 09-27-2011 10:33 AM
Cracked Tooth, Lost Filling, Abscess or Trigeminal Neuralgia?!? jamsie Trigeminal Neuralgia 22 06-27-2009 12:48 PM
Stoke and Trigeminal Neuralgia - Any connection? Stacia Trigeminal Neuralgia 0 10-05-2008 08:55 PM
Trigeminal Neuralgia Jill43 Trigeminal Neuralgia 30 10-01-2008 10:05 PM
trigeminal neuralgia and TMJ? plkelly Trigeminal Neuralgia 16 09-18-2008 12:16 AM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added








TOP THANKED CONTRIBUTORS



Titchou (6), Isurvivedtn (2), green girl (1), violet6 (1), jverive (1), E11YearsOfPain (1), ladybud (1), sasslass (1), Cindy Marie (1), byoung6 (1)

Site Wide Totals

teteri66 (1180), MSJayhawk (1005), Apollo123 (906), Titchou (850), janewhite1 (823), Gabriel (759), ladybud (755), midwest1 (669), sammy64 (668), BlueSkies14 (607)



All times are GMT -7. The time now is 05:45 AM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!